Anne Rosales is a mother of three grown children, grandmother, and community volunteer. She was diagnosed with multiple sclerosis (MS) in her mid-50s. She holds a Master of Business Administration from Stanford University and is a certified aging-in-place specialist. Rosales blogs about midlife health and wellness at…
Daily living
Memorial Day, the unofficial start of summer vacation in the U.S., is fast approaching. It’s almost time for some summer beach fun — if we can get there. Beaches can be difficult, if not impossible, to access for many people with multiple sclerosis (MS). But times seem to be…
The artificial intelligence (AI)-driven platform BeCare Link has introduced a mobile application to help multiple sclerosis (MS) patients be more active in their care and ensure clinicians have the data to treat them. BeCare MS Link, the platform’s first subspecialty product, is touted as the most comprehensive…
So I’m back home. Four months’ worth of bureaucracy lay in front of me. In truth, quite a wodge had grown before I went into the hospital. Hey, I hadn’t been well in the months leading up to my hospitalization late last year. Thankfully Saint Jane — my…
The online platform DrTalks is offering a free virtual summit this summer aimed at helping multiple sclerosis (MS) patients and their caregivers better manage daily life with the progressive neurodegenerative condition. The event is slated for July 5-11, and has more than four dozen speakers lined up. Talks…
Ceilings. Oh yeah, I’ve become quite the expert on ceilings. If you spend much of your life prostrate, it’s hard not to. The very first column I wrote for Multiple Sclerosis News Today opened with this very topic. As it was an unsolicited spec piece, I was pleasantly…
Oops! I took a turn too fast in the parking lot of my condo the other morning and tipped to the left. And with that, my mobility scooter and I headed for a fall. Do you know the feeling when something bad is about to happen and there’s nothing…
Owen Mumford‘s Aidaptus auto-injector, which lets a wide range of under-the-skin medications to be administered, has won a Red Dot Award in the Product Design 2023 category. Launched in 2021, Aidaptus is a disposable auto-injector whose design fits multiple-sized prefilled glass syringes without changing parts. This could provide…
I’m pretty good at doing what I’m told. You probably think that’s because I was in the Army for 22 years. You might even think it’s because of all the medical authority figures that have come with nine years of multiple sclerosis (MS). Of course, they both factor in,…
It transpired that I’d gone and fallen at the worst possible time, landing myself in the midst of a major news story. I’d been aware that what had toppled me was most probably my persistent urinary tract infections (UTIs). They were different and numerous, and acted like allied combatants…
The kids had their spring break last week, so we loaded up and drove to Universal Studios in Orlando, Florida. I promise this column won’t be a review of the theme park and its accessibility (which was great, by the way). It won’t offer tips about traveling with…
Both people with multiple sclerosis (MS) and their nurses prefer the Sensoready Pen for administering Kesimpta (ofatumumab) — an approved MS treatment that’s injected subcutaneously, or under the skin — mostly because it’s easier to use than other available devices, a survey study found. With this pen “patients…
If you haven’t read last week’s column (ah, another discerning nonreader), all you need to know is that I’m in a pain sandwich very much of my own making. And this was an improvement! I’d rather be turned into a hefty snack by a Molift Raiser and a…
Many people with multiple sclerosis (MS) have experienced urinary tract infections (UTIs) at some point. It’s a common problem with MS and can be caused by a number of things, such as the inability to fully empty the bladder or the need to self-catheterize. Symptoms can include urinary…
Photo courtesy of Suni Conway Day 31 of 31 This is Suni Conway’s story: I spent seven years battling strange and unexplainable symptoms with little support and even less hope that things would get better. When asking for help, I was doubted and made to feel just as…
Photo courtesy of Kellie Alderton Day 30 of 31 This is Kellie Alderton‘s story: I was 17 years old in 1988 when my body just stopped working. I had played softball for over a decade, but at my first practice that season I missed an easy fly…
Photo courtesy of Samantha Zarek Day 29 of 31 This is Samantha Zarek’s story: July 26, 2006 is a date I will always remember: That was the onset of my symptoms. My mom had emergency surgery that morning and when I told her that I saw two of…
Photo courtesy of Lucinda Howard Day 28 of 31 This is Lucinda Howard’s story: I was in the first few months of my first “adult” job when I suddenly felt numbness and tingling on my skin from my ribs down to my feet and in my hands. I went…
After trying countless medications, Lacie Granstrom found some relief through diet, exercise, and letting go of “toxic relationships.” (Courtesy of Lacie Granstrom) Day 27 of 31 This is Lacie Granstrom‘s story: In January 2016, I was sitting on the floor playing with my…
Photo courtesy of Mohammed Al-enbaree Day 26 of 31 This is Mohammed Al-enbaree’s story: I was diagnosed with multiple sclerosis (MS) at the age of 20 while I was in medical school. During the early phases, I was very busy and so lucky to have managed…
Boarding an aircraft before others is a small benefit to being a disabled flyer. For years, giving me a small start to get down the jetway ahead of even the most frequent of frequent flyers has given me time to get off the little scooter I use due to my…
Even if I resolved to improve my cardiovascular health by taking the stairs more often, I can’t. Mobility problems brought on by my primary progressive multiple sclerosis force me to use a wheelchair. Using a wheelchair, in turn, means that stairs and I are natural enemies (as are curbs and…
Photo courtesy of Marti Hines Day 23 of 31 This is Marti Hines’ story: I have been living with MS for 4½ years now and a lot of days it doesn’t seem to get any easier. My grief over my past life hits in big…
The U.S. Equal Employment Opportunity Commission has approved a class settlement overhauling a decades-old medical clearance system that led to illegal discrimination in the U.S. Foreign Service against people with mental health conditions or other disabilities, such as multiple sclerosis (MS). The class settlement, signed in December,…
Jessica Dubey, right, is with her partner, Tom. (Courtesy of Jessica Dubey) Day 22 of 31 This is Jessica Dubey‘s story: Multiple sclerosis is unpredictable, You never quite know what to expect or how you will feel. Planning a weekend, a holiday, or even just…
Photo courtesy of Shane Nicolich Day 21 of 31 This is Shane Nicolich’s story: I was on my first multiple sclerosis (MS) treatment for six years but experienced bad side effects. That sucked, since I’m a dishwasher at a busy restaurant and am on my feet all day.
Photo courtesy of Angie Gensler Day 20 of 31 This is Angie Gensler’s story: As a mom, wife, and business owner, I have always prided myself on juggling my crazy life. I was diagnosed with multiple sclerosis (MS) 18 years ago on Christmas Eve after suffering from blurred…
Photo courtesy of Ashley Ratcliff Day 19 of 31 This is Ashley Ratcliff’s story: Fatigued, sore, and tingling, yet determined. Every Friday I fight the urge to surrender to my ever-long list of to-dos and the voice in my head telling me to sit this one out. Instead,…
Photo courtesy of Robert Munns Day 17 of 31 This is Robert Munns’ story: Hello! My name is Robert and I have multiple sclerosis (MS). I was diagnosed in 2008 and spent the next few years not really committing to life. I sometimes say that MS used…
Photo courtesy of Amber Cunningham Day 12 of 31 This is Amber Cunningham‘s story: Hi, I am Amber. I was diagnosed with multiple sclerosis (MS) in April 2019, a day I will never forget. I woke up on my daughter’s birthday and couldn’t see out…