living with MS

Day 15 of 31 This is Angela Griffin’s story: I was with my daughter-in-law when she was first diagnosed with MS. I watched the doctors perform a lumbar puncture. As soon as I saw their faces, I knew what they would be telling her. Those precious few…

Day 14 of 31 This is Dr. Conor Kerley’s story: My name is Conor Kerley. When I was first diagnosed with MS at age 15, my first question was: will I still be able to play sports? I was diagnosed after three major relapses in eight months…

Day 13 of 31 This is Susan Carey’s story: My name is Susan Carey, and I was diagnosed with MS in 2004 at age 14. As you can imagine, it came as a surprise to me and others. Having to go through puberty with a chronic illness…

Day 12 of 31 Dr. Gretchen Hawley is a physical therapist who specializes in treating people with MS. These are her words: There are five principles that, if integrated into your routine, will provide a bigger bang for your buck when it comes to strengthening and improving your mobility.

Researchers in the U.K. are seeking patients who found it difficult to return to work or school after a diagnosis of multiple sclerosis (MS) or COVID-19 to participate in a survey that aims to gather more data on the physical and mental health of individuals with these conditions.

Day 11 of 31 This is Shane Stanley’s story: My name is Shane and I am 29, living with MS since 2011. In the beginning, I experienced mild symptoms until they progressed in 2018. From that time, I have realized that MS is a gift. It has taught me…

Day 10 of 31 This is Trishna Bharadia’s story: I’m Trishna Bharadia, I live in Buckinghamshire in the U.K., and I have MS. I was diagnosed in 2008, age 28, after several years of vague symptoms, like feeling pins and needles, losing the strength in my hands, losing the…

Cheryl Hile and her husband, Brian. Photo courtesy of Michael Moberly Day 9 of 31 This is Cheryl Hile’s story: My husband jokes he knew I was a real runner when I asked him at a 10K, “Is the course accurate?” I was running fast and having…

We often focus on what we don’t have rather than what we do. This doesn’t just apply to our relationships, but to everything: our carers, our careers, our children, our homes, our cars, etc.  I often hear people wishing they had more:  “I wish…

In recognition of National Multiple Sclerosis (MS) Awareness Month — celebrated throughout March — Novartis and iHeartRadio are teaming up on a virtual event to celebrate the resilient spirit of people affected by MS. Called “A Night for MS Awareness,” the event will be streamed on…

Photo courtesy of Heather Plummer-Goodrich Day 8 of 31 This is Heather Plummer-Goodrich’s story: Hello, my name is Heather. I am a nana of six beautiful grandchildren, a wife, and an ultra marathon runner. My mantra is: Never give up. Make adjustments, not excuses. Stay positive. When…

Photo courtesy of Dan Clarke Day 7 of 31 This is Heather Russell-Kay’s story: Hi! My name is Heather and I am an actor, teacher, blogger, and support volunteer. I was diagnosed with MS just over six years ago, and for me, it…

Photo courtesy of Sandra Costello Day 6 of 31 This is Dee DiFatta’s story: Being diagnosed with multiple sclerosis the day before my 22nd birthday was not something I expected or anticipated, but it has truly been a blessing. Navigating MS has taught me to slow down…

Last night, as I was grumpily prowling through a pile of overpriced red and white striped hats looking for one that would fit my fifth grader, I asked myself, Why exactly am I doing this again? I already knew the answer. The next day was Read Across America Day,…

“Ooooops!” Actually, I spit out a shorter, one-syllable word as I took one of the scariest tumbles I’ve had in 40 years of living with MS. But this is a family column. My last scary fall a few years ago happened from a sitting position, and I fell onto…

Note: This story was updated March 8, 2021, to note that tickets for MSAA’s Virtual Art Tour are still available for purchase.  Activities are underway to mark Multiple Sclerosis Awareness Month, set aside each year to call attention to the neurodegenerative disorder estimated to affect almost 1 million U.S.

I am uncomfortable amid ambiguity and unknowns. I find myself searching for rationale when, at times, none exists. I crave clarity yet mostly exist amid the fogginess of MS. I live this way literally and figuratively. My lack of clarity grows with the wait for the COVID-19 vaccine. When I…

Photo courtesy of Anita Alberto Photography. Day 4 of 31 This is Jen DeTracey’s story: It’s been over 10 years since I was diagnosed with MS.  Ironically, on the anniversary, I didn’t think about it. I realized a few days later…

Photo courtesy of Svetlana Didorenko Day 3 of 31 This is Alex Twersky’s story: My name is Alex Twersky, and I have worked with Overcoming MS for more than seven years, applying my marketing and communications experience to advancing our vision.

Photos courtesy of Sophie Brodie Day 2 of 31 This is Sophie Brodie’s story: MS is a label. Sometimes that label means something, but a lot of time it doesn’t. Almost two years ago — when I had lost some vision, some sensation, some balance, some mobility — a…

Recently, I was given the exceptional honor of finding stories for MS News Today‘s upcoming “31 days of MS“ initiative. I loved the challenge, and used it as an opportunity to catch up with friends I’ve met over the years while doing…

Editor’s note: The Multiple Sclerosis News Today news team is providing in-depth and unparalleled coverage of the virtual ACTRIMS Forum 2021, Feb. 25–27. Go here to see all the latest stories from the conference. Despite the overall low frequency of cases, multiple sclerosis (MS) in Latin America poses substantial socioeconomic challenges…

Photos courtesy of Hayley Crowther Day 1 of 31 This is Hayley Crowther’s story: When I look back at the year I got sick, I’d just celebrated my 30th birthday. I was living with my husband and 7-year-old son, had a job I loved and, just four weeks prior…

This is disturbing and, unfortunately, not surprising. More than 50% of people with advanced multiple sclerosis reported they’ve been mistreated by a family member or friend who cares for them, according to the results of a survey published last September by researchers at the University of California, Riverside. Much…

Multiple Sclerosis News Today is excited to announce a new initiative called “31 Days of MS,” in recognition of Multiple Sclerosis Awareness Month in March. We will feature a range of stories from people in the MS community, from patients to caregivers to family members.  The…

People with multiple sclerosis (MS) who smoke tobacco or are not physically active are more likely to experience fatigue that interferes with their daily life, a new study indicates. The findings suggest that physical exercise and quitting smoking could help ease fatigue in people with MS. The study, “…

Tingling fluttered down my spine and into my butt.  “What on earth was that?” I thought. I bent my head forward again, and the same thing happened.  “OK, that’s weird.” I sat on our spare…

Ah, timing. It was early Saturday afternoon on Feb. 13, and my wife, Jane, had just flushed the toilet for me. The doorbell rang — my flowers had arrived. An early romantic gesture. On the morning of Valentine’s Day, Jane countered with hers, a bottle of Laphroaig Quarter Cask…

If you’re having trouble paying for your MS medications, you’re not alone. I regularly see social media posts from people whose insurance has changed or whose insurance company has suddenly dropped a medication from its formulary (the list of meds it will pay for). Or, it has decided that you…

Rare – adjective Not occurring very often; uncommon Unusually good or remarkable On Feb. 28, the world will celebrate international Rare Disease Day. A rare disease is one that affects fewer than 200,000 people in the U.S. Almost 7,000 rare or orphan diseases meet the criteria to be considered…