Jamie A. Hughes was diagnosed with MS in 2004 at the age of 25. But she’s so much more than those two letters. A wife, adoptive mother, daughter, sister, friend, teacher, and writer/editor, she lives life the only way she knows how — one day at a time. An Arkansan by birth and Floridian by choice, she now lives in the Atlanta, Georgia area. You can read more of her writing at tousledapostle.com and follow her on Twitter @tousledapostle.
I have a co-worker who can meet someone and 10 minutes later know their life’s story. Heck, she even bonded with a woman who rear-ended her in traffic the ... Read more
I don’t normally go in for trends. For example, I don’t own a single pair of skinny jeans. I’ve never tried a Unicorn Frappuccino. I’m not on Instagram or ... Read more
Like millions of other fans, I happily plunked down $13 to launch “Wonder Woman” into blockbuster status on its opening weekend. In fact, I was so excited that I ... Read more
Multiple sclerosis has a way of messing with one’s head. Whether it’s emotional or psychiatric disorders, fatigue, brain fog, or physical problems, there’s a lot to wrestle with. And ... Read more
Pull up a chair, kiddos, and I’ll tell you a sad story. Because we’re both musicians, my husband and I love going to concerts together. We’re on a budget, ... Read more
Like one third of America, I’m a cat lover. I’ve had kitties in my house since I was a child, often in sets. Currently, I’m the proud parent of ... Read more
Last week, I celebrated by 39th birthday. Yes, 39. That’s one year shy of the big 4-0. The last year of my 30s. If life was a rollercoaster ride, ... Read more
T.S. Eliot’s opens his masterwork The Waste Land with four stunning lines of verse: April is the cruellest month, breeding Lilacs out of the dead land, mixing Memory and ... Read more
Thirteen years ago, a neurologist sat on the edge of my hospital bed and told me, “You have MS. It’s not the end of the world. There’s more on ... Read more
March is Multiple Sclerosis Awareness Month. That means we need to make the most of these four weeks to raise some money for research, and raise awareness about the disease ... Read more
When people ask me what I love, I usually respond, “God, my family, and St. Louis Cardinals baseball … in that order.” Other than the Razorbacks, Arkansas (my home ... Read more
Last week, I attended the Association of Writers & Writing Programs (AWP) conference in Washington, D.C. I had the opportunity to meet many fine folks who are hard at ... Read more
Perhaps the most famous MS advocate today isn’t a patient, but the daughter of one. Author J.K. Rowling lost her mother to multiple sclerosis in 1990, something she describes ... Read more
There’s one thing you need to know about my family — we’re weird. We laugh at inopportune times. We can go entire days just speaking to one another in ... Read more
Now that 2016 is thankfully behind us, it’s time to start a new year — fresh, rested, and ready to kick butt and chew bubble gum. That being said, ... Read more
“This first candle in the advent wreath,” I told my kids as I clicked the lighter and set its flame atop the wick, “represents hope. What does that word ... Read more
In Cold Sassy Tree, the classic novel by Olive Ann Burns, Grandpa Blakeslee tells his grandson Will Tweedy that, “Livin’ is like pourin’ water out of a tumbler into ... Read more
You’ve gotta dance like there’s nobody watching, Love like you’ll never be hurt, Sing like there’s nobody listening, And live like it’s heaven on earth. Those lines from William ... Read more
When you have a chronic illness, learning everything you can about it is both a blessing and curse. The part of me that’s a researcher and a digger at ... Read more
As a mother of two boys, I’m blessed with an abundance of dirty socks, Nerf darts, and Legos — all of which end up in the laundry (more or ... Read more
A few weeks ago, I visited my general practitioner for a yearly physical. I was expecting him to harp on my weight, cholesterol, blood pressure — any of the ... Read more
And do you feel scared? I do, but I won’t stop and falter. And if we threw it all away, things can only get better – Howard Jones, ... Read more
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