I like to look up. No, I’m not referring to my disposition, although I do consider it to be an improvement over what it once was. I’m actually pretty sunny, if you happen to think of “sunny” as burning, harsh, and damaging when you’re exposed to it. What I…
Coping methods
I’m not a doctor, just a patient. And depending on whom you ask, I’m not a very good one, either — unless you happen to be fond of lots of questions. I was a medic in the U.S. Army — a time buyer, as I refer to it…
A few — OK, many — years ago, I played the lead in a production of “Oklahoma!” Don’t get excited; it wasn’t on Broadway or anything like that. It was a high school production, and I suspect I only landed the role because I could sing — and probably…
Welcome to “MS News Notes,” a Monday morning column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at what’s been happening: MS experts offer more than 50 vaccine guidelines I know there are different opinions about vaccines, and I’ve…
I didn’t seek support immediately after my diagnosis of multiple sclerosis (MS). To be fair, MS was just an annoyance to me at the beginning. It was simply a set of symptoms, and I was initially happy just to have an explanation for them. To be…
The sexual satisfaction of women with multiple sclerosis (MS) improved when they actively sought out ways to deal with the practical challenges related to sexuality instead of just relying on managing their emotions, a study finds. It’s therefore important for women with MS to consider a problem-focused coping strategy…
In the not-too-distant past, a friend shared a video clip from a competitive event with a few of us. One of the competitors had a shock of gray hair and was slowed by a noticeable limp. “Watch how smooth this guy is,” he said. As we all expressed our amazement…
Special Forces Assessment and Selection (SFAS) — a training program for entry into the U.S. Army Special Forces — is rare, even among military courses. It has grueling physical aspects, but the majority of it is mental. It’s really one long test to gauge a participant’s ability to work…
I don’t know why I find it so impossible to sit still. I feel like every moment I’m not engaged in some creative pursuit, I’m somehow missing out. Or worse, I’m squandering what poet Mary Oliver calls my “one wild and precious life.” Multiple sclerosis (MS) has done…
As hard as it is to believe, another school year is drawing to a close. It still somehow takes me by surprise every time. It feels like just yesterday that I was buying new shoes and helping my eldest navigate the halls of high school for the first time, and…
I don’t really like problems. And I don’t think I’m alone in this. No one I know wakes up hoping a seemingly insurmountable obstacle or painful trial is flung smack in the middle of their path. If it were up to me, I’d rather wake up to perfect hair, hit…
Multiple sclerosis (MS) patients with greater psychological resilience — a better ability to cope with and recover quickly from problems and difficulties — tend to have higher levels of social and occupational functioning, a new study found. Resilience was linked to a number of functions, including relationships, communication, social…
Well, dear reader, my time in Florida is coming to an end. Mom is home from the hospital after her surgery and a stint in rehab. She has begun outpatient physical therapy, and slowly but surely, she’s getting back to a new kind of normal. My being here is…
My exercise routine was first disrupted by the pandemic. Then Hurricane Ian landed a right hook on the exercise room in my Florida community, knocking it out of action. But not long after that, my thoughts were turning to something sweeter — pitchers and catchers returning to spring…
Photo courtesy of Suni Conway Day 31 of 31 This is Suni Conway’s story: I spent seven years battling strange and unexplainable symptoms with little support and even less hope that things would get better. When asking for help, I was doubted and made to feel just as…
Photo courtesy of Kellie Alderton Day 30 of 31 This is Kellie Alderton‘s story: I was 17 years old in 1988 when my body just stopped working. I had played softball for over a decade, but at my first practice that season I missed an easy fly…
Photo courtesy of Lucinda Howard Day 28 of 31 This is Lucinda Howard’s story: I was in the first few months of my first “adult” job when I suddenly felt numbness and tingling on my skin from my ribs down to my feet and in my hands. I went…
Even if I resolved to improve my cardiovascular health by taking the stairs more often, I can’t. Mobility problems brought on by my primary progressive multiple sclerosis force me to use a wheelchair. Using a wheelchair, in turn, means that stairs and I are natural enemies (as are curbs and…
Photo courtesy of Marti Hines Day 23 of 31 This is Marti Hines’ story: I have been living with MS for 4½ years now and a lot of days it doesn’t seem to get any easier. My grief over my past life hits in big…
I have a friend who’s truly blessed. Aside from the typical struggles that come with being an adult, he has few problems. Seriously. Neither he nor a loved one has had any major medical issues. No one in his immediate family has passed away yet, and while he’s not rolling…
Photo courtesy of Angie Gensler Day 20 of 31 This is Angie Gensler’s story: As a mom, wife, and business owner, I have always prided myself on juggling my crazy life. I was diagnosed with multiple sclerosis (MS) 18 years ago on Christmas Eve after suffering from blurred…
Photo courtesy of Julie Wigley Day 11 of 31 This is Julie Wigley‘s story: In 2010, I started having numbness in my legs, specifically when I’d look down. I didn’t think much of it, but mentioned it to my primary care doctor during a…
The “invisible” symptoms that are common with relapsing-remitting MS and many other chronic illnesses can be the bane of our lives. It’s difficult enough to manage them, as they’re constantly fluctuating like a changing tide. But in some ways, it’s even more difficult to explain them to…
Photo courtesy of Mia Suite Day 8 of 31 This is Mia Suite’s story: On the morning of March 10, 2020, I received one of the most gut-wrenching diagnoses of my life. The day started off normal. I had a 9 a.m. appointment with a neurologist to go…
I’ve always liked the quote, “Everyone you meet is fighting a battle you know nothing about. Be kind. Always.” Some folks think it was penned by the Scottish author Ian Maclaren (sometimes MacLaren). Others attribute the quote to actor Robin Williams (which is fitting, I think, given the…
Photo courtesy of Derlene McPhail Day 7 of 31 This is Derlene McPhail’s story: Before my multiple sclerosis (MS) journey began, I worked for 15 years as a healthcare support worker for patients living with MS. The first time I heard the words multiple sclerosis, I had…
Photo courtesy of Susan Payrovi Day 6 of 31 This is Susan Payrovi’s story: As a young person, physician, and new mom, I never expected to get sick. In fact, I considered myself to be the picture of health. What I failed to see were all of the factors…
We had family portraits made a few days ago. With a family of five, this never goes perfectly, so there was a little pre-photo briefing beforehand. There were some veiled threats, a promise of dinner after as a reward for good behavior, and more than a few hissed admonishments to…
Well, dear readers, I took a bit of time off from writing this column, but not by choice. January was an incredibly hectic 31 days, and I spent most of them living with my parents in Florida. Why? Well, because my mother has been dealing with some health issues…
Before multiple sclerosis (MS), I was pretty proud of my memory. For the most part, I still am, but like many others with this disease, I now have trouble recalling information. For me, it’s one of the most irritating, (sometimes even infuriating), cognitive issues associated with MS. I…