coronavirus

In Training for Solitary Confinement

I’ve just been sentenced to at least 18 months in solitary without time off even for good behavior! Pretty harsh. Luckily, I’m match fit. I’ve already previously done nearly a year trapped in my bedroom with only a commode and basin for most of the day. That was tough.

Online Coronavirus Screening May Not Be Ready for Prime Time

A number of websites are currently offering online coronavirus screening. These aren’t a full-scale test. The online sites read symptoms that you enter and then use artificial intelligence to determine how likely it is that you’re positive for the virus. But there’s a bit of a problem. An investigation by…

Divide and Conquer: Bravery in the Face of the Coronavirus

I donā€™t know if youā€™ve heard or not, but thereā€™s this coronavirus thing going around. And it is disrupting everything from concerts and conferences to schools and my kids’ recreation sports leagues. Donā€™t get me wrong, as a person who lives with multiple sclerosis (MS) and is therefore immunocompromised,…

Let’s All Take a Deep Breath

Take a deep breath, and I don’t mean the kind promoted by fake memes infecting the web to “prove” that you don’t have COVID-19! My deep-breath moment was in a small elevator at my doctor’s office. An able-bodied woman in her 50s bounded into the elevator behind my wheelchair…

Have You Tested Positive for Coronavirus with MS?

What happens if you have MS and you’ve tested positive for COVID-19? How will the disease affect your disease-modifying therapies and your MS? Dr. Barry Singer, (@drbarrysinger), a neurologist who directs The MS Center for Innovations in Care in St. Louis,Ā has posed…

An Outlier with MS, Coronavirus Nears as I Self-isolate

ā€œItā€™s the end of the world as we know it.ā€ ā€” R.E.M. Welcome to the world of COVID-19. Coronaviruses arenā€™t new: severe acute respiratory syndrome (SARS) and Middle East respiratory syndrome (MERS) are both coronaviruses. But this uninvited guest, COVID-19, the illness caused by the novel coronavirus, has…

MS, Coronavirus, and My Crazy Immune System

When I received my multiple sclerosis diagnosis, I was told that my immune system is a little weaker than most people’s and I am more susceptible to getting sick. But I didn’t realize how easy it would be to catch a cold until I did. No matter what…

What New Hell Is This?

There’s nothing like a good, old-fashioned bacteriological pincer attack to take your mind off impending death. I’m not exaggerating about the impending bit. A friend/colleague was supposed to fly to Rome today for a holiday but Italy has just closed. As I write this, it was only yesterday that the…

MS News that Caught My Eye Last Week: Coronavirus Updates, MD1003 Trial Fails to Meet Goals, Sativex and Spasticity Relief, NurOwn Trial Site Announced

Second Phase 3 Trial of MedDayā€™s MD1003 for Progressive MS Fails to Meet Goals This is disappointing news about what scientists had hoped would be another oral disease-modifying therapy for multiple sclerosis. It’s doubly disappointing because MD1003 is aimed at progressive forms of MS and demyelination, and we need…

Guidelines for DMT Use as COVID-19 Spreads

People with multiple sclerosis have unique concerns about the new coronavirus and the COVID-19 disease that it causes. Many of us use disease-modifying therapies (DMTs) that suppress our immune systems and give us an extra element to worry about when we plan our defense against this virus. To help us…

You Know Things Are Bad When the Banks Tell You to Wear a Mask

I know the new strain of coronavirus is bad, but in the face of impending doom, I’m likely to find humor. Anyone who has had more aggressive disease-modifying therapies (DMTs) like Lemtrada (alemtuzumab)Ā and Ocrevus (ocrelizumab) likely has a compromised immune system. After all, this is exactly what…