Hackensack Meridian’s status as comprehensive care center renewed

The National Multiple Sclerosis Society (NMSS) again has certified Hackensack Meridian Neuroscience Institute’s Center for Multiple Sclerosis and Related Diseases at Hackensack University Medical Center as a multiple sclerosis (MS) comprehensive care center. In addition to meeting the NMSS’ core requirements, the certification’s renewal also recognizes…

Personal stories of life with MS highlight March awareness month

From participating in educational programs to sharing stories that illuminate the multiple sclerosis (MS) experience, people nationwide are poised to participate in MS Awareness Month, observed each March. Multiple Sclerosis Awareness Week starts on March 12. The disorder, thought to affect about one million U.S. residents, can cause…

NMSS Names New Jersey Facility Center for Comprehensive MS Care

The National Multiple Sclerosis Society‘s (NMSS) Partners in MS Care program has designated the multiple sclerosis center at Hackensack Meridian Jersey Shore University Medical Center as a Center for Comprehensive MS Care. With the designation, New Jersey now has two Comprehensive MS Care centers serving multiple sclerosis…

‘No Surprises Act’ Aims to Rein In Out-of-network Billing in US

Under rules in the No Surprises Act, insured patients people in the U.S., including those with multiple sclerosis, should no longer receive unexpected medical bills for emergency care or for treatment from out-of-network providers at facilities in their network. The act, which became effective on Jan. 1, prohibits…

It’s March – Make Time for MS Awareness

Note: This story was updated March 8, 2021, to note that tickets for MSAA’s Virtual Art Tour are still available for purchase.  Activities are underway to mark Multiple Sclerosis Awareness Month, set aside each year to call attention to the neurodegenerative disorder estimated to affect almost 1 million U.S.

aHSCT Gets a Boost in US With NMSS Recommendations

Is the United States a step closer to approving a form of stem cell transplantation as a treatment for multiple sclerosis? I believe it may be. That’s because the National Multiple Sclerosis Society (NMSS) has slightly changed its view of autologous hematopoietic stem cell transplantation, or aHSCT. aHSCT involves…

MS Society Spotlights Patient Stories for MS Awareness Week, March 8-14

The National Multiple Sclerosis Society (NMSS) is marking Multiple Sclerosis Awareness Week, March 8-14, by sharing patients’ stories and encouraging participation in fundraising and advocacy efforts. Each year, a week is set aside to heighten awareness of multiple sclerosis (MS), a neurodegenerative disorder that affects nearly 1 million people in…

Corrona Expands MS Patient Registry to Include Genentech

Corrona has expanded its collaborative multiple sclerosis (MS) U.S. patient registry to include Genentech, the first pharmaceutical company to participate. Established in 2017, the Corrona MS Registry is a real-world U.S.-based registry, developed in collaboration with the National MS Society. Its goal is to help guide treatment decisions based on…

Newly Published NMSS Study Confirms Nearly 1 Million Americans Have MS

It’s finally official: Around 900,000 Americans and quite possibly more than that have multiple sclerosis (MS) — easily double the long-accepted figure of 400,000. Since MS News Today first reported on this finding in November 2017, the National Multiple Sclerosis Society (NMSS) study, which reached that conclusion, has…

There’s an App (Maybe Too Many) for That!

How many hours do the pharmaceutical companies think we have in our day? I ask because almost all of them have come up with very slick tools to use, particularly mobile apps, to help us improve our daily lives with MS. Not coincidentally, these apps also provide their…

MS Advocacy Resources are Many

Advocacy comes in many forms, and recently I wrote about what advocacy by individuals might look like. The other type of advocacy we have going for those of us with multiple sclerosis is the work done on our behalf by a large number of nonprofit organizations. Let…

Join Me and Advocate for MS

One of my sisters called to let me know that CNN was doing live coverage of the Women’s March that was taking place in all 50 U.S. states, as well as many other countries. While we talked, one of the speakers came on and observed that the issues facing…

Help for Anyone Newly Diagnosed with MS

Being diagnosed with MS can be more than a bit of a shock at first. Yes, you finally know what you’ve got, what all those symptoms you’ve having mean, and you have heard what your neurologist told you. Well, you may have heard, but you didn’t take it in…

‘My Super Diet Cured My MS! Buy My Book!’

There seems to be general agreement that achieving and keeping an overall level of good health is very important for people living with multiple sclerosis, or with any chronic illness for that matter. And one way to reach that goal, many will say, is to eat a healthy, well-balanced diet. It’s at…