MS Patient’s Pick of the Week’s News: Blood Tests, Marijuana, Cameras, and More
Hereās my Pick of the Weekās News, as published in Multiple SclerosisĀ News Today.
Blood Test Seen to Distinguish MS from Other Neurological Conditions
A faster way to tell the difference between neurological diseases could mean earlier access to treatment for MS patients.
Researchers atĀ Michigan State UniversityĀ suggest that a blood test can distinguish patients with multiple sclerosis (MS) from people with other neurological conditions, according to a recent study published inĀ EBioMedicine.
ResultsĀ from the study,Ā āAn In Vitro Diagnostic for Multiple Sclerosis Based on C-peptide Binding to Erythrocytes,āĀ need to be confirmed in larger and more in-depth studies, but so far provides a promising candidate for an easy, inexpensive and fast way to make an initial MS diagnosis.
Because diagnosing MS can be a slow and uncertain procedure, researchers have long been on the lookout for an objective lab-based method. Currently, most people have to wait between six months and two years before a diagnosis is set, but because available therapies are only able to slow diseaseĀ progression, it is crucial to start treatment as soon as possible.
Letās hope this first study can be confirmed in a larger one and then be brought into use quickly.
New Pre-HSCT Treatment May Make Stem Cell Transplants a Safer Option for MS Patients
Research looks good in theory but, even if the results in mice can be replicated in humans, development and approval of this method is a long way off.
Scientists atĀ Stanford University School of MedicineĀ have developed a method for stem cell transplants that may doĀ away with the need for prior systematic treatment with chemotherapy or radiotherapy. If successful, stem cell transplants could be an option for patients with multiple sclerosis (MS), an option nowĀ limited by the risk of severe toxicity triggered by the chemotherapy.
The study,Ā āHematopoietic stem cell transplantation in immunocompetent hosts without radiation or chemotherapy,āĀ was the cover story of the latest issue of the journalĀ Science Translational Medicine. The method has been successfully tested in mice, but if proven safe and effective in humans, it could truly revolutionize MS treatment, as well as the treatment of a hostĀ of other conditions.
āIf it works in humans like it did in mice, we would expect that the risk of death from blood stem cell transplant would drop from 20 percent to effectively zero,ā the studyās senior author, Dr. Judith Shizuru, MD, PhD, and a professor of medicine at Stanford, said in aĀ news release.
In my opinion, anyone considering having HSCT should not be tempted to wait for this to be finalized. The earlier anyone has HSCT the better the likelihood of success, so donāt delay.
Earth Life Sciences Acquiring Maker of Medicinal Cannabis Oil Treatments for MS
This is something I never thought Iād see, marijuana being treated like any other commodity.
Earth Life SciencesĀ (ELS), aĀ venture capital and management firm based in Quebec, announced that it is partnering with a cannabis oil-based nutraceutical company, with an agreement in place to acquire that company and establish a new division. The resulting entity will beĀ an organic medical marijuana oils (CBD) producer that willĀ develop products forĀ patients who wish to use cannabis to manage chronic pain in a variety of diseases, including multiple sclerosis.
ELS notes in aĀ press releaseĀ that research suggestsĀ cannabis can help manage chronic pain, especially the nerve-related pain that often plagues persons with MS and other neurological disorders, and that cannabis oil has therapeutic properties not replicated by other available medications.
A guideline issued in 2014 by the American Academy of Neurology (AAN), titled āSummary of evidence-based guideline: Complementary and alternative medicine in MS,ā concluded that, based on evidence regarding marijuana and its derivatives, oral cannabis extract and synthetic THC are likely to beĀ effective in reducing patient-reportedĀ spasticity and pain, but not MS-related tremor or spasticity measured by tests administered by physicians. Its most commonly reported side effects being dizziness, drowsiness, difficulty concentrating, and memory disturbance.
It seems medical marijuana can give some benefits in terms of reducing pain and spasticity but do we really want the listed side effects? Arenāt we dizzy and drowsy enough already? Do we need to have more difficulty concentrating and more memory disturbance? Some of us have enough of those things already.
Kinectās 3-D Gaming Camera Can Help Assess Gait Problems in MS Patients, Study Reports
A computer game camera can help evaluate walking gait difficulties. Whatever next?
According to new research out of McGill University in Montreal, Microsoft Kinect, a 3-D depth and motion sensing input device for use with the companyās Xbox 360 and Xbox One video game consoles and Windows PCs, could be a cheap, effective, and easy-to-use tool to evaluate walking gait difficulties in people with multiple sclerosis (MS).
GholamiFA research team led by McGill postdoctoral fellow Farnood Gholami, and supervised by Jozsef Kovecses of the Mechanical Engineering department and Centre for Intelligent Machines, Kovecsescollaborated with Daria Trojan, a physiatrist with the McGill Department of Neurology and Neurosurgery, in determining whether the Kinect could accurately and consistently detect differences in walking gait in MS patients compared to healthy persons.
A paper reporting the research findings, āA Microsoft Kinect-Based Point-of-Care Gait Assessment Framework for Multiple Sclerosis Patientsā, was published in the July 2016 edition of the IEEE Journal of Biomedical and Health Informatics. Based on these findings, the investigators established the potential feasibility of using a Microsoft Kinect camera in a clinical setting.
I always thought that there must be a better use of computer games than keeping kids quiet ā although that is good in itself.
MSAA Opens New Online Community Forum for MS Patients, Caregivers
New online forum gives patients, their families, and caregivers a helping hand.
TheĀ Multiple Sclerosis Association of America (MSAA)Ā recently announced the official launch ofĀ My MSAA Community, a free online communityĀ forumĀ supporting people with multiple sclerosis (MS)Ā and their caregivers and familyĀ members, and offering a way for patients to connect with others facingĀ the same challenges.
MSAA is a nonprofit organization and a resource center for the MS community with a range of programs and services provided at no charge, including a help line staffed byĀ trained professionals, publicationsĀ likeĀ the biannual magazineĀ The Motivator, award-winning educational videos, and research updates. The MSAA also runsĀ theĀ S.E.A.R.C.H. program to keep patients informed about treatment choices, and offers patients and caregivers a dedicated phone app, calledĀ My MS Manager,Ā to better track changing symptoms, medication, and related information.
My MSAA Community is hosted by HealthUnlocked, a health-specific social network used by more than 40 million people every year.
This online forum looks like a great development for people who cannot join a support group local to them.
Note: Multiple SclerosisĀ News TodayĀ is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.Ā The opinions expressed in this columnĀ are not those ofĀ Multiple SclerosisĀ News Today, or itsĀ parent company, Bionews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis.
Comments
Ruby
As with many of you reading this comment you will know of someone with MS or are one going through the many symptoms of MS. My husband has MS. Together with his knowledge and research we are searching for that something which will halt the progression. We are sure we are not the only ones. He has not had any medication since being diagnosed in 2007. He has over recent yrs been showing signs of the MS really challenging him. We are reading and researching about Stem Cell therapy. If you have had the procedure whether with chemotherapy or not we would be grateful for any information. Anyone been to Switzerland? Serbia? What about in the Uk. Anyone who has an amazing consultant. Any info would be appreciated. Facebook etc has views but like minded people on this site may inform us otherwise. Look forward to your views.
Hi Ruby, although I write for MS News Today, these opinions are my own. I was diagnosed in 2002 and, like your husband, have never received any medication. I have decided to see if I am suitable to have HSCT and am going to Moscow in October to be assessed. I will be writing about my experiences in MS News Today. I have no information about Switzerland or Serbia. I would say that the HSCT groups on Facebook have a great deal of information and I would urge you to join one or more to gain the benefit of their experiences.
Inge Freeth
Good Luck Ian in Moscow!
How did you get in? had your pre-research in Spain?Is it covered by insurance ?or you had to sell your house or had a collect 'save Ian'?
greetings inge Freeth.
Hi Inge, I am going to Moscow in October for four days of clinical assessmnts, to see if I am a suitable candidate for HSCT. If I am, then the fundraising will begin. judt a 'small' matter of $50,000.
Phil Longford
Hi Ian. The 'small' matter of $50,000 is why I am suspicious, (maybe ANYONE with $50,000 would be a 'suitable' candidate?) But will be very interested to hear your reports. Hopefully it will be beneficial, but I am hanging on until the results are proven. Hopefully it will then become available on the NHS? Just taken delivery of pomegranate tablets, and hemp seed oil. No harm in trying!