Columns The MS Wire - A Column by Ed Tobias Let’s talk facts about MS and COVID-19 vaccines Let’s talk facts about MS and COVID-19 vaccines A headline on a WHO site leads to some disinformation on social media by Ed Tobias | June 2, 2023 Share this article: Share article via email Copy article link Since the early days of the COVID-19 vaccination program, disinformation claiming that the vaccines can induce multiple sclerosis (MS) has swirled around social media. Recently, there’s been a resurgence of this type of post, sparked by a report published on the World Health Organization (WHO) website titled “Covid-19 vaccination can induce multiple sclerosis via cross-reactive CD4+ T cells recognizing SARS-CoV-2 spike protein and myelin peptides.” One post on Twitter, for example, had been viewed nearly 2 million times, shared more than 12,000 times, and received more than 18,000 “likes” in less than a week. Checking the facts The facts are that while the report has an attention-grabbing title, its research seems to be less than conclusive. Still, social media platforms have picked it up — including YouTube and Reddit in addition to Twitter — and the posts have created so much buzz that The Associated Press felt compelled to publish a fact-check story headlined “Posts misrepresent research on multiple sclerosis and COVID-19 vaccines found in WHO database.” The AP labeled the claims on social media “false” and reported these facts, as well as others, to support its assessment: The item on the WHO website was an abstract, not peer-reviewed, that examined only two cases of people with MS. Though the research found there might be a potential link to COVID-19 vaccines, the abstract didn’t definitively conclude the vaccines triggered either of those two MS cases. The research paper was not endorsed by WHO, which has cautioned that the research is limited and additional studies are needed to confirm the findings. Recommended Reading March 22, 2023 News by Andrea Lobo, PhD Greater MS disability reported in patients with COVID-19 infection COVID-19 vaccine studies A survey released in late 2021 reviewed side effects reported by more than 700 people with MS following their COVID-19 vaccinations. I was among them. Conducted by iConquerMS, a people-powered research organization, it reported the side effects for the respondents with MS were about the same as those reported by the general population. There was no indication that the vaccines were an MS trigger. At about the same time, an Italian study of the Pfizer-BioNTech vaccine found no evidence that it increased the risk of MS relapses in the two months following vaccination. The other side of that coin was reported in a study this year by researchers at the U.S. National Institute of Allergy and Infectious Diseases. It concluded that the virus that causes COVID-19 — the virus, not the vaccine — might trigger an MS-like disease in some individuals. Read past the headlines Although I believe the benefits of the COVID-19 vaccines far outweigh their possible risks — my wife and I have received five shots so far and are about to get our sixth — I respect the concerns of people who worry that they may be harmed if they’re vaccinated. But I hope they aren’t forming their opinion about a vaccine’s safety based solely upon a six- or seven-word headline or a social media post. Read past the headline to get the full story, which the headline may not accurately reflect. Most importantly, resist the temptation to post information on social media based only on a headline or a study’s title. Helping to keep the disinformation level low will help us all better navigate the information seas, which have become pretty choppy lately. I hope you’ll share your opinion on this issue below and also visit my personal blog at www.themswire.com. Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, Bionews, and are intended to spark discussion about issues pertaining to multiple sclerosis.Print This Page About the Author Ed Tobias People say to write what you know and Ed Tobias knows about MS. He's lived with the illness since 1980, when he was 32 years old. Ed's a retired, award-winning broadcast journalist and his column combines his four decades of MS experiences with news and comments about the latest in the MS community. In addition to writing his column, Ed is one of the patient moderators on the MS News Today Facebook, Twitter, and Instagram sites. He’s also the author of “The Multiple Sclerosis Toolbox: Hints and Tips for Living with M.S.” Ed and his wife split their time between the Washington, D.C. suburbs and Florida’s Gulf Coast, trying to follow the sun. Tags COVID-19 vaccines, social media Comments Leave a comment Fill in the required fields to post. 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