Someone bumped into the footrest of my wheelchair at a crowded venue recently. They immediately stopped and apologized — which doesn’t always happen — and I quickly explained that they’d hit only a part of my chair and not me. This response prompted a pause, a look of concern, and…
communication
After I was diagnosed with relapsing-remitting multiple sclerosis (MS) in 2016, I thought I’d never find a partner who understood the complexities and nuances of my condition. For years, I wondered, “If I can barely comprehend the knowns and unknowns of living with MS, how could anyone else?” Oh…
I recall one of my college classes from years ago, when the professor covered a subject that was rather difficult to understand. At the end, she paused, looked around the room, and asked if we all understood. We must have had blank expressions on our faces or our heads tilted…
I hate needles. Being told I’d need to do injections was the worst news ever, second only to my diagnosis of multiple sclerosis. Sitting in the neurologist’s office with my husband, Paul, was terrifying. I was 22 and newly diagnosed with…
Using a mix of broad diagnostic terms and more disease-specific ones may help physicians and patients to better communicate symptoms of autoimmune disorders like multiple sclerosis (MS) that are not always obvious or easy to explain, a study reported. The study, “Using autoimmune strategically: Diagnostic lumping, splitting,…
After having multiple sclerosis for six years, I’ve decided there are five things “healthy” people might not understand about the disease, and it really drives me crazy. So, I’ve compiled some common misconceptions and advice to help spread awareness among those who aren’t familiar…
Relationships between multiple sclerosis patients and their intimate partners were enhanced when the couple worked together to make lifestyle changes, and to develop skills to improve communication, a study shows.
In the research world, references to breaking down silos abound, and we’re not talking about those found on the farm. These figurative silos are where information is contained and not shared outside of a particular area. Researchers work within their own organization, rarely sharing their work with others doing…
A national survey in the U.S. revealed that 98% of women newly diagnosed with multiple sclerosis struggle to discuss important personal concerns with their healthcare team.
I have been under the care of physicians for as long as I can remember. Cardiologists, primary and several others. In the past few years, added to this list is a neurologist. I must say that I have been fortunate. I am ministered to by caring, esteemed, inspiring and…
A study published in the BMC Neurology journal emphasized that clear and regular communication between physicians and patients with multiple sclerosis (MS) is essential for patient satisfaction with a given treatment, which could result in therapy persistence. Uwe Zettl and colleagues conducted the study, “Comparative evaluation of patients’…
New research from England indicates that healthcare providers do not communicate enough with their patients about the possible outcomes for their multiple sclerosis (MS). The study, “How Do People with Multiple Sclerosis Experience Prognostic Uncertainty and Prognosis Communication? A Qualitative Study,“ appeared in the journal PLoS One.
One of the highlights at the “Comprehensive Care in MS and Symptom Management” session of the Consortium of Multiple Sclerosis Centers (CMSC) 2016 Annual Meeting, was an attempt to address the exclusion of patients with multiple sclerosis (MS) from the design and delivery of healthcare aimed at this…
The holidays can be stressful on everyone, and especially on those with multiple sclerosis (MS). A health specialist is offering these eight suggestions to MS patients and their families as a way to enjoy this season, and to keep it as free as possible of disease flares or symptom worsening. Increased demands on daily routines, travel,…