To live our best life with MS, sometimes we have to ‘do it afraid’
I’ve been afraid many times during my life, but I’ve almost always managed to get past the fear. One fear I haven’t gotten past comes with being handed a newborn child for the first…
Chairborne — Ben Hofmeister
Ben Hofmeister was diagnosed with primary progressive multiple sclerosis in 2014, ending a 22-year career in the U.S. Army, as both a Ranger and Green Beret. He gradually settled into a wonderful retired life in Anniston, Alabama, with his wife and their three boys. He couldn’t be happier. After being inspired by the writing of others with MS, he decided to add his own voice. His column is raw and honest, but sometimes sarcastic and pithy too. MS is a serious disease but a life with it doesn’t always have to be.
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Thanks to MS, I can relate to my skeleton Halloween costume
I’m not sure exactly when it happened, but at some point, I stopped putting on a costume and going trick-or-treating for Halloween. Years passed, and with the arrival of my children, I found myself…
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With MS, getting what you need often requires self-advocating
Just before my last deployment, I remember sitting in a classroom with other Army Special Forces medics, listening to the representative from a supplier of chest injury dressings. It was common practice for…
Going to the dentist can be complicated when you have MS
One thing I learned during my Army medic training is that I’m not particularly squeamish — with most things, that is. I have a theory that everyone has at least one thing that will…
Crying at Donald Duck, and other strange emotional reactions
A few years before I was married and had even thought about having children, I was at home alone when there was a knock at the door. I hadn’t lived there for long, and…
I have MS, but it doesn’t define me or usurp my identity
I spent the majority of my life wearing an Army uniform. As a result, I never had to worry about what I’d wear to work all those years. Come to think of it, I…
Disability pride is a tricky concept for me to relate to
I almost didn’t write this column. It might be a sensitive topic, but I’m not afraid of offending anyone. Even if I do, it’s not intentional. It’s not that I don’t understand the subject,…
When living with MS, don’t let your hope turn toxic
Like so many others, I have a bedtime routine. There’s bedside water to fill, sleep attire to change into, and bedtime stories to read. These days I’m not much more than a bystander, as…
Why I use a speech therapist to help me with swallowing problems
I’ve been betrayed by my breakfast cereal. Other than eating it, I’m not sure what I did to deserve this. I always liked cereal and thought we had a good relationship. The only disagreement…
Will you join the revolution against multiple sclerosis?
I was once very good at getting out of the way. This skill served me well in dodgeball games when I was younger, and then later during my military career. Given my various injuries,…
MS complicates everything, even recovering from shoulder surgery
I had surgery on my right shoulder last month. I didn’t write about it at the time because compared with a shoulder replacement, the quick arthroscopic clean-out procedure wasn’t a big deal. The orthopedic…
Our approaches to managing MS may be different, and that’s OK
I spent a few of my years in the Army working as an instructor. It was never boring because I think I learned as much from teaching as my students did from being…
Rowing toward the future, but directed by the past
I received a copy of “The Dictionary of Obscure Sorrows” for Christmas two years ago. It provides names for emotions that need defining, and I’ve thoroughly enjoyed leafing through it. I’m not…
Obsessing over MS can sometimes distract from other health concerns
I have a doctor’s appointment coming up soon. It isn’t with my neurologist or another specialist. It’s a routine visit with my primary care physician and, other than the regular schedule, isn’t really routine…
A tactical crossbody bag helps me stay involved in life with MS
By the time this column is published, I’ll be at the Consortium of Multiple Sclerosis Centers‘ annual meeting in Nashville, Tennessee. I’m honored to be attending as a representative of the Paralyzed…
How Army terms help orient me, even today
If I haven’t warned you that bits of my past in the military would sometimes leak into my present as a Multiple Sclerosis News Today columnist, consider yourself warned. I was in the…
If our MS lives were like Hollywood, what makes a movie a classic?
I turn 49 next week. The fact that I’m in middle age already is unbelievable. I don’t think of myself as old. My mileage might be a little high, but I’m not old. I…
Everyone with MS uses their own ‘recipes’ to cope with symptoms
Before multiple sclerosis (MS) took the normal functioning of my limbs, I enjoyed being in the kitchen — not merely to be underfoot or lick spoons and bowls, but to actually cook and…
There’s comfort in putting a name to a multiple sclerosis symptom
I feel like I’ve been in this exact place, saying exactly what I’m saying right now. Have I done this in a past life? Did I dream it and am now subconsciously acting it…
Finding safety while living with the constant threat of MS progression
Even as a small child, I enjoyed watching nature shows. They didn’t come on television often, but when they did, I absorbed every word. At school, I might not have been able to recite…
Learning how to write a ‘SOAP’ note feels different after an MS diagnosis
Training to become a U.S. Army Special Forces medic included all the things you might expect, as well as some you might not. Although trauma was our primary focus, we also had to…
