Like Iggy Says, ‘All Aboard for Funtime’

John Connor avatar

by John Connor |

Share this article:

Share article via email
good news, indwelling urinary catheter, UTIs, hospital stay, steroids, COVID-19 vaccine, UTI, side effects, sex, Great Escape, fluoxetine, santa claus, thanksgiving, forewarned, carers, urologist, adapt, beast, poo, rage, show, THC, off

I’ve been a moderator at MS News Today Forums for a while. One of my jobs, besides rejecting the interminable bots that try to become members, is to promote interaction.

This is the hard part. The bots are amazingly easy — they are so far away from getting near the Turing Test that even the Connor Test is too much for them!

A year and a half ago, I initiated a “Let’s Have Some Fun!” category in the forums. We can’t escape the limitations MS imposes on our bodies, but many of us can escape with our minds. Apologies to those from whom MS has taken even that away.

Reading can be difficult, and MS recently screwed with my vision. So, I’ve gone back to using my five-year-old glasses! For some, watching TV is difficult, too. But there’s radio, and now, the joy of podcasts. Even I was involved in one of those during the last gasps of my showbiz career.

When I first had MS, in an exercise group I met an artist who’d entirely lost the use of her painting hand and arm. So, she taught herself to paint with her other hand. We humans can be quite indomitable.

That which can’t be named also has forced many of us into continuous shelter, a self-imposed form of house arrest. I’m not sorry that this has conveniently coincided with the explosion of streaming services. Recently, Apple TV+ and Disney+ launched with even the same math sign! This adds to Netflix and Amazon Prime. There’s a plethora of others, even here in the U.K. It’s a global market for a global village.

As a kid in the ’60s, I started reading Marvel comics. There must have been many others like me, or my local news agents — which were a kid’s mecca rammed full of comics and sweets — wouldn’t have kept stocking them. But none of my friends ever did.

The comics must have been imported because of the jealousy I felt from all the ads in the back of each issue. The ads announced all sorts of Saturday morning Marvel cartoons on TV in the U.S. We had nothing like that back then in the U.K., so we trooped off to the cinema every Saturday morning to watch old black-and-white Flash Gordon serials. For us, those were still exotic! Man, I was envious.

Today, I confess to currently having all of the main streamers; I used to work in TV, and now I bathe in its rays. Hey, I no longer harbor envy.

So far, there’s only been one reply from an MS forum member about rediscovering his joy for whittling, which is something I found beyond me, even when I was able-bodied. But it’s exactly the sort of thing I wanted to celebrate.

Why am I spotlighting my abject failure in my column? Well, I still think it’s a valid idea to talk about what we do for fun. And I’d dearly like you to jot down, in the comments below, something you enjoy.

Currently, I’m hooked by the star-strewn Apple TV+ offering “The Morning Show,” which has rightfully garnered eight Emmy nominations. Jennifer Aniston of “Friends” fame is a revelation!

I’d also like your permission to transpose them to the MS forums in the hope that it might stir something up.

Dealing with a disease like MS is self-absorbing. I’m more than aware of continually bringing up its minutiae. I used to do this with showbiz — hey-ho! At lease Jane, my wife and now carer, finds my MS more tolerable.

Jane: “It’s understandable. If you keep repeating yourself, I might look like I’m listening, but I just go to my happy place.”

Confused? Moi?

Regarding last week’s column and the travails of my wheelchair, it was the controller, not the battery, that was causing problems. After eight uncomfortably limited days, I’m back, baby!


Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, BioNews, and are intended to spark discussion about issues pertaining to multiple sclerosis.


Mary Batte avatar

Mary Batte

John Connor, must have missed this. Fun these days is an illusive commodity so maybe that's why low response. I was diagnosed in the early 80's. Did not stop us from RV'ing in almost every state in the union and many of the Canadian provinces. I would tire sometimes and we'd simply hang out for a few days and then back on the road. Did the warmer states in the cooler months. All can be adjusted.

Then I discovered beautiful fabric and the art of quilting. Which is so much fun for me.

Now, anytime we can be outside in nature is absolutely the best whether it be on our deck or by a river. Don't move like we use to but being outdoors is still the best. We are now looking for a home with single floor. What's next? I want a garden.
I'm like John, what are you doing for fun right now and what are you looking forward to? What's next??

John Connor avatar

John Connor

Ta Mary, for fulsome reply.
Yes, watch endless TV. 'Schitt's Creek' which have raved about in the 'Fun' Forum just swept the Emmy's' There's a scintilla of the 'critic' left in me....
Read when my eyes let me.
Plans - go out for a picnic!!!
Not just constrained by u know what but also my butt!!
Maybe I'll write something... doubt it.
My son turns out to be a better writer than me. He discovered that all on his ownsome.
Also taught himself to play guitar.
Jealous? Moi?

Mary Batte avatar

Mary Batte

John, what are bots?

John Connor avatar

John Connor

Bots r computer generated programs that seek to infest all sorts of sites. Loads on FB/Twitter. Pretty soon we'll all leave so they can just chat!

M. Yokum avatar

M. Yokum

Here are some of the things I do: play Spider on the computer, work jigsaw puzzles on the computer, write an essay/rumination every month, garden, bake, make yogurt and jam, mow grass. Here's what I try to do (but no longer do very well) embroider, sew, play piano, draw. Here's what I never do: clean house, wash windows (boring). Watching TV/movies gives me a headache. Always has.

Here's another thing I do: read what John Connor writes.

John Connor avatar

John Connor

Ooh, can I give stars for comments?
⭐️ ⭐️ ⭐️ ⭐️ ⭐️

Peter Lambrechts avatar

Peter Lambrechts

Ms or nor, i still have a lot of fun with Iggy ( and the Stooges) , the music gives Energy and joy
Hope you all van still have some fun

Peter from Holland

John Connor avatar

John Connor

Saw him twice in the '70s. Vague memory circa '76 supported by Blondie!!!

Cheryl avatar


This was cool. A Quasi-news (aren’t they all? ) In New York City a normal everyday guy wondered about all the manic chaotic attention spent on celebrities. Having an ah-ha moment he gathered friends to be body guards, groupies, camera man and reporter. So Mr average hit the street and they created a small sensation, just by calling attention to themselves. Girls were screaming “we LOVE him”, one guy said he thought Mr normals last film was awesome.

This twenty minute scenario was so fun to watch and shows how gullible we are. And why are we so nuts about celebrities anyway?

Ok, that’s my little silly story. I can’t write on about what I do for fun, but clip was fun for me, to watch.


Leave a comment

Fill in the required fields to post. Your email address will not be published.

Dancing Doodle

Did you know some of the news and columns on Multiple Sclerosis News Today are recorded and available for listening on SoundCloud? These audio news stories give our readers an alternative option for accessing information important for them.

Listen Here