May 11, 2017 Columns by Laura Kolaczkowski The Importance of Caring for Caregivers “Coping with Caregiver Burnout When Caring for A Person with Neurodegenerative Disease: A Guide for Caregivers,” published in the April 2017 issue of the Archives for Physical Medicine and Rehabilitation, is intended to give better insight into caregiver burnout, and what might be…
January 23, 2017 Columns by Teresa Wright-Johnson ‘It Could Be Worse:’ A Teachable Moment Have you ever had someone tell you “it could be worse?” They are making a valiant effort to comfort and console you. However, there is not much consolation in the words. They almost sound a bit insensitive. I have been told this several times. I think many people…
November 21, 2016 News by Patricia Silva, PhD MS Foundation Launches New Website and Redesigns Focus Magazine The Multiple Sclerosis Foundation, whichĀ is celebrating its 30thĀ anniversary this year, has launched a new website to make access to information and services easier, and a newly designed MS Focus magazine. MS Focus magazine is the foundationās publication dedicated to common challenges, solutions, and stories of the…
October 3, 2016 Columns by Teresa Wright-Johnson The Patient and Doctor Bond: A Necessary Requirement I have been under the care of physicians for as long as I can remember. Cardiologists, primary and several others. In the past few years, added to this list is a neurologist. I must say that I have been fortunate. I am ministered to by caring, esteemed, inspiring and…
September 30, 2016 Columns by Jamie Hughes Happy is the Woman And do you feel scared? I do, but I won’t stop and falter. And if we threw it all away, things can only get better ā Howard Jones, āThings Can Only Get Betterā Things Iām good at include (but are not limited…
September 13, 2016 News by admin Study Focuses on Caregivers and Their Often Ignored, But Key, Role in Treating MS A new study from France delves further into the life of multiple sclerosis (MS) caregivers and how they are perceived by MS patients, physicians, and the caregivers themselves. The report,Ā “EVASEP: A Noninterventional Study Describing the Perception of Neurologists, Patients, and Caregivers on Caregivers’ Role in the Support…
September 6, 2016 News by Patricia Silva, PhD Parents of Youngsters with MS Voice Needs and Frustrations in Study A study exploring the difficulties parents experience when their childĀ develops multiple sclerosis (MS) foundĀ that more support and education ā from healthcare and school staff, as well as by parents themselves ā is key to easing the burden of a child or teenager with this disease. The study, āParentsā…
June 21, 2016 News by Patricia Silva, PhD National MS Society Using Record $3M Gift to Expand Services and Outreach Programs The National Multiple Sclerosis SocietyĀ announced that it has received the largestĀ gift ever given the organization by an individual ā a $3 million, multiyear donation to establish and fund theĀ Edward M. Dowd Personal Advocate Program, which aimsĀ to improve and expand personalized case management and care for people with…