February 25, 2022 Columns by Ed Tobias A Health Insurance Address Change Sends Me Down the Rabbit Hole For my wife, Laura, and I, trying to change our address on our health insurance accounts last week was like following Alice down the rabbit hole. As Lewis Carroll wrote in the classic children’s novel “Alice’s Adventures in Wonderland”: “The rabbit-hole went straight on like a tunnel for some…
September 15, 2021 by BioNews Staff Expert Voices: Financial planning for people with multiple sclerosis In the first installment of our new series, “Expert Voices,” Multiple Sclerosis News Today asked Martin Shenkman, a certified public accountant and lawyer, to answer some of your questions related to financial planning for people with multiple sclerosis (MS).Ā Shenkman is an attorney in private practice in Fort Lee, New…
August 30, 2021 News by Marisa Wexler, MS MS Patients in US Can Lack Key Insurance Coverage, Survey Warns Most people with multiple sclerosis (MS) in the U.S. have health insurance, but many lack important other types of insurance, such as life insurance, short-term disability insurance, and long-term care insurance, according to an online survey of patients. Its findings suggest that MS patients who are likely to be…
August 9, 2021 News by Marisa Wexler, MS US Survey Finds High Rates of Dissatisfaction With Quality of Life, But Satisfaction With Healthcare More than one-third of people with multiple sclerosis (MS) who responded to an online U.S.-based survey are dissatisfied with their quality of life, and more than one in four MS patients are pessimistic about their future, according to the results of the survey, conducted by Multiple Sclerosis News…
April 9, 2021 News by Marta Figueiredo, PhD Overall Cost of DMTs Stable 2018ā2020, Study Finds The overall cost of disease-modifying therapies for multiple sclerosis (MS) in the U.S. remained stable from 2018 to 2020, according to pharmacy and medical claims data from Prime Therapeuticsā insured members. This stabilization derived from a balance between a reduction in Copaxone (glatiramer acetate injection) use due…
May 6, 2019 News by Marisa Wexler, MS #AANAM ā DMTs Primarily Responsible for Rising Healthcare Costs for MS Patients, Study Suggests A trend of rapidly increasing costs for disease-modifying therapies (DMTs) used to treat multiple sclerosis (MS) appear to be the primary driver behind the overall rise in healthcare costs for people with MS, a study suggests. These data were presentedĀ in a…
November 20, 2018 Columns by Ed Tobias Can’t Afford Health Insurance for Your Family? Who Do You Cut? We all know how expensive health insurance can be. On the social media sites that I browse, I always see stories of people with MS who find themselves in a bind due to the healthcare system in the U.S. Some can’t work because their MS has robbed them of…
July 24, 2018 Columns by Ed Tobias Health Insurers Do Deep Data Dive to Estimate Your Healthcare Costs Every time you post something on social media, pay a bill online, or make an online purchase you leave behind little data footprints. Now, an extensive report by National Public Radio and the nonprofit news organization ProPublica is pulling the curtain back on companies who are…
May 17, 2018 Columns by Jennifer (Jenn) Powell With MS, I Have Learned the Importance of Being My Own Best Advocate Quality healthcare is imperative when living with a disease such as multiple sclerosis. While the operational definition of “quality” varies from person to person, I find it to be contingent on the same variable: the doctor/patient relationship. A relationship between a doctor and a patient is symbiotic. Any healthcare…
March 23, 2018 Columns by Ed Tobias It Shouldn’t Be This Hard to Get Our MS Medications I got a phone call from my MS One to One nurse, Lynn, today. One to One is the patient support service provided by Sanofi Genzyme for patients on the biotech company’s MS disease-modifying therapies (DMTs) Lemtrada (alemtuzumab) and Aubagio (teriflunomide). Lynn called to ensure that all…
July 14, 2017 Columns by Ed Tobias She Has MS, She Voted for Obamacare, and She’s Worried Donna Edwards has multiple sclerosis. Edwards is currently unemployed. But a year ago she had a well-paying job with excellent medical benefits. Edwards was a member of the U.S. House of Representatives. In fact, she represented the congressional district where I once lived. (Courtesy of former…
May 26, 2017 Columns by Ed Tobias Speak Up to Keep the Cost of MS from Costing You More I’ve just been reminded, as someone with multiple sclerosis, how fortunate I am to have good medical insurance. Unlike most other countries, where medical care is a right, in the U.S. that care is a privilege. Here the quality of care and too often the availability of that…
November 14, 2016 News by Patricia Silva, PhD Availability of MS Therapies Provides ‘Peace of Mind’ Value to Society, Study Finds Chronic diseases like multiple sclerosis (MS) not only impact patients, they also inspire fear among healthy people who may be at risk of the disease. In a new study, researchers found that the availability of multiple sclerosis (MS) therapies provides āpeace of mindā value to currently healthy individuals, particularly when…
July 18, 2016 News by Patricia Silva, PhD Access to MS Therapy in US Often Determined by Patients’ Insurance Coverage Individual health insurance coverage largely determinesĀ aĀ multiple sclerosis (MS) patient’s access to disease modifying drugs in the United States, mainly because of the rising costs of newer medications and near-annualĀ changes in insurance policy coverage, usually making such coverage more restrictive, researchers report. Ā These twin problemsĀ oftenĀ leave MSĀ patientsĀ relying on suboptimal therapiesĀ rather than those…