Columns

I recall a conversation I had with an acquaintance soon after my diagnosis. I hadn’t progressed to a wheelchair yet, but my limp was noticeable, and he’d heard talk from mutual friends. “What is it that you have?” he asked. “Multiple sclerosis.” A moment of wide-eyed silence…

Well, dear reader, my time in Florida is coming to an end. Mom is home from the hospital after her surgery and a stint in rehab. She has begun outpatient physical therapy, and slowly but surely, she’s getting back to a new kind of normal. My being here is…

Welcome to “MS News Notes,” a Monday morning column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at what’s been happening: Good patient reviews for Sativex Sativex (nabiximols) is an oral cannabinoid spray designed to ease MS…

It transpired that I’d gone and fallen at the worst possible time, landing myself in the midst of a major news story. I’d been aware that what had toppled me was most probably my persistent urinary tract infections (UTIs). They were different and numerous, and acted like allied combatants…

My exercise routine was first disrupted by the pandemic. Then Hurricane Ian landed a right hook on the exercise room in my Florida community, knocking it out of action. But not long after that, my thoughts were turning to something sweeter — pitchers and catchers returning to spring…

The kids had their spring break last week, so we loaded up and drove to Universal Studios in Orlando, Florida. I promise this column won’t be a review of the theme park and its accessibility (which was great, by the way). It won’t offer tips about traveling with…

Welcome to “MS News Notes,” a Monday morning column in which I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at what’s been happening: A positive report on orelabrutinib Orelabrutinib is one of several experimental Bruton’s tyrosine kinase (BTK)…

If you haven’t read last week’s column (ah, another discerning nonreader), all you need to know is that I’m in a pain sandwich very much of my own making. And this was an improvement! I’d rather be turned into a hefty snack by a Molift Raiser and a…

Many people with multiple sclerosis (MS) have experienced urinary tract infections (UTIs) at some point. It’s a common problem with MS and can be caused by a number of things, such as the inability to fully empty the bladder or the need to self-catheterize. Symptoms can include urinary…

In a previous column, I wrote about the journey to my diagnosis of multiple sclerosis (MS). In it, I mentioned that the neurologist had praised me for “taking this well.” I suppose I did — at first. When I eliminated the other possibilities, I was left with an…

Note: This column was updated March 30, 2023, to remove the statement that Briumvi is more potent than Ocrevus or Kesimpta as there have been no trials comparing the three therapies’ potency. Welcome to “MS News Notes,” a Monday morning column in which I comment on multiple sclerosis (MS)…

Things had been more than dodgy for the past three days. My right shoulder had gone into complete spasm, and even diazepam couldn’t relax it. I’d also upped my antibiotics as instructed. Nada. As ever, I shouldered on (a naff play on words already, John? Dearie me), stuck on…

Boarding an aircraft before others is a small benefit to being a disabled flyer. For years, giving me a small start to get down the jetway ahead of even the most frequent of frequent flyers has given me time to get off the little scooter I use due to my…

Even if I resolved to improve my cardiovascular health by taking the stairs more often, I can’t. Mobility problems brought on by my primary progressive multiple sclerosis force me to use a wheelchair. Using a wheelchair, in turn, means that stairs and I are natural enemies (as are curbs and…

I have a friend who’s truly blessed. Aside from the typical struggles that come with being an adult, he has few problems. Seriously. Neither he nor a loved one has had any major medical issues. No one in his immediate family has passed away yet, and while he’s not rolling…

Welcome to “MS News Notes,” a Monday morning column in which I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at what’s been happening: Study shows Ocrevus lowers risk of MS progression This seems to be just what the doctor ordered,…

If you noticed my sudden disappearance, it wasn’t because I was sacked. Surprising, I know. Just “MS MIA” — missing in action with multiple sclerosis. While raving in the hospital, I was suddenly moved to my own private room. In Britain’s National Health Service (NHS), this could only mean…

Choosing the best disease-modifying therapy (DMT) to treat your multiple sclerosis (MS) can be a tough decision.  When I was diagnosed with MS way back in 1980, it was easy. There were no DMTs to choose from. The first three — Avonex (interferon beta-1a), Betaseron…

I may not be able to turn in circles like a dog anymore, but I still have a few bedtime routines. Before I had an intrathecal baclofen pump, multiple sclerosis-induced spasticity would wake me up multiple times during the night. Whenever that happened, it was next to…

Welcome to “MS News Notes,” a Monday morning column in which I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at what’s been happening: A different type of stem cell transplant When stem cell transplant is mentioned to treat someone…

You may not have heard of Judy Heumann, who died March 4 at the age of 75. Although she’s not directly connected to the multiple sclerosis (MS) community, you should know about her. Everyone who lives with a disability owes her a great deal. At just 18 months old,…

A little over three years passed between my multiple sclerosis (MS) diagnosis and my medical retirement from the U.S. Army. Even before the diagnosis, I knew something was wrong and had taken a desk job while searching for the reason. Since I was behind a desk in a…

The “invisible” symptoms that are common with relapsing-remitting MS and many other chronic illnesses can be the bane of our lives. It’s difficult enough to manage them, as they’re constantly fluctuating like a changing tide. But in some ways, it’s even more difficult to explain them to…

I’ve always liked the quote, “Everyone you meet is fighting a battle you know nothing about. Be kind. Always.” Some folks think it was penned by the Scottish author Ian Maclaren (sometimes MacLaren). Others attribute the quote to actor Robin Williams (which is fitting, I think, given the…

Welcome to “MS News Notes,” a Monday morning column in which I comment on multiple sclerosis (MS) news stories that caught my eye last week. In this column, I’ll be highlighting more MS News Today articles from the Americas Committee for Treatment and Research in Multiple Sclerosis…

Even the cold and rainy Southern California weather did little to dampen the excitement of the more than 1,800 attendees converging on the Marriott Marquis San Diego Marina. People filtered in, eager for the meeting to begin. Excitement reached a fever pitch Thursday morning as the curriculum came to life.

Want to reduce your multiple sclerosis (MS) fatigue? Maybe we should talk about it. I’m talking about a fatigue treatment called cognitive behavioral therapy (CBT), which usually involves changing a person’s thinking and behavior. By talking with a therapist, sometimes on the phone, a patient develops an…

Every once in a while, I wake up prepared to swing my legs over the side of the bed and get moving. That sleep-induced forgetfulness evaporates as soon as the reality of multiple sclerosis (MS) reminds me that I can’t swing anything. I suppose I should be grateful that…

Welcome to “MS News Notes,” a Monday morning column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. In this column, I’ll be highlighting some MS News Today stories from last week’s Americas Committee for Treatment and Research in Multiple Sclerosis…

If you have multiple sclerosis (MS), I’m sure you’ve had several MRIs by now. You’ve probably also had one using a contrast agent. The contrast agent is made from a rare earth element called gadolinium. Mixed with other chemical ions, it highlights lesions or areas…