Jamie A. Hughes is a writer-editor living in Atlanta, Georgia with her husband, two sons, and a pair of very needy cats. She was diagnosed with relapsing-remitting MS in 2004 when she was just 25 years old. A lover of words since birth, she wasn’t about to let two little letters get her down. They don’t get the last word. And that’s why she writes her column — to help those dealing with MS to live more thoughtful, hopeful, and inspired lives.
A few weekends ago, I had what I’ve described as a mini midlife crisis. Things with the kids were a mess, my husband was out of town again (to help with a building project on the family farm), and surrounded by the mess and bother of everyday life, I couldn’t…
A friend of mine recently recommended a book to me by the multitalented Brian Doyle called “One Long River of Song.” Doyle, a devout Catholic (though I don’t think you need to be a Christian to appreciate his writing), was an award-winning essayist, poet, and novelist with more than…
As is usually the way with books I put on hold at the library, three of the novels I’ve been looking forward to reading all came in at the same time. (Why does it always happen that way?) I shot through Colson Whitehead’s newest book, “Harlem Shuffle,” in two…
Though I have fewer headaches than I used to thanks to acupuncture, I can usually count on at least one whammer a month. While I do take my fair share of over-the-counter pain pills, I don’t like taking copious amounts of medication for obvious reasons. So, I’m always on…
This week, I had a conversation with my eldest son about the importance of saying “I’m sorry,” and making amends when you harm someone or have done something you shouldn’t have. He had made a mistake, spoke words in anger, and felt terrible about it later. I explained to him…
I walked outside a couple days ago and something amazing happened. The heat didn’t slap me in the face. The humidity didn’t sit on my chest like some sort of weird, invisible lead weight. (And let me tell you, in Georgia, the heat and humidity are beyond oppressive. The second…
I’ve been working on my health this last year or so, trying everything from a vegetarian diet to visiting an acupuncturist to help with muscle tension and headaches. All of it has been just wonderful. But the elephant in the room — the thing I still needed to…
Christina Applegate, star of classic ’90s films like “Don’t Tell Mom the Babysitter’s Dead” and TV shows like “Married with Children,” announced last week that she had been diagnosed with multiple sclerosis at age 49. She didn’t share much beyond that, only that it’s been “a tough road” since…
This week, my sons returned to school. Both are now in middle school, and let me tell you, this freaks me out deeply as a mother. When we adopted them, the younger boy was only beginning kindergarten, and today, I sent him into the unknown hallways of sixth grade. (Granted,…
On July 10, I did something I never thought I’d do: I got a tattoo! I’ve always been fascinated by body art, and any time I see someone with ink I admire, I always ask a ton of questions about it. Sure, I ask how much time it took and…
For the last year and a half, my husband and I had been following the high-fat, low-carb ketogenic diet with some success. I lost 25 pounds, and my spouse (as is often the way with men) lost double that. However, a few months ago, I noticed that I was…
I don’t know if you’ve noticed, but most people don’t like a problem without a solution. If something isn’t working correctly, they’d rather fix, alter, or throw it out and start all over than live with “wrongness.” Now, that’s great when it involves garage door openers, burnt-out lightbulbs, or shoddy…
If you have multiple sclerosis, no matter how long you’ve lived with it, you likely know it can be unpredictable. It can hit in weird ways you’re not expecting, even after years of learning how to deal with it. For instance, last Saturday, my family of four and some friends…
One of my favorite moments in Arthur Miller’s “Death of a Salesman” involves a stolen fountain pen. If you’ve not read — or better yet, seen — the play, I can’t recommend it enough. It’s a story about making it big in business and losing yourself in the process.
Spring is here, a time we’d normally be out and about getting some sun and recharging our souls after a long winter. I certainly look forward to working in the yard, hiking, having outdoor picnics, and taking the occasional road trip. But this isn’t a typical year, is…
In her poem “In Blackwater Woods,” Mary Oliver concludes with 10 breathtaking lines: “To live in this world/ you must be able/ to do three things:/ to love what is mortal;/ to hold it/ against your bones knowing/ your own life depends on it;/ and, when the time comes…
Next week, I will be celebrating my second “quarantine birthday,” which is both amazing and sad. I honestly had no idea we’d still be dealing with COVID-19 for more than a year, and what a strange and perplexing time it has been. I think the thing that has hit me…
The daffodils are in full bloom. There are leaves on my Japanese red maple tree again. Seeds are going into the garden. Yes, the cruel season known as winter is coming to an end. The world is waking up again, exploding into a riot of color and birdsong otherwise…
For a week, I’ve spent my afternoons painting our enclosed garden. When we built it last spring, the wood was new and lovely, but rain and sun have taken a toll on everything, leaving it dingy and dull. And now that we have a custom-built white shed (courtesy of my…
Last night, as I was grumpily prowling through a pile of overpriced red and white striped hats looking for one that would fit my fifth grader, I asked myself, Why exactly am I doing this again? I already knew the answer. The next day was Read Across America Day,…
I’ve recently been sucked into watching “Blown Away” on Netflix. If you have no idea what I’m talking about, it’s a reality TV show in which 10 master glass artists compete in 10 challenges to win a $60,000 prize and an artist’s residency at the Corning Museum of Glass…
I know quite a few of you are dealing with copious amounts of snow right now, but there is not a speck of white stuff on the ground where I live in Atlanta. And for that, I am grateful. Why? Because I do not like snow. I do not like…
As hard as it is to believe, we’re now nearly a year into this pandemic. Thankfully, two vaccines are currently working their way through the system and into people’s arms in the U.S., and before 2021 is out, perhaps we’ll get back to something resembling normalcy (whatever that is).
The holidays can be difficult for many reasons, but one of the things I struggle with is the breakdown of routines. The kids are home from school and spend way too much time directionless, their faces glued to one screen or another. Work slows down or stops entirely as…
I don’t know about you all, but when I first learned I had multiple sclerosis, I felt utterly powerless. Weak. Beaten down. Cornered. Cowed. Yes, I experienced all of these negative feelings (and a hundred more besides) in the first year or two after my diagnosis. But after time, I…
“Be patient toward all that is unsolved in your heart and try to love the questions themselves, like locked rooms and like books that are now written in a very foreign tongue. Do not now seek the answers, which cannot be given you because you would not be…
Well, friends, we are coming to the end of 2020. Thanksgiving is next week, and believe it or not, Christmas is just around the corner. And while I can’t say I’m grateful for all the challenges this very weird and wacky year has presented me with, I remain so for…
Well, folks, we made it to the end of a very long political season and an even longer week. I don’t know about you, but I don’t feel a bit relieved. In fact, I have tension and stress trapped in every muscle and joint of my body. And that’s not…
A few weeks back, I listened to a segment on NPR’s “Here & Now” featuring superstar pianist Lang Lang and his latest recording project. I’m still thinking about it. He decided to tackle Johann Sebastian Bach’s masterwork, “Goldberg Variations.” No mean feat, seeing as how there are 30 variations…
Despite the melatonin and Kava tea, the hot baths and weighted blanket, I’m not sleeping very well these days. I haven’t been for months actually. In addition to the “low-burn” stresses that come with adulthood and the utterly average cares of the workaday world, I have felt a…
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