social media

Since the early days of the COVID-19 vaccination program, disinformation claiming that the vaccines can induce multiple sclerosis (MS) has swirled around social media. Recently, there’s been a resurgence of this type of post, sparked by a report published on the World Health Organization (WHO) website titled “…

“Thanks, I hate it.” Odd way to begin a column, I know. I suppose I’d better explain myself. That phrase regularly appears in memes and other pop culture media as an expression of dislike for an image or tweet. No one seems to know where or from whom it…

Well, folks, we made it to the end of a very long political season and an even longer week. I don’t know about you, but I don’t feel a bit relieved. In fact, I have tension and stress trapped in every muscle and joint of my body. And that’s not…

Are people with MS more susceptible than the average person to the coronavirus that causes COVID-19? And if COVID-19 attacks them, what’s the likely course of their illness? What about COVID-19 and disease-modifying therapies? Doctors from around the world are collecting information right now to try to answer these…

In recognition of Rare Disease Day Feb. 29, Bionews Services launched a social media campaign last month asking patients to describe what makes them rare. Running Feb. 7–29, the #WhatMakesMeRare campaign was aimed at uplifting people with rare diseases by encouraging them to share their stories and perspectives. The…

I recently interviewed filmmaker Celestine Fraser on my podcast. Fraser produced a documentary about chronic illness called “ill, actually.” We touched on some interesting topics, including how people with chronic illnesses use social media. The documentary interviews three people with…

The Multiple Sclerosis Association of America (MSAA) is celebrating 50 years of work and dedication to improving the lives of people affected by multiple sclerosis (MS). Some changes are underway and initiatives being launched to commemorate this milestone. MSAA, a nonprofit organization founded in 1970, aims to provide…

Multiple Sclerosis Awareness Month has arrived, lasting throughout the month of March. All things orange and popular hashtags flood social media sites. Awareness months like this have great value, though some may disagree. Awareness months become vessels to engage and encourage individuals and communities to get involved.

Last October actress Selma Blair revealed that she’d been diagnosed with multiple sclerosis (MS). She did it by posting the announcement on her Instagram account. Back then she wrote, “I have MS and I am ok.” She described her symptoms in some detail, but her overall viewpoint was generally…

We live in a turbulent, violent, and hostile society. We wake up every day to news of another mass shooting, Mother Nature causing unstoppable damage, loud protests by politicians or citizens, or an exchange of angry barbs across social media.   Bad news…

By now you may have heard that actress Selma Blair has revealed that she has multiple sclerosis (MS). That took a lot of guts. Those of us who share her diagnosis might learn a few things from what she’s shared and how she’s shared it. Blair may be…

After reading more than a few articles about how social media demolishes our attention span, prevents us from forming healthy real-world relationships, and causes higher-than-normal rates of depression, stress, and insomnia, I decided to cut way back on screen time. And you know what? I don’t miss Facebook and…

Cannabis Science has created a website called iCannabinoid that it hopes will become the premier online source of medical cannabis news and information. It is seeking feedback on the site so it can tweak it as need be. It hopes to hear from  patients, doctors, patient advocates, parents, researchers, government and…

I’m worried about social media. Specifically, I’m worried about the many MS-related groups in the Facebook world. There are general MS groups and there are groups dedicated to specific MS treatments. I belong to several, and though there’s a great deal of useful information in these groups, there’s…

I was in Boston last week at the headquarters of Sanofi Genzyme. Yes, the big drug company. They brought together several people they consider to be “digital influencers” to pick their brains about what’s on the minds of people like you, who read what we write. Sanofi…