I’m a fraud. Or at least I feel like one.
When writing for a site about multiple sclerosis and setting up a business focused on my diagnosis to help others in the same boat, it is a requirement that I talk about my MS. But when nothing has changed, it makes it harder to know what to say.
Today, I’m sharing this because this week in particular, my MS has made me feel like a bit of a fraud.
I’m a big believer in teaching something only after I have experienced it. That is my rule. For example, it’s not my place to talk about progressive MS, because I don’t personally have the experience. I can learn from the experiences of my podcast guests, and that’s about all.
Today, I’m reaching out to others, who like me have invisible symptoms and feel it’s hard to describe to family and friends how symptoms feel. And I’m sending a shoutout to those who received NEDA.
Since my diagnosis seven years ago, I’ve had one relapse to date and many tiny fluctuations, or “blips,” as my MS nurse says. I do have horrible days, but they are once in a blue moon now.
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