The tinkling laughter of tiny children filters through the windows of my bedroom. It’s a sunny Sunday afternoon. In years past, I would be sitting in the garden watching my grandnieces play. Undoubtedly with a large jug of Pimm’s that I would have concocted for the assembled adults. We’re…
Fall Down, Get Up Again
— John Connor
In the ‘80s, John Connor created the first regular column about the burgeoning London stand-up scene. In 1990 he wrote a book about its effect on the Edinburgh Festival: “Comics: A Decade of Comedy at the Assembly Rooms.” That year he also devised and ran a live topical stand-up team show at The London Comedy Store, The Edge (It was destroyed in 2020!). In 2009 John was diagnosed with relapsing-remitting MS, which cut short his main job as a TV casting director for “Black Books,” “My Family,” et al. Now, John writes “Fall Down Get Up Again,” an irreverent journey with MS.
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A few columns back, I wrote about my lack of time to get anything done. Sure, the way around it would be to get up infernally early — well, early for me. But I’m most certainly not going to pay to be punished. And that’s the story I’ve always…
It’s 3:15 p.m. U.K. time on Wednesday, May 9, 2018. My deadline for this column is actually 3 p.m. Gone are the days of blaming the dog for eating my homework; it’s only in the last few minutes that I’ve actually been able to move a bit. From 8:30…
The problem with writing a weekly column is I always need to come up with new ideas. Luckily, or rather, unluckily, MS always throws me a U.S. sports-shaped analogy — one of those trickily disguised curveballs. I wasn’t even going to attempt to write this week. Not because of…
I saw my neurologist a few weeks ago for what was effectively an emergency meeting. I’d had the customary two rounds of Lemtrada (alemtuzumab) and still had a relapse. We discussed weighty subjects and there seemed, surprisingly, to still be some hope. It depends on the outcome of an MRI;…
Really big things are going on in the world. WW3 is again flagged as a possibility. My world is considerably smaller. It’s mostly my bedroom. I can get out of it, but it takes a considerable effort. In the last seven days, I only exited it once. Last night, I…
The stars sometimes align, even for us atheists. My son was making a fleeting weekend visit from his last year at his university. It’s all we were going to see of him over the Easter period. He’s taking it very seriously and aiming for top grades in math. The week…
Let me introduce you to my wife, Jane, by cheekily lifting the title “Be My Wife” from possibly the only accessible track off Bowie’s seminal ’70s album, “Low.” Through these weekly columns I’ve mentioned her often enough, but I’ve never formally introduced her. Mea culpa. I didn’t have…
Six months ago, I was a reasonably svelte 14 and a half stone. I’m not sure how I managed it, but it was certainly before pitting edema wrapped itself around my shins and calves like bulbous sacks of wineskins. I managed to get on the scales a while…
Well, I’m usually fairly upbeat, but this time, it’s going to be beyond me. We’ve all had relapses — I think I’m in the fitting cliché of being on my last legs. I can, on a good day, transfer on my own from the bed to my trusty…
It’s been a grueling three weeks. Birds ate my breadcrumb trail long ago. I was too tired to follow it anyway. Stumbling about has definitely been beyond me! I’ve just shaved what had become a beard and showered, which, mixing my stories, made me feel like I’d been living on…
Usually, I’ve got a fair idea of where I’m headed in my column. This time, I really don’t. I’m confronting something. Maybe nothing. It’s as clear as the cliché involving wet, clingy earth. For the first time since the last week in November 2017, I’ve stopped taking antibiotics. That’s…
Something is! I had to be carted off to the hospital in an ambulance on Thursday of last week. It was either an infection my home-visiting doctor couldn’t spot or the dreaded relapse. She couldn’t diagnose any illness. At the hospital, they used the words “atypical infection.” One of…
The thing about becoming increasingly immobile is that your consumption of TV, radio, podcasts, books and, indeed, anything written goes up immeasurably. Luckily, one of the creative explosions in the recent years I’ve had MS is Scandi drama. I don’t know if it’s really penetrated the U.S. market, although…
It started with vitamin D. Little did I know I was starting a habit. I had my first sclerosis attack in 2006 and learned about it by having an appalling fall on a tennis court. That’s another story. I haven’t written about that yet, but I’m sure I will.
It was Burns Night last week, which is always a joy. I love whisky and am very partial to haggis (tricky to source, as we only buy the outdoor roving haggis!). A few years before MS hit, I went to a Burns Night supper where the only thing…
My arms are heavy. Strong antibiotics have held off a urinary tract infection (UTI) for the last eight weeks — evolution isn’t on my side. In fact, I’m distinctly beginning to feel like the British Expeditionary Force in Dunkirk in May 1940. Surrounded, with my only hope over the…
It was late. I dropped the TV remote on the bedroom floor. No biggie. I was sitting on my commode (don’t worry, it was in its chair configuration!) and was reasonably close to the ground. No thinking involved, I leaned over to pick it up as I’ve done many,…
I could be in a fancy restaurant in central London rather than sitting at home writing this. Don’t feel sorry for me, I chose to stay in. The Christmas month of December is very hard. Extreme partying is allied with extreme levels of work. In my game, they are as…
There ‘s a top 10 list of New Year’s resolutions that are most commonly made and then most commonly broken. Lose weight, get fit, stop smoking (well, never touch hard drugs like tobacco), and spend more time with the family (they have no choice unless they leave…
The trouble with being a mythological supernatural being is that you begin to doubt your own existence. It was all “Marvel this” and “DC that” over kids’ toy choices these past few years. Dads tried to be above that sort of thing, but He knew how thrillingly pleased…
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