Columns

Screaming. The pain from this trigeminal neuralgia (TN) attack was worse than any previous attack. And there have been aplenty. I couldn’t function! But boy could I scream. It was 8 a.m. and I was stirring awake. My tongue merely touched one of the bottom molars on the…

Paging Dr. Google. OK, maybe I’m being overly dramatic, but The Wall Street Journal recently reported that Google and HCA Healthcare have struck a deal to share data and create healthcare algorithms. HCA plans to use the data system to improve operating efficiency, monitor patients, and even guide some decisions…

Doctors recently told me that the medication I’ve been taking for the last seven years for MS hasn’t been working. This is news that no one wants to hear.  When I first started Tecfidera (dimethyl fumarate), an oral tablet, I was…

Well, this was a first. I’d fallen backward once in my power wheelchair. That was in the back of our mobility van. Hubris told me I could get away with just holding on to the handgrip for a few hundred meters. As ever, hubris was wrong! About six months…

“Why aren’t researchers doing more to find a cure for multiple sclerosis?” “Why isn’t more effort and money devoted to this?” I regularly read comments like these after I write a column about a new disease-modifying therapy (DMT) that’s either being tested or has just been approved. Some, like Multiple…

The other night I was watching the “Pirates of the Caribbean” series, my favorite film box set, and it occurred to me how similar life with multiple sclerosis feels to life on a pirate ship. A particular scene sparked this…

NICE Again Says No to Adding Zeposia to Health System for England and Wales Reading this news, I’m again reminded of the major difference between the healthcare system in the U.S. and those in most of the rest of the world. While the systems outside the U.S. provide most…

One of my favorite moments in Arthur Miller’s “Death of a Salesman” involves a stolen fountain pen. If you’ve not read — or better yet, seen — the play, I can’t recommend it enough. It’s a story about making it big in business and losing yourself in the process.

For any younger readers, and by that I’m guessing 45 and under, may I present the cartoon character Popeye the Sailor Man. He got himself out of scrapes by downing a can of spinach, which supercharged his muscles. There was none of that nonsense of de-stalking raw young leaves…

My tough day started when Brenda asked, “Why do you use that scooter?” Brenda was sitting behind a desk at the Charlotte County Tax Collector’s Office in Florida, where my wife, Laura, and I hoped that transferring our driver’s licenses from Maryland to Florida would be an easy chore.

I find peace at 36,000 feet. Quasi-calm. My surroundings and I move in unison with little friction. The hum of the Boeing 737 lulls me to sleep. Tranquility is a powerful provocateur when turbulence is your norm, a juxtaposition to the bed of billowy clouds below. As if…

When I started hypnotherapy about five weeks ago, my therapist asked me questions about where I felt I was in my journey. He asked me to rate my anxiety on a scale of 1-10, and I said 9. Candidly, it was…

Fatigue Prevalence Remains High in MS Patients Is this a surprise to anyone who has lived with MS for any period of time? Over the many years since my diagnosis, fatigue has been my second most bothersome symptom. (Trouble walking is the first.) In this survey, researchers write that…

After last week’s column about my neurologist declaring that I now have secondary progressive MS, a certain ennui has seeped into me. While this isn’t surprising, it’s also surprising, because I’m on the mood-altering drug fluoxetine. OK, fluoxetine is a regular antidepressant, but “mood-altering” sounds so much cooler.

Are you being treated with a disease-modifying therapy (DMT) and wondering how it might affect the efficacy of an mRNA-based COVID-19 vaccine? If so, a recent study may provide some clarity. The study, published in Therapeutic Advances in Neurological Disorders, looked at 125 MS patients either being treated with…

Life is composed of little awakenings. These epiphanies broaden our horizons. Each invites us to become better versions of ourselves. And while not always welcome, most are necessary for growth. I recently flew across the country to the corporate office of Bionews, the company I work for that…

I challenged myself to run 10 miles in April. I didn’t know at the time how I would make it work, because I was numb from the neck down due to an MS flare. But I was eager to take back control…

Phase 4 Trial Will Test if Ocrevus Can Prevent MS Onset in RIS Patients Yes, you’re reading this right. This trial aims to see if Ocrevus can stop MS before it’s officially diagnosed — when it may be smoldering and presenting a minimum of MS-like activity. In July, this…

Spring is here, a time we’d normally be out and about getting some sun and recharging our souls after a long winter. I certainly look forward to working in the yard, hiking, having outdoor picnics, and taking the occasional road trip. But this isn’t a typical year, is…

Isn’t it just like me to start my column with a physics analogy that is already confusing? Please stick with me, as all will be revealed. My point is that if a black hole is big enough, you might slip through its event horizon without even noticing. There would…

Sometimes it seems as if people with MS are asked to flip a coin to make what’s arguably the most important decision about their treatment: which disease-modifying therapy (DMT) to use. More than 20 DMTs are approved in the U.S., similar to what’s available in the rest of the…

After speaking about hypnotherapy recently with a few people I know, I realized that many of them didn’t know that hypnosis can be used to manage stress and anxiety. One person remarked, “What do I need to say to get you to quack like a duck?” Well, it’s not like…

FDA Rejects Under-the-skin Tysabri for Relapsing MS I expect this decision will be a disappointment for those who had hoped to be able to self-administer highly effective Tysabri as a shot rather than an IV infusion. But I switched from Avonex to Tysabri, because after a few years of…

In honor of MS Awareness Week, observed in the U.K. April 19–25, the MS Society released results of a survey about the barriers that keep multiple sclerosis patients from sharing their health status. Multiple Sclerosis News Today‘s Mary Chapman reported that a whacking one-third have stayed silent about their diagnosis.

What could the Academy Awards and COVID-19 possibly have in common for people with disabilities? Stay tuned, and I’ll tell you. First, the Academy Awards. The documentary “Crip Camp,” about a summer camp for young adults with disabilities, was up for an Oscar. Its co-director and co-star, Jim LeBrecht,…

I am the unlikeliest of warriors. Being called one makes me a little uncomfortable. While I appreciate the sentiment, I feel unworthy of the title. A warrior chooses to battle independent of circumstance. I do so because it is my only option. Multiple sclerosis calls me to fight. Perhaps in…

I recently wrote about my decision to try hypnotherapy. I’d been feeling out of control over my mental state following a multiple sclerosis flare. I finally admitted that I needed help.  I had an initial phone consultation with my…

#AANAM – COVID-19 Often Leads to Flares in MS Patients, Survey Finds I’ve read more than a few social media posts from people with MS who are concerned that the COVID-19 vaccines will cause a flare. National MS Association guidelines say the vaccines may cause a temporary, mild fever…

In her poem “In Blackwater Woods,” Mary Oliver concludes with 10 breathtaking lines: “To live in this world/ you must be able/ to do three things:/ to love what is mortal;/ to hold it/ against your bones knowing/ your own life depends on it;/ and, when the time comes…

I was listening to a BBC podcast recently titled “The Sinister Hand,” about the history of left-handers. It seems that in medieval times, left-handedness was associated with sorcery. (What wasn’t?) It was only relatively recently that left-handed children were no longer forced to write right-handed — sometimes even…