invisible illness

In the world of chronic illness, people tend to be perceived differently depending on the visibility of their condition. Some illnesses are easily noticeable while others aren’t, but both pose significant challenges to day-to-day life. I’ve been living with relapsing-remitting multiple sclerosis since 2016, and for the most part,…

I recall a conversation I had with an acquaintance soon after my diagnosis. I hadn’t progressed to a wheelchair yet, but my limp was noticeable, and he’d heard talk from mutual friends. “What is it that you have?” he asked. “Multiple sclerosis.” A moment of wide-eyed silence…

If I were using a wheelchair, would you question why I use a handicapped placard? Perhaps some (or all) of the condemnation I now receive would diminish. Maybe the notes left on my windshield would not be written. Perchance, it might temper some of the ugly comments spoken to my…

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post “Is your MS Invisible or is it obvious?” published on Feb. 15,…

Last week was Invisible Illness Awareness Week, which ran from Oct 14-20. Awareness weeks are designed to bring attention to certain conditions, issues and situations. They are directed at creating consciousness and disseminating information. Sadly, invisible illness is a subject that needs much more attention. Those of…

I am an emotional, sensitive woman. I like to believe that I have a warm heart in a very cold world. Isn’t this what the world needs? Love, warmth, acceptance and transparency? Recently I find that my emotions change within a millisecond. So, instead of being sensitive, I…

The casual remark, “You seem perfectly fine to me!” bothers me (and others) because eligibility for Social Security Disability benefits requires proving we are not fine. In fact, we must prove that we are disabled, which is no small burden when we “seem perfectly fine.” ‘Looking’ disabled An acquaintance of mine…

Those of us with “invisible illnesses” are no strangers to this subject. Most of us have experienced situations in which we were judged, insulted and scorned based on people’s opinions and perceptions. We are told that we don’t look sick and we are placed in situations where we feel…

This photo was taken more than a year ago and I remember it as if it were yesterday. There was so much going on behind the smile captured in this picture. Smoky Robinson serenaded about “the tears of a clown.” I definitely played the role of the clown that…