I keep running into trouble even though I’m in a wheelchair

A columnist searches for the cause of his constant diarrhea

John Connor avatar

by John Connor |

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Ah yes, I’m starting this week’s column with a headline thatā€™s a conundrum (that is, if the olā€™ editor lets me keep it).

That’s because I’m starting with a slang word. I’ve checked, and it seems that the main slang word for diarrhea both in the U.K. (where I live) and the States is the “runs.”

When I was in a rehab clinic in February, I had the dreaded runs for three solid (sorry) weeks. It drove me to such an extreme that I completely stopped eating for days at a time ā€” which at least offered some relief for my incredibly sore bot-bot.

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But this sent the staff into a tizzy. They kept turning up in my room with meals to entice me. As Iā€™m severely overweight and was becoming more so every day with their enforced regimen of three meals a day, I could take it.

It also wasnā€™t difficult when on a vegetarian diet. The food was both monotonous and occasionally beyond inedible.

A close-up photo of a wildly unappealing dish of food at a rehab clinic that's part of the U.K.'s National Health Service. The food literally looks like mush and has a spoon in it.

Is it a bird, a plane, or something the dog wouldn’t even drag in? (Photo by John Connor)

Although Iā€™ve been a vegan for several years, itā€™s impossible to remain so within our National Health Service, unless you only eat microwaved “baked” potatoes and the British canned version of baked beans for every main meal. I know this because I actually once managed to do so for three weeks straight. Never again.

A new doctor took over my care at the rehab center in Leatherhead, in central Surrey. This is a little town surrounded by fields some 9 miles from my home at the southern tip of Greater London. So it’s in the country as far as us townies are concerned.

Anyway, the doctor advised me to stop taking antidiarrheal medication because she thought the issue was undoubtably caused by a virus. She got me down pat by adding, “Something tells me youā€™re going to do what you want anyway.” It transpired that it was “better out than in,” as “in” would only be delaying the problem.

Grrr, she had me. I immediately stopped taking Imodium, and the continuous jets that came out of me left me red raw. I had my own afterburners!

Toward the end of my stay, loads of us actually did catch a communal virus. I felt terrible, and my multiple sclerosis let me know I was dealing with an infection. I experienced fatigue, loss of power, and that persistent favorite of mine, increased spasticity in my right arm.

Itā€™s quite possible that I have something like irritable bowel syndrome, as I have a few of the symptoms. I wonā€™t go into a specific one as itā€™s too weird even for me.

Iā€™ll likely be referred to yet another specialist. Iā€™ve never sat down to count the myriad specialists Iā€™ve already seen ā€” which shows my irredeemable laziness, as thatā€™s exactly the position I spend my days in. I must be well into double figures by now.

Out of the ruins

There is hopefully another possibility. The rehab center was amazingly well stocked with specialist disciplines. They even had a part-time nutritionist. She pulled me out of the weekly general knowledge quiz to question me about my fasting.

She wondered if my years of constant antibiotics, combined with the intense doses Iā€™d just had in the hospital, had stripped my microbiome bare. Even nibbling on some dry toast would help to restock it, she said.

This made sense, so I went back to the dining room. I felt terrible that Iā€™d caused such a hassle. My crisis had been exacerbated by a COVID-19 outbreak that had put us all in lockdown for nearly a month. So no visits from my wife, Saint Jane.

When the nutritionist arrived again, copious bottles of requested kefir were delivered. My room even had a fridge to store them in. Within days of me drinking nigh on a liter a day, I returned to the thankful world of solids.

I hark back to this because last week, my awful stream started again. It couldnā€™t be the food because Iā€™m now back on our incredibly healthy vegan diet. Green veggies abound. The kefir, though, had run out weeks ago.

Saint Jane thankfully made an emergency run (sorry again) to the shops, and things have settled down somewhat. Yes, I know kefir isnā€™t vegan, and that there are vegan versions available, but they are ridiculously expensive and hard to find.

Making an exception to something that’s not vegan may be a slippery slope, like smoking. I did get my fill of eggs during the four months I spent in the care of our health services. That’s the one food Iā€™ve really missed since going vegan.

I shouldnā€™t have written about it, though. Now I want an omelette!


Note:Ā Multiple Sclerosis News TodayĀ is strictly a news and information website about the disease. It does not provide medical advice,Ā diagnosis, orĀ treatment. This content is not intended to be a substitute for professional medical advice,Ā diagnosis, orĀ treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those ofĀ Multiple Sclerosis News TodayĀ or its parent company, Bionews, and are intended to spark discussion about issues pertaining to multiple sclerosis.

Comments

Jette Johst avatar

Jette Johst

Glad you are feeling better, John! Itā€™s actually really easy to make your own water kefir. You can buy the ā€˜grainsā€™ online.

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John McCann avatar

John McCann

Hey John
I need to thank you for lifting my spirits. I was genuinely feeling bad about life. Then i saw what could only be a "John Connor" headline. I opened it and with a mixture of emotions hoovered up all you had to say about your experiments in rocket propulsion and beyond.

And more importantly, glad to see you are still able (and willing) to wirte about your trials and tribulations. Your're an absolute legend.
JMC

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John Connor avatar

John Connor

Well, the unreal John Connor is. He just keeps on a-savings the world.

Reply
John Cowburn avatar

John Cowburn

Stop the vegan diet, it's not natural for an omnivore to be eating greens only, for a million years at least, humans have been either carnivores or omnivores.

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John Connor avatar

John Connor

Yes but no. In the west weā€™ve only been eating intensively farmed meat since the ā€™50s. Heart disease has rocketed. If only you could buy the lean fat present in antelope cuts in the supermarket. Actually think you can in South Africa! Stick only to goat or deer which canā€™t be factory farmed. Or highly expensive organically produced meats. Which just canā€™t be produced in enough to supply the population anyway. Meanwhile us vegans just leave more room for u lot.
It may be a while but eventually the majority of meat eaters will likely have to sources their cravings from insect protein. On the plus side itā€™s highly nutritious and indeed incredibly lean.
Enjoy your heritage. For thatā€™s also been part of our diet for millions of years as it still is today in many parts of the world.

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FB avatar

FB

Maybe have a look at FODMAPs - their effects can look a lot like IBS. FODMAPs is not a fad but properly scientifically researched by a highly reputable university. Ask Google and you will be able to find the Monash University website about them. Some people who have suffered for years with bowel problems and been given the run-around (sorry... not :) ) by medicos have got their lives back after discovering FODMAPs.

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Anthony Hoysted avatar

Anthony Hoysted

Hi John, you're a warrior! From my time in Japan, plain white rice is gentle on the intestines and not likely to provoke an irritable bowel. Also, I see that there is a vegan alternative to Yakult (the Japanese dairy-based drink containing various gut biome strains) called Biomel. I've never used it but it may be worth a try.

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