Multiple sclerosis support groups and resources

Last updated Jan. 23, 2024, by Susie Strachan
Fact-checked by Patricia Silva, PhD

 

When you have a neurodegenerative disorder like multiple sclerosis (MS) — which is caused by the immune system attacking the myelin sheath in nerve fibers — finding others who understand what you’re going through can be life-changing.

By becoming part of an MS community, you meet people who can support you, share their knowledge and resources, and give you insight into what the future may look like.

Support groups

Support groups for people living with MS and their caregivers can provide social and emotional support, as well as be a good resource for information and advice.

Healthcare providers are often the best way to find a local MS support group, although there are also national and international MS associations and organizations that have support groups.

Your local MS treatment center may run its own support groups or direct you to other places with groups such as hospitals or community centers. You can also try asking other people who are living with MS and their caregivers for recommendations.

To learn more about support groups in the U.S., contact these national organizations:

• National Multiple Sclerosis Society
• Multiple Sclerosis Foundation

The Multiple Sclerosis International Federation is a global network of international organizations — including Africa, Asia, Europe, and North and South America. It has a search tool to help locate support groups near you.

Online support

Start your search for online support by exploring online platforms and forums dedicated to MS.

Multiple Sclerosis News Today has online forums where you can connect with other people, share your experiences, and ask questions. It also hosts a Facebook group and has columns by people with MS and their caregivers.

To find support groups on social media platforms such as Facebook or X (formerly Twitter), search for MS-related groups or hashtags.

Information for people with MS

Multiple Sclerosis News Today is a reliable source for the latest news and information about treatments and clinical trials.

Here, you can find useful information such as:

• a guide for the newly diagnosed, along with MS Head Start videos
• a downloadable doctor discussion guide
• how to set up your MS care team
• expert voices on everything from exercise to managing MS fatigue
• resources on topics like MS and mental health
• an MS podcast with guests involved with the multiple sclerosis community.

Some other resources for people living in the U.S. who have a disabling condition include:

• Disability.gov
• Centers for Independent Living
• Patient Advocate Foundation.

Financial resources

A 2022 review study estimated that for each of the 1 million adults living with MS in the U.S., the economic burden is an average annual cost of $65,612 with disease-modifying therapies responsible for more than $35,000 per person.

Take the time to figure out your financial situation. MS symptoms, including fatigue and mobility issues, can affect your ability to work, potentially leading to a decrease in income at some point. You may also face higher insurance premiums, need to make modifications to your home, or require professional caregivers.

Along with getting advice from a financial planner, you may want to look into organizations with financial resources for MS patients in the U.S., including the following:

• The Multiple Sclerosis Association of America has financial assistance for MRIs.
• The Social Security Administration offers Social Security Disability benefits.
• The Department of Veterans Affairs (VA) operates MS Centers of Excellence where veterans can learn about financial assistance programs.

While the National Multiple Sclerosis Society does not offer direct financial assistance, they may be able to provide referrals to organizations and grant programs that help with home modifications, mobility equipment, and other needs.

Educational support

When educating yourself about MS, it’s essential to rely on reputable sources, consult your healthcare professionals, and take advantage of organized events.

Some ideas for enriching your understanding of multiple sclerosis include:

• World MS Day — an opportunity for advocacy, education, and community engagement —  annually on May 30.
• international symposiums like the Americas Committee for Treatment and Research in Multiple Sclerosis Forum and its European counterpart.
• webinars, video blogs, and podcasts dedicated to MS, which can be found by exploring YouTube, SoundCloud, and other online platforms.

Medical information

Your MS care team is an invaluable resource for medical information. Do not hesitate to ask them questions about navigating life with MS.

Always consult them about your MS treatment options and if your symptoms change or worsen.

It is important to first be in touch with a healthcare professional, as online content is not a substitute for professional medical information.

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Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.