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“You’re my summer that fades/ To these cold autumn days/ You’re my keepsake, my friend, and my fears/ You’re the strength that’s inside and I swear on my life/ I will always be there by your side.” — Amber Pacific Autumn has always been my favorite time of year. I…

Deep Brain Stimulation May Help With MS-associated Tremors Deep brain stimulation (DBS) has been used to treat people with Parkinson’s disease and essential tremor, and in some cases, those with MS who have severe tremors, when other treatments have failed. The treatment involves implanting electrodes in the brain so…

Though I have fewer headaches than I used to thanks to acupuncture, I can usually count on at least one whammer a month. While I do take my fair share of over-the-counter pain pills, I don’t like taking copious amounts of medication for obvious reasons. So, I’m always on…

“Rage, rage against the dying of the light,” Dylan Thomas wrote in his famous poem about us humans fighting, against all odds, the inevitable moment of death. Oh, yes, I went there. I’m starting with the dark and seeing if I can pull it back with a swath of…

Would you sign up for healthcare from the place where you buy books, bluejeans, and bagels? Amazon thinks you might, and the company is moving closer to becoming the doctor in your house, according to a report last month by Insider. Amazon has been dabbling in the healthcare business…

I am having an MS relapse, my first in three years. In the first two years after I was diagnosed with relapsing-remitting MS in early 2017, I relapsed every two or three months. It got to the point that I couldn’t tell where one relapse began and another ended.

Ublituximab, Potential Relapsing MS Therapy, Up for FDA Approval Like Ocrevus (ocrelizumab) and Kesimpta (ofatumumab), ublituximab targets the CD20 protein that’s found on the surface of B-cells in the immune system. It then binds to it and kills the cell, reducing the number of cells that are attacking the…

I was tryin’ to find lots of things to do while being trapped at my desk because of a wheelchair mishap. Apologies for my adaption of Bing Crosby’s rendition of that happy-go-lucky song “Busy Doing Nothing.” I was trapped because at 8 p.m. last Friday night, the wire that…

This week, I had a conversation with my eldest son about the importance of saying “I’m sorry,” and making amends when you harm someone or have done something you shouldn’t have. He had made a mistake, spoke words in anger, and felt terrible about it later. I explained to him…

“A river cuts through rock not because of its power, but because of its persistence.” — James N. Watkins Fatigue is arguably the most disruptive symptom of multiple sclerosis (MS). At least it is for me. It has an awful lot to answer for. And it will.

People living with multiple sclerosis know that the medications used to treat it are expensive. According to the National Multiple Sclerosis Society, the median annual price of brand-name disease-modifying therapies (DMTs) last year was $91,835. Five of them carried a price tag of more than $100,000 a year. Many pharmaceutical…

“Sweep around your own front door before you try to sweep around mine.” These lyrics are from a spiritual song on my playlist. They’ve challenged me to assess myself while simultaneously liberating me from the judgment of others. Life happens on its own terms, and the only…

Oral Fesoterodine Fumarate Can Ease Bladder Problems in MS This is a biggie for me since bladder problems have affected my quality of life for years. I recently switched my bladder medication hoping it would be a change for the better. The jury is still out. So, I’ll have…

I know that here in England, COVID-19 restrictions have been lifted for about two months. But trepidation has now been instilled in me. It doesn’t help that the vast number of people catching the virus are still a daily news item, nearly two years after the start of the…

I take a bunch of pills every day. Most of them are generics. I’ve used baclofen to treat my leg spasticity, oxybutynin for my bladder, and modafinil to fight fatigue. There’s also atorvastatin to keep my cholesterol in check, and levothyroxine to do the same for my…

Pain is the consummate four-letter word. I have felt pain in the most primal of ways. The emotional chasm of grief in my soul. The physical torture of pain in my body. Pain is unyielding in its relentless torment. It remains the quagmire I fail to solve. Life with…

“Hurricane MS,” which is how I refer to the aggressive nature of my MS progression, happened quickly and mercilessly. I am aware that my case is particularly unusual, given how aggressive its onset was. This is one of the reasons I feel a sense of purpose in sharing my story…

Patients on Anti-CD20 Therapies Urged to Get COVID-19 Vaccine Some people being treated with disease-modifying therapies (DMTs) that reduce their CD20 B-cells have been concerned that their DMTs also reduce the efficacy of COVID-19 vaccines. According to this study, those DMTs, such as Ocrevus, Kesimpta, and Rituxan, do that.

I walked outside a couple days ago and something amazing happened. The heat didn’t slap me in the face. The humidity didn’t sit on my chest like some sort of weird, invisible lead weight. (And let me tell you, in Georgia, the heat and humidity are beyond oppressive. The second…

So, yes, I’ve been away for four weeks. Anybody miss me? Well not away as such. There are places with hoists — even a specialist camper van you can hire here in the United Kingdom — but matching that with a profiling bed makes for quite the elusive Venn…

Lately, I’ve been thinking about pain — specifically, how to count my pain. When I was lying on a treatment table while my physical therapist Richard manipulated my shoulder, he asked me to rate my pain, on a scale from one to 10. I’m sure many of you…

Risk of MS Relapse Not Increased by COVID-19 Vaccine, Study Finds This new information about one of the COVID-19 vaccines supports what doctors have been saying all along. So, why do some people continue to believe the vaccines raise the risk of a relapse? In my personal, nonscientific opinion,…

Lia Coryell says she wanted to die. According to The New York Times, after fighting COVID-19 last winter, Coryell 56, was hit with heart and kidney failure, pneumonia, and shingles. This was in addition to living with progressive multiple sclerosis. “I’ve had to fight this really dark demon that…

I watch my multiple sclerosis progress. I see it progress in moments of defeat. I think of it when I fall. I curse it when I break or can’t open things. I grieve over it when my body fails me. I watch as my independence slips away like…

Winston Churchill once wrote, “I pass with relief from the tossing sea of Cause and Theory to the firm ground of Result and Fact.” This very much sums me up as a person. It was also how I felt when I was diagnosed with relapsing-remitting MS 10 months…

I’ve been working on my health this last year or so, trying everything from a vegetarian diet to visiting an acupuncturist to help with muscle tension and headaches. All of it has been just wonderful. But the elephant in the room — the thing I still needed to…

I wish I could walk a mile in my shoes, but even with a new pair, that’s not going to happen. My MS limits me to about 100 steps while using two canes and a functional electrical stimulation device strapped under my left knee. Because walking is so difficult,…

Ocrevus Reduces MS Relapse Risk, But Linked to More Hospitalizations As you can see from the first two paragraphs of this story, these hospitalizations occurred most frequently in older people with MS. Yet, as these researchers point out, the criteria for selecting the people who participated in Ocrevus’ clinical…

I’ve had pee problems for as long as I’ve had multiple sclerosis. Many folks with MS have issues, including urinary urgency, frequency, or both, bladders that don’t empty completely, or streams that don’t start when you need to go. There are medications to treat these problems. The best known…

The light of the television screen illuminates the darkness. I want so much to sleep, but my body has other plans. After a hot shower and multiple medications, my legs continue to dance. The constant ache, twitch, and kick are a rhythmic routine. But my body is tired and…