COVID-19 pandemic

A Big Step Forward: Using Public Transportation With MS

As anyone with chronic illness knows, leaving the house requires planning. Thereā€™s much more to think about than what’s visible, especially if you’re relying on public transport. In the days preceding last week’s appointment with my multiple sclerosis (MS) nurse, I was contemplating just how long it’d been since…

Survey Results Show Impact of MS in All Aspects of Life

Multiple sclerosisĀ (MS) affects all aspects of life, from physical and mental health to relationships, and from work and finances to hobbies and holidays, according to results from an online survey conducted by the U.K.ā€™s MS Trust. Most respondents said they wanted more support to manage their fatigue, improve…

The Visible and Invisible Reflections of MS Ā Ā Ā 

“Mirrors donā€™t lie. They only show a part of truth.” ā€” Lara Biyuts I’ve written about how my reality feels jagged compared with actual reality. I wrote, “The woman looking back at me isnā€™t whom I perceive myself to be.ā€ Iā€™ve been pondering this recently. The realism of reality With…

Patient Experience Takes ‘Shape’ for MS Awareness Month

From celebrating artistsā€™ works to sharing stories that bring to life the experience of multiple sclerosis (MS), Multiple Sclerosis Awareness Month is designed to call attention to this neurodegenerative disorder and the nearly 1 million U.S. residents itā€™s thought to affect. MS can cause a host of physical…

Making Good Choices When COVID-19 Strikes

The past two weeks have been a bit of a blur. Our younger son caught the COVID-19 virus at school, and once we got a positive home test, we went into containment mode. While I took him to get an official test at a local clinic, my husband got everything…

VISIONARY-MS Trial of CNM-Au8 to End Early Due to Pandemic

VISIONARY-MS, a Phase 2 clinical trial evaluating the safety and effectiveness of CNM-Au8 in people with relapsing multiple sclerosis (MS) with disease-related visual impairment, will conclude early due to COVID-19 pandemic-related challenges. The release of trial data is expected in the second half of this year, according to…

Acthar Gel May Help RRMS Patients Who Fail Corticosteroids

Acthar Gel (repository corticotropin injection) may be useful for managing disease relapses in people with relapsing-remitting multiple sclerosis (RRMS) who fail to respond to treatment with corticosteroids, according to results from a small clinical trial. The study, “Results from a multicenter, randomized, double-blind, placebo-controlled study…

Canadians Prepare for 2021 Women Against MS Gala

This year’s Women Against Multiple Sclerosis (WAMS) Gala, which aims to raise funds for multiple sclerosis (MS) research, will take place Nov. 5. In order to keep participants safe in the setting of the ongoing pandemic, the MS Society of Canada‘s initiative will feature three events held virtually:…

COVID-19 Stalling MS Research Into Rehabilitation, Quality of Life

The COVID-19 pandemic appears to be stalling research into rehabilitation and quality of life (QoL) for people with multiple sclerosis (MS) in many countries worldwide, a new observational study reports. According to the study, many researchers have found it “significantly more” challenging to recruit participants for studies, and most…

A Time for Decision-making

One of my favorite moments in Arthur Millerā€™s ā€œDeath of a Salesmanā€ involves a stolen fountain pen. If youā€™ve not read ā€” or better yet, seen ā€” the play, I can’t recommend it enough. Itā€™s a story about making it big in business and losing yourself in the process.