I’ve met Humpty Dumpty, and he is me. I made that discovery the other night when I had a bad fall. It wasn’t off a wall; it was just off a chair, but it felt like I’d tumbled off Humpty’s high ledge. It shouldn’t have happened. I’ve lived with MS…
mobility
Second in a series. Read part one. I’m actually driving! I really can’t remember the last time I had done so. The car I’d had for years from Motability, a car and scooter program in the U.K. to help the disabled enjoy worry-free motoring (it really works, folks), had…
Going Mobile
In February of last year, I stopped. Walking more than a few steps was suddenly impossible. I’d fought, taken every medication and supplement possible, but I’d lost. Maybe positive thinking and mindfulness would have helped, but for me, that was a step too far! Research, organization, and…
When I was younger, I assumed that I wouldn’t require a mobility device until much later in my life. I wasn’t prepared for needing to use a cane or a walker in my 50s. My 2010 multiple sclerosis (MS) diagnosis rearranged my life in many ways. And having…
Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum topic “Chair yoga” from April 14, 2018.
Minority Report
In the earlier days of my MS, I could still walk a bit. It was not enough to risk the maze of an airport, so I traveled sensibly in a wheelchair and preregistered as a disabled passenger. My then-teenage son reduced the boredom by placing me facing into suitable…
Researchers at Kent and Canterbury Hospital, U.K., are recruiting 20 patients with multiple sclerosis (MS) who can walk at least eight meters with a walking aid to test the effectiveness of a five-week exercise program using assistive robotic technology. A patient completes balance and strengthening exercises using the…
Need to Know: What Is Gait?
Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum topic “How Do You Manage MS-Related Balance Issues?” from…
People with multiple sclerosis may be twice as likely to develop deep-vein blood clots, a condition known as venous thromboembolism, than healthy people do, a study reports. But data linking the two is limited, and its researchers say further work is needed to understand if MS is directly related to…
The Hospital Trilogy
If MS was just about MS, it wouldn’t be easy, but it would be a lot easier. It’s different for all of us. For me, MS means ambulation is practically impossible. I could manage a few yards, but the risk of falling and spending the day as an upside-down beetle…
“Oh no, not again.” My mind races and time slows as I crumble to the floor. Every downward movement is magnified, and so too is the pain of my twisted left foot and leg. They have become the resting place for my slumping body. My fuzzy and confused mind…
Naboso Technology has expanded its product offerings with new insoles and training mats specifically designed to stimulate the nervous system through the skin on the bottom of the feet. The products were developed to help improve balance, posture, movement and restore motor function, as part of a neurorehabilitation strategy…
Do What You Can
One of the hardest things I’ve had to accept with MS is the necessity of asking for help. Pride and self-reliance dissipate remarkably quickly when you find yourself splayed on the floor and you no longer have the capacity to get up. In extremis, I then ask for help.
WeHealth, PathMaker Collaborating to Develop MyoRegulator as Noninvasive Treatment for Spasticity I’m one of the many people with multiple sclerosis (MS) for whom spasticity is a significant problem. This is a nonmedicinal approach to dealing with it. I hope it doesn’t take too long to make this…
Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum topic “Leg spasticity: How do you manage it?“, from April 30, 2018. What…
Five finalists remain in the running for the $1 million prize being offered in the Mobility Unlimited Challenge, a global competition to promote the development of innovative solutions for personal mobility devices. A panel of expert judges selected the finalists from among 80 applications submitted by teams from 28 countries.
Treatment with Ampyra (dalfampridine) for 24 weeks leads to sustained and clinically meaningful improvements in walking ability as reported by multiple sclerosis (MS) patients with gait difficulties, according to a study analyzing results from a Phase 3 trial. The study, “Assessment of Clinically Meaningful Improvements in Self-Reported…
Lipoic Acid Supplements May Help to Delay Decline in Walking Speed in SPMS Patients, Study Says
Lipoic acid (LA), an over-the-counter antioxidant supplement, helps to mildly delay a decline in walking speed in secondary progressive multiple sclerosis (SPMS) patients, particularly those with lesser disability, analysis of a small, two-year clinical study reports. No improvements were seen in balance among…
MS-specific Lineage of Oligodendrocytes May Provide New Hints on MS Development Our immune system, according to this study, may not be the only thing playing a role in the development of our MS. The same cells that produce the myelin that coats our nerves may also be…
“The reason you can’t keep your shorts up,” the orthopedist said, “is because you don’t have enough butt anymore.” It was my first visit with this doctor, and I wasn’t quite sure what to expect. While waiting in a small, wood-paneled anteroom next…
Motor Imagery Set to Musical and Verbal Cues Helps Patients with Walking and Fatigue, Study Says
Mentally rehearsing an ease of walking to rhythmic cues — especially musical and verbal — improves walking speed and distance, and lessens feelings of fatigue in people with multiple sclerosis (MS), a study reports. The study, “Effects and mechanisms of differently…
I’m writing again about someone with MS who was blocked from a handicapped parking spot by someone who isn’t handicapped. I know, it happens all the time. But this time was a little different. The spot was blocked by a television news crew. And that struck a nerve…
Exercise Program Based on Ballet Improves Motor Control and Balance in MS Patients, Study Reports
A non-traditional exercise program that incorporates movements used in ballet was found to improve motor control and balance in women with multiple sclerosis, leading its researchers to recommend dance movements be part of such interventions for MS patients. The study, “Targeted ballet program mitigates ataxia and improves…
“You’ve had a haircut — very smart!” was the greeting at work. Yes, but it was in no way a simple thing. The logistics involved were really that: It took the small army of my family to complete the mission. Until my last relapse six months ago, I could…
PRIMERS Framework Aims to Better Understand How Exercise Helps Movement and Cognition in MS Patients
A new conceptual framework, called PRIMERS, has been proposed as a way of better understanding how physical exercise works to improve cognition and mobility in people with multiple sclerosis, and using what’s learned to create new types of rehabilitation therapy for MS patients. PRIMERS, conceived by a team led by researchers the…
Flying isn’t what it used to be, as everyone who’s taken a flight in the past 15 years or so knows. Flyers with disabilities can have a particularly challenging time dealing with airports, airlines, and aircraft. Airports are crowded and stretch forever. Airplanes are crowded, their seats are small,…
A Black Mark for the Black Cab
Sorry, this story is definitely parochial and about being disabled, rather than narrowly focused on having MS. It also turns out to be somewhat celebratory — albeit starting from a criticism. Before I get to that, a bit of history. The black cab is an international symbol for London like…
Is getting from home to a healthcare appointment a pain in the butt for you? Do you have to search for someone to take you? Do you haul yourself into your car and hope that you can find a nearby parking spot? Is public transportation impossible to find where…
We all know how difficult it can be to find an accessible parking spot — one that allows us to park and get from our car to where we’re going with a minimum number of steps. There aren’t many of these spots in most parking lots, and sometimes the…
Third in a series. Read parts one and two. In March 2018, I began a personal research project — quest if you will — to assess how functional electrical stimulation (FES) devices might help me deal with the foot drop in my…