living with MS

A researcher at De Montfort University Leicester (DMU)’s School of Nursing and Midwifery found that the practice of mindfulness helps people with long-term medical conditions, such as multiple sclerosis, to manage their diagnosis. The study, “Starting where I am: a grounded theory exploration of mindfulness as a facilitator…

I have been under the care of physicians for as long as I can remember. Cardiologists, primary and several others. In the past few years, added to this list is a neurologist. I must say that I have been fortunate. I am ministered to by caring, esteemed, inspiring and…

No matter what type of Multiple Sclerosis we have, all of us MS Warriors are in this fight together. Even though everyone’s MS battle is unique, and each of us have our own treatment plan, we all share a common bond, and we hope what is working for one will work…

  And do you feel scared? I do, but I won’t stop and falter. And if we threw it all away, things can only get better – Howard Jones, “Things Can Only Get Better” Things I’m good at include (but are not limited…

It’s that time of the year. Drug insurance companies in the U.S. are making changes to their formularies — the list of drugs that your insurance company will pay for. Those formularies change from year to year so you need to be alert to changes that may impact your…

ECTRIMS 2016 (European Committee for Treatment and Research in MS) produced lots of stories with exciting headlines about advances in MS research — and hopefully you read many of them here at MS News Today. As I went through the various presentation titles, there were a couple that jumped…

The National Multiple Sclerosis Society has launched an initiative, called Make MS Medications Accessible, calling for change in the pricing of multiple sclerosis (MS) medications in the U.S., which the group said need to be more affordable, and ways of acquiring them more simple and transparent. The initiative asks leaders of all…

A new study shows that an enzyme called hyaluronidase may be effective in reducing muscle spasticity resulting from neurological disorders such as multiple sclerosis. The results were published in a study titled “Human Recombinant Hyaluronidase Injections For Upper Limb Muscle Stiffness in Individuals With Cerebral Injury: A Case Series,”…

It was while catching up with friends  at a favorite Thai restaurant Saturday night when my fresh spring roll reminded me of something: I had signed up for a Beginning Kayak Roll course as the next of my series of outdoor activities with MS. “Why don’t you just take…

Chronic stress weakens the immune system and increases the risk for a number of illnesses, including heart disease, diabetes, and depression. Most research studies about the effects of stress on MS have been inconclusive, but one recent study by Dr. David Mohr at the University of California, San Francisco,…

Here’s my Pick of this Week’s News, as published by Multiple Sclerosis News Today. This week is a rather special one because it spotlights the work done by our news team in following and reporting the major events at ECTRIMS 2016. Here, I set out my choice of what I…

Life can be really strange and not always fathomable to someone like me who is not blessed with neither medical nor scientific qualifications. On a purely technical basis, I am just an ordinary guy. What I do know about diseases, illnesses and conditions – call them what you will –…

In MS patient columnist Teresa Wright-Johnson’s debut column on Multiple Sclerosis News Today, she introduces herself and discusses the pain and uncertainty of her diagnosis. She also shares how spirituality and reflection are leading her to overcome the diagnosis and move forward. Hello everyone! Thank you for allowing me the opportunity to share…

I hate to admit it, but I’m getting kind of old. That’s not to say that 68 is really old, but I’m probably older than a lot of you who are reading this. I’m also 36 years old in “MS years.” I was diagnosed the month that Ronald Reagan…

Continuing to live in your own home when you can no longer look after yourself is an ideal many people seek to aspire to – but it’s not easy. Outside help is often needed. Alex Camarillo is one perfect example of this. He is 35 years old, has severe…

Accelerated Cure Project is still recruiting for its iConquerMS project, REAL MS, an already 3,000-strong patient-powered research network for people with multiple sclerosis (MS). REAL MS (Research Engagement About Life with Multiple Sclerosis) is a longitudinal research study, designed partly by MS patients themselves, intending to answer critical questions about individual experiences of living with MS from among a large and heterogeneous group…

You don’t see people with disabilities very often in television ads.  And when you do, the person with the handicap is usually playing a secondary role or the ad uses the disabled person for an emotional appeal.  It’s not real-life.  It’s not us. So, a tip of my hat to…

When my doctor first recommended physical therapy for my MS, I must admit I was very hesitant —hesitant because I didn’t feel I could do it, and hesitant because I was afraid I would be embarrassed when I failed. As it turns out, I didn’t have anything to worry about. The…

A very full day of activities is planned for today at MS Life, inside London’s ExCel exhibition and convention center. Altogether, there are 15 presentations on the agenda. Three are in the MS Life theatre, and three more are in each of the following four zones: Managing my MS Symptoms;…

London’s ExCel exhibition and convention center is set for a busy Saturday as ECTRIMS winds down today and MS Life opens just down the hall. Organized by the MS Society, MS Life is billed as the biggest MS family event in Europe. With ECTRIMS drawing to a close, many…

Interventions that aim to improve multiple sclerosis (MS) patients’ participation in physical activities need to take into account psychosocial constructs, such as their belief in their abilities and their expectations as to outcomes, in order to succeed. The finding, presented at the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS)…

A post on another website, asking about whether it was wise for someone with Multiple Sclerosis to receive the shingles vaccine, caught my attention the other day. “Have any of you had the Shingles vaccine? I’m still debating about it. I’m concerned about insulting my immune system…

Montel Williams, a Naval Academy graduate diagnosed with multiple sclerosis (MS) in 1999 , recently announced the launch of a line of high-quality medical cannabis products under the brand name LenitivLabs by Lenitiv Scientific. The former television host and wellness advocate has been particularly vocal when it comes to support the use of medical…

In a recent talk, titled “Income and cognitive impairment among multiple sclerosis patients,” scientists investigated how cognitive impairment impacts the life of patients with multiple sclerosis (MS), and reported significant differences in income that correlated with levels of MS-cognitive deficit. These findings were recently presented at the 32nd Congress of the European Committee for…

In a session titled “Challenges for care and research in MS outside Europe and North America” at the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) 2016 Congress Sept. 14-17 in London, researchers from Latin America shared the obstacles of scientists and multiple sclerosis (MS) patients in the…

Multiple sclerosis (MS) care and research is lagging behind in the Middle East compared to countries in Europe and North America, according to research presented at the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) 2016 Congress taking place in London through Sept. 17. Two presentations in a session titled “…

When my physiatrist diagnosed my MS “foot drop,” she wrote a prescription for vehicle hand controls. I was both elated and terrified. Could I drive long distances again? Arrive pain-free, able to do a short hike? Could I regain the freedom of knowing I would not have to…

Europe’s annual congress discussing treatment, including Patient Empowerment, and research in multiple sclerosis is now underway in London. The 32nd congress is being held from today until Saturday, when it draws to a close at lunchtime. The agenda is absolutely jammed full of topics being covered in a multitude of sessions…

Tripping, falling and bloody knees. Been there. Done that. (Who with MS hasn’t)? But this wasn’t me. This was Cheryl Hile and it was happening to her as she was running a half marathon in Carlsbad, California. Cheryl had been running marathons for half a dozen years when, in…

Here is my Pick of the Week’s News, as published in Multiple Sclerosis News Today. Breast Cancer Therapy, Tamoxifen, May Promote Myelin Repair in MS Remyelination could be a new role in MS therapy for a drug that has been used to treat breast cancer for some…