I’m a fraud. Or at least I feel like one.
When writing for a site about multiple sclerosis and setting up a business focused on my diagnosis to help others in the same boat, it is a requirement that I talk about my MS. But when nothing has changed, it makes it harder to know what to say.
Today, I’m sharing this because this week in particular, my MS has made me feel like a bit of a fraud.
I’m a big believer in teaching something only after I have experienced it. That is my rule. For example, it’s not my place to talk about progressive MS, because I don’t personally have the experience. I can learn from the experiences of my podcast guests, and that’s about all.
Today, I’m reaching out to others, who like me have invisible symptoms and feel it’s hard to describe to family and friends how symptoms feel. And I’m sending a shoutout to those who received NEDA.
Since my diagnosis seven years ago, I’ve had one relapse to date and many tiny fluctuations, or “blips,” as my MS nurse says. I do have horrible days, but they are once in a blue moon now.
I’ve started using appointments with my MS nurse to talk about different supplements or therapies I’ve tried that have or haven’t worked, so that she can pass this information to others. I spend much of my appointments talking through my business ideas to get her opinions about the ways I could help others like me.
There’s nothing else for me to tell her; I have no new symptoms to report. My medication, Tecfidera (dimethyl fumarate), is excellent and working.
Don’t get me wrong — I still have day-to-day symptoms like fatigue, nerve pain, and weakness. I also get brain fog, which you can hear in the blooper episodes on my podcast. I might say the wrong thing or can’t get my words out. (I find this hilarious.)
I also used to be very sensitive to temperature, meaning that if I was hot, my weakness worsened, and if I was cold, my nerve pain worsened. In the past few weeks, however, the sun has been hot in the U.K., yet I haven’t felt weak in the slightest. Why is that?
Is it luck that my MS is stable? Is it because I’ve mastered my mindset and don’t focus on symptoms? Is it the diet I’m on? Who knows what it’s all about.
Do you have mild symptoms that sometimes make you feel like a fraud? Please share in the comments below.
Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis.
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