MS symptoms

Do You Cry and Don’t Know Why? It Might Be PBA

I often see posts on social media from people with multiple sclerosis asking if crying for no reason is an MS symptom. It can be. Laughing for no reason can be, too. Both can be severe, persistent, unremitting, and unpredictable. The medical name for this is…

Early Detection of Pseudobulbar Affect May Help Ease MS Symptom

In its inaugural issue, a publication from The Gerontological Society of America provides information about recognizing and managing pseudobulbar affect ā€” uncontrolled outbursts of crying or laughing that the authors say are one of the most “underrecognized and undertreated” symptoms of multiple sclerosis (MS) and other neurological conditions. The…

Five Years of Writing This Column. What a Surprise

Compared with living with multiple sclerosis (MS), the anxiety of what on water (Earth has always struck me as a misnomer as water comprises 71% of our planetā€™s surface) I’m going to write about next week is but a slight fluttering. Yer, yer, I know; underneath itā€™s…

Remembering My First MS Symptom

What was your first MS symptom? Mine ā€” the one that made me realize something was really wrong ā€” was my inability to squeeze the toothpaste tube with my left hand one morning. Of course, there were earlier hints of trouble. I was unusually tired while attending a business…

Can My Wife’s Keto Diet Help My MS?

For the past few months, my wife, Laura, has been following a ketogenic diet, and she’s lost a bunch of weight. But in addition to helping people slim down, the low-carb keto diet may have other benefits, including potentially for those with MS. A small study that will be…

Patient Experience Takes ‘Shape’ for MS Awareness Month

From celebrating artistsā€™ works to sharing stories that bring to life the experience of multiple sclerosis (MS), Multiple Sclerosis Awareness Month is designed to call attention to this neurodegenerative disorder and the nearly 1 million U.S. residents itā€™s thought to affect. MS can cause a host of physical…

The Big Blue Bag and a ‘Cast Away’ Bed

Once upon a time, long, long ago, when I was very young, we British children would be asked, “Whatā€™s through the round window?” The line was from a TV series called “Play School.” The swinging ’60s may have been breaking in London, but culturally, this was the happening show…

The Jagged Edges of My Altered Reality

“You know that place between sleep and awake, that place where you still remember dreaming?ā€ ā€” James Matthew Barrie Being diagnosed with relapsing-remitting multiple sclerosis significantly changed my perception of myself and the surrounding world. This drastic shift has been overwhelming and difficult to accept in many ways. The…

MS Advocacy Gives Me Strength and Purpose

I want to help in any way I possibly can. My lonely confusion in the early days after being diagnosed with aggressive relapsing-remitting multiple sclerosis was mentally and physically paralyzing. However, this column isnā€™t about how ā€œHurricane MSā€ battered my body. Instead, it’s about why I chose to…

Overcoming the Loneliness and Isolation of Aggressive MS

ā€œHurricane MS,ā€ which is how I refer to the aggressive nature of my MS progression, happened quickly and mercilessly. I am aware that my case is particularly unusual, given how aggressive its onset was. This is one of the reasons I feel a sense of purpose in sharing my story…

Focusing on What I Can Do Rather Than What I Can’t

This year, Iā€™ve been acutely aware that my body isn’t perfect. Sometimes it doesnā€™t move well. Sometimes it cuts off sensation in my limbs without notice. Sometimes it gets wiped out from fatigue. Sometimes itā€™s like MS shakes up my head so hard, like a can of soda, that I…

Using Cannabis to Treat Your MS? A Word of Caution

People with MS who are using cannabis take heed: A research letter published in May in JAMA Network Open reports that calls to poison control centers about people intentionally or inadvertently using plant-based or processed cannabis products have been increasing over the past several years. Public health officials are…