quality of life

People with multiple sclerosis (MS) who have cognitive impairment tend to report worse mental and physical quality of life than patients who don’t have cognitive issues, a study reports. Adults with MS who have cognitive problems are also less likely to be employed. The study, “Association…

I have a doctor’s appointment coming up soon. It isn’t with my neurologist or another specialist. It’s a routine visit with my primary care physician and, other than the regular schedule, isn’t really routine at all. There’s a lot more to me than my multiple sclerosis (MS), a fact…

By the time this column is published, I’ll be at the Consortium of Multiple Sclerosis Centers‘ annual meeting in Nashville, Tennessee. I’m honored to be attending as a representative of the Paralyzed Veterans of America (PVA) Multiple Sclerosis Committee. Along with the other committee members, I’ll help spread…

There have been so many times I’ve started something but was unable to finish it. There have been so many things I’ve intended to do, but somehow never followed through on them. The gate of my mom’s backyard privacy fence is broken. Half of it is missing. A dear friend…

Recognizing and valuing authenticity is an aspect of life I began to grasp only a few years ago. During the peak of quarantine restrictions due to COVID-19, I was forced to move back home to San Antonio from my on-campus dormitory at the University of Texas at Austin. Like many…

I turn 49 next week. The fact that I’m in middle age already is unbelievable. I don’t think of myself as old. My mileage might be a little high, but I’m not old. I suppose I could consider myself to be vintage, like clothing, or perhaps even classic, like a…

What’s a reliable way to wreck your mood? Fighting your circadian rhythms. I’m a recovering night owl. I used to get more done between 10 p.m. and 2 a.m. than I did in the other 20 hours of the day. I routinely studied past 2 a.m. during college and…

The title of my column is “Delicate Balance,” though I didn’t pick that name. I was telling my family about the opportunity to be a patient columnist for this site and mentioned that I needed to name my column. Immediately, my husband said, “The title is ‘Delicate Balance.'” I…

Erectile dysfunction is more likely to occur among men with multiple sclerosis (MS) whose disease is more severe, according to a study, which noted that the ability to contract the cremaster muscle, which controls the position of the testicles, was linked with a decreased likelihood of erectile dysfunction in…

Older adults with multiple sclerosis (MS) whose eating habits resemble a Mediterranean diet tend to have less disability and better quality of life, a study found. The findings suggest the Mediterranean diet is a “promising nutritional intervention to slow down disease progression of MS and to minimize disease-related symptoms…

Kelly Earley teaches family and consumer sciences at a middle school. (Photos courtesy of Kelly Earley) Day 28 of 31 This is Kelly Earley’s story: I have been living with multiple sclerosis (MS) since I was 17 years old but was only officially diagnosed when I was 24…

Jen Willis treks to the Lobuche high camp in the Everest region in Nepal. (Photos courtesy of Jen Willis) Day 27 of 31 This is Jen Willis’ story: It was June 12, 2008. I was 37 years old and had given birth to my third child just six days…

Sabrina says she made important lifestyle changes after her MS diagnosis. (Photos courtesy of Sabrina) Day 26 of 31 This is Sabrina’s story: My name is Sabrina, and I was diagnosed with multiple sclerosis (MS) in 2016, when I was 23. (Editor’s note: Sabrina asked that her…

Almost all of the nearly 700 people with multiple sclerosis (MS) in Italy who responded to a patient survey reported at least one unmet MS care need — ranging from insufficient access to primary care, social interactions, assistance, doctor-patient relationships, and information about the neurodegenerative disease. More than half…

Nora Cherubini poses with Stanley, her service dog, during a beach walk. (Photos courtesy of Nora Cherubini) Day 18 of 31 This is Nora Cherubini’s story: “Thank God it’s not MS … because you would wind up in a wheelchair.” This is what a neurologist told me after…

Cathy Chester has been living with MS symptoms for more than 40 years. (Photos courtesy of Cathy Chester) Day 17 of 31 This is Cathy Chester’s story: My story with multiple sclerosis (MS) started more than 40 years ago when a car accident left me with a concussion,…

Ahna Crum wears glasses with orange lenses and prisms to correct for color discrepancy, contrast loss, and double vision. (Photos by Sarah Brewington) Day 16 of 31 This is Ahna Crum’s story: “A great deal of intelligence can be invested in ignorance when the need for illusion is deep.”…

Surjeet Kaur’s MS journey involves sacrifice, but also awareness and positivity. (Photos courtesy of Surjeet Kaur) Day 14 of 31 This is Surjeet Kaur’s story: It was an ordinary day in November 2012 when I woke up with a stiff neck. I tried to brush this off thinking I…

Getting physical exercise can improve subjective well-being and health-related quality of life for people with multiple sclerosis (MS), a new meta-analysis shows. “Exercise interventions, especially aerobic or combined aerobic and resistance training, should be implemented in clinical practice to promote mental health” and health-related quality of life in people…

Brittany Quiroz poses in a self-promotion photo for AHotMS.com. (Photos courtesy of Brittany Quiroz) Day 10 of 31 This is Brittany Quiroz’s story: It’s uncommon for your brain to willingly transition utter disaster into a greater purpose or even God’s calling for you. But for me, my diagnosis…

Julie Stamm was diagnosed with multiple sclerosis in 2007. (Courtesy of Colorado Parent magazine) Day 5 of 31 This is Julie Stamm’s (@iamstamm) story: I was officially diagnosed with multiple sclerosis (MS) on Jan. 8, 2007. While I can date my symptoms back to six years before that,…

Repeated treatment with the mesenchymal stem cell therapy NG-01 led to gains in mobility and cognition, along with patient-reported quality of life, for most people with progressive multiple sclerosis (MS) in an extension study. Markers of nerve damage were also reduced, indicating significant nerve-protecting effects. Dimitrios Karussis, MD,…

Getrude Kamuyu, in her cap and gown, stands with her mother, Grace Kamuyu. (Photos courtesy of Getrude Kamuyu) Day 1 of 31 This is Getrude Kamuyu’s story: At Easter in 2022, I developed sudden pain in my left eye. Then blindness started to creep in, moving in quickly. Three…

There are several good reasons why you won’t see me in television commercials for multiple sclerosis (MS) treatments anytime soon. For one, I’m not much of an actor, despite my brief moment of high school fame. For another, even though I wouldn’t go so far as to say that…

Taking caffeine tablets — the equivalent to about two cups of coffee a day — may help people with multiple sclerosis (MS) keep their balance and move more easily, which could aid their quality of life, a small study suggests. While the tablets may…

An intermittent fasting (IF) diet may lead to immune and metabolic alterations that ease multiple sclerosis (MS) symptoms and improve quality of life, a recent review of published studies suggests. While evidence from these few small clinical trials indicates an IF diet…

Pelvic floor exercises, which strengthen the muscles around the bladder, bowel, and vagina, can help with sexual health and lessen sex-related distress in women with multiple sclerosis (MS), a small study found. Women reported increased sexual desire, arousal, and better overall satisfaction after engaging in a 12-week training program,…

Fatigue is a significant predictor of worse health-related quality of life in adults with relapsing-remitting multiple sclerosis (RRMS), a study reports. High levels of fatigue were significantly linked with worse physical and mental health, including cognitive impairments, depression, and anxiety. The findings suggest…

Because multiple sclerosis (MS) has changed much of my life in a short amount of time, I’m now fighting mental health issues. Things have been especially tough since the start of the new year. Usually, I’d spend January working, planning holiday time, and looking at my calendar to…

Foods that promote inflammation appear to contribute to the development over time of depression and anxiety in people with multiple sclerosis (MS), a study that followed patients for 10 years reports. A pro-inflammatory diet, however, was not linked to fatigue, a common MS symptom. “If the relationship with…