August 26, 2022 Columns by John Connor Column Saved by the Same Olā Side Effect to an Antibiotic This headline is a bit of a cheat. OK, itās a big cheat. When youāve been writing a column for five years, thereās immense satisfaction when youāve finished it each week. Thereās even more when itās passed through the editing process. Sometimes this can get somewhat tricky. The trouble is…
August 26, 2022 Columns by Ed Tobias Do You Cry and Don’t Know Why? It Might Be PBA I often see posts on social media from people with multiple sclerosis asking if crying for no reason is an MS symptom. It can be. Laughing for no reason can be, too. Both can be severe, persistent, unremitting, and unpredictable. The medical name for this is…
August 25, 2022 Columns by Stephen De Marzo The Difference Between Living and Existing After My PPMS Diagnosis Itās been a year and a half since I was diagnosed with primary progressive multiple sclerosis (PPMS). I still have use of my limbs and am able to walk, albeit shakily, without a walker. My eyesight has not been affected, I drive, and am able to carry on a…
August 23, 2022 Columns by Jamie Hughes Itās OK Not to Be OK: What to Do When You Feel Stuck in a Rut For the last few months, Iāve been mired in something I can only describe as a funk. My job, my family, my faith, my entire life ā no matter what aspect weāre talking about, I felt like I was stuck. I mean like soul-in-a-straitjacket stuck. Honestly, I hadnāt felt anything…
August 22, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: PBA, Pregnancy, Interferon-beta, Pediatric MS Test Early Detection of Pseudobulbar Affect May Help Ease MS Symptom I often see posts on social media from people with MS asking if crying for no reason is an MS symptom, because it happens to them. I didn’t know that apparently, it is. Laughing, too. This report says…
August 19, 2022 Columns by John Connor MS and Sex: Everything You Wanted to Know but Were Never Told to Ask Now, I know the phrase “Iām going to do my own research” has become a catch-all for conspiracy theorists who are out to prove spurious nonsense, merely by finding even more spurious websites they can whirl down like Alice falling through that there looking glass. Proper research costs serious money…
August 19, 2022 Columns by Ed Tobias Morse Code Keeps My MS Mind in Gear I speak Morse code. It’s my second language, and I’m fluent. I’ve been speaking Morse code since I got my ham radio license nearly 63 years ago. (My call letters are KR3E.) At first, I received what was sent at a very slow speed of five words per minute,…
August 18, 2022 Columns by Benjamin Hofmeister My MS Makes Getting Sick With a Viral Infection 10 Times Worse School started last week for our three kids. They got to see friends from the last school year, meet their new teachers, and sit at a new desk in their new classrooms. Per tradition, there was no homework assigned the first week, but they still brought home plenty of papers…
August 17, 2022 Columns by Beth Ullah Overcoming MS Setbacks to Find Abundant Love on a Special Day Last week, we welcomed a wonderful person into our family. My not-so-little brother got married! The wedding was beautiful ā so beautiful that I couldnāt let myself feel it all in the moment. Who wants to hear the loud, ugly crier?! (I did my happy crying loudly in the ladiesā…
August 15, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: COVID-19 Vaccines, Robot Training, Bladder Treatment, Tysabri Anti-CD20 Therapies Help Mount T-cell Response to COVID-19 Vaccines Since the start of the COVID-19 pandemic, there have been concerns that anti-CD20 therapies, such as Ocrevus (ocrelizumab), may interfere with the ability of a person with MS to fight a COVID-19 infection. But this report says that even if…
August 12, 2022 Columns by John Connor Seeing Double, and Iām Not Even Drunk! I only had my glasses for two years, yet reading anything on my phone was now nigh impossible. Still, it did cure my Facebook and Twitter addiction. Yer, yer, Iām old. (Iām 64, you know.) Sure, Iāve written this before ā surely thatās a free pass for us aged folk.
August 12, 2022 Columns by Ed Tobias Dr. Amazon Will See You Now: Online Retail Giant to Acquire Healthcare Services Company Are you ready to buy your healthcare services from the same place you can buy almost everything else under the sun? Amazon hopes you are. Last month, the giant of online sales announced plans to acquire One Medical, a company that operates more than 125 medical offices across…
August 11, 2022 Columns by Stephen De Marzo High Temperatures Make My Brain Become Strangled in Static AM radio is infamous for bad reception, resulting in nothing but static. You can search the dial frequency by frequency, and itās all static. Occasionally you will cross a station, but then the car moves, and the reception is lost again. When I’m overwhelmed with the heat, that’s what…
August 10, 2022 Columns by Beth Ullah How Paw-fect Pets Improve Life With Chronic Illness Having grown up in the countryside, I’ve been around animals my entire life. We always had dogs and cats, and I learned how to ride horses. It was tranquil and storybook. When I left home to take a trip or attend university, I experienced a void only the animals in…
August 8, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: Stem Cell Transplant, Tysabri, Exercise, Zinc Stem Cell Transplant Found to Reduce MS Relapses, Ease Disability This is excellent news for those of us who would like to see stem cell transplant for MS become more available and affordable. These researchers analyzed 50 studies covering a total of 4,831 people with MS, ages 26 to…
August 5, 2022 Columns by Jamie Hughes Discovering What It Takes to Survive in These Troubled Times Unless youāve been living under a rock or are somehow lucky enough to live on your own desert island, youāve probably noticed that things are kinda difficult these days. I mean, COVID-19 is still a thing, and now we have monkeypox to deal with. Everyone seems to be…
August 5, 2022 Columns by John Connor Pesky Leukocytes Dash My Hopes of Joining a Trial of Mavenclad for MS In December 2019, I was stopped in my tracks, or rather wheels, as I was about to have my third infusion of Ocrevus (ocrelizumab), the multiple sclerosis disease-modifying therapy (DMT) that Iād been taking every six months for the past year. My neurologist had decided just a few…
August 5, 2022 Columns by Ed Tobias New Service Takes a Shark-size Bite out of Medication Costs My multiple sclerosis medications cost me a lot, even with good insurance. Yours probably do, too, if you don’t live in a country where the government picks up your drug costs. But now billionaire entrepreneur Mark Cuban is taking a big bite out of the cost of some…
August 4, 2022 Columns by Benjamin Hofmeister How My MS Diagnosis Journey Became My Origin Story If I were a superhero (or a supervillain, for that matter), Iād have an origin story. As it stands, Iām not even a minor hero in real life, and only a mediocre one when appearing in my own stories. Iām just a guy with multiple sclerosis, and all I…
August 3, 2022 Columns by Beth Ullah Sometimes Pushing Boundaries With My MS Management Pays Off My brother is getting married in two weeks, so last weekend, I attended my future sister-in-law’s bridal shower in London. When it came to managing my relapsing-remitting MS (RRMS) on the trip, I pretty much broke every rule I live by. Surprisingly, taking risks paid off for me, which…
August 1, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: Vitamin D, Brain Health, Digoxin, Natalizumab No Link Between MS Severity, Vitamin D-related Mutations: Study Several studies over the years have indicated that there could be a link between a person’s vitamin D level and the risk of multiple sclerosis (MS). This study is slightly different. Researchers looked at whether genetic variations related to vitamin…
July 29, 2022 Columns by John Connor What I Didnāt Do on My Forced Summer Holiday Due to the UK Heat Wave No, it wasnāt my good wife, Jane, suddenly insisting we just had to take a break. Spontaneity is no longer a question for me. We can only go somewhere that has both a hoist and a profiling bed. Never mind a Molift and a shower chair. Itās…
July 29, 2022 Columns by Ed Tobias Dreams, Diagnoses, and Disclosures: When to Tell Others About MS The other night I dreamed I was standing in a military formation when my leg began to twitch with an MS spasm. I couldn’t stay in line. The top sergeant yelled while the other soldiers laughed. Suddenly, the scene shifted to a balance beam, where I desperately tried to…
July 28, 2022 Columns by Stephen De Marzo The Heat Is On: Coping With PPMS and High Temperatures Oh, brother, itās hot! How hot? Well, my thermometer hit āare you kidding meā levels. My experience with primary progressive multiple sclerosis (PPMS) has taught me that an 0.5-degree rise in body temperature is enough to cause a shutdown. Allow me to explain what itās like when my…
July 25, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: Intermittent Fasting, Roe v. Wade, IRLs Intermittent Fasting in MS Leads to Immune Cell, Metabolic Changes Although the National MS Society will tell you there is no such thing as an “MS diet,” many people follow various diets that seem to help them. One that’s been around for several years is intermittent fasting. In…
July 22, 2022 Columns by Jamie Hughes Step Up to the Mic: The Value in Doing the Things That Terrify You Back in November, I told you all about my decision to start taking vocal lessons with a coach. Well, Iāve been at it for about eight months or so, taking an hour-long lesson every other week, and while I can tell that Iāve made some progress, Iām still not…
July 22, 2022 Columns by Ed Tobias Can MS, Medical Marijuana, and Guns Safely Coexist? It seems to me from my anecdotal observations that a fair number of people living with multiple sclerosis (MS) have a gun. When I wrote about the issue a few years ago, I discovered that more people than I expected had both a gun and MS. Additionally, many…
July 21, 2022 Columns by Benjamin Hofmeister A Friend Under the Skin: My Intrathecal Baclofen Pump In my last column, I mentioned that I had an intrathecal baclofen pump. Iād make a bad pun, but I donāt have it in me. Spasticity, spasms, and hyperreflexivity were some of my first symptoms, which steadily got worse as my multiple sclerosis (MS) progressed.
July 20, 2022 Columns by Beth Ullah A Big Step Forward: Using Public Transportation With MS As anyone with chronic illness knows, leaving the house requires planning. Thereās much more to think about than what’s visible, especially if you’re relying on public transport. In the days preceding last week’s appointment with my multiple sclerosis (MS) nurse, I was contemplating just how long it’d been since…
July 19, 2022 Columns by Teresa Wright-Johnson ‘To Everything There Is a Season’: Coping With Grief, Loss, and MS Hello, all. It’s been almost a year since Iāve written a column, and I missed connecting with you. I’ve been processing the grief of losing my mother in September 2020, withstanding the challenges of living with multiple sclerosis and chronic pain, and valiantly attempting to find the message…