November 22, 2023 News by Mary Chapman Hackensack Meridian’s status as comprehensive care center renewed The National Multiple Sclerosis Society (NMSS) again has certified Hackensack Meridian Neuroscience Institute’s Center for Multiple Sclerosis and Related Diseases at Hackensack University Medical Center as a multiple sclerosis (MS) comprehensive care center. In addition to meeting the NMSS’ core requirements, the certification’s renewal also recognizes…
February 28, 2023 News by Mary Chapman Personal stories of life with MS highlight March awareness month From participating in educational programs to sharing stories that illuminate the multiple sclerosis (MS) experience, people nationwide are poised to participate in MS Awareness Month, observed each March. Multiple Sclerosis Awareness Week starts on March 12. The disorder, thought to affect about one million U.S. residents, can cause…
January 23, 2023 News by Mary Chapman NMSS Names New Jersey Facility Center for Comprehensive MS Care The National Multiple Sclerosis Society‘s (NMSS) Partners in MS Care program has designated the multiple sclerosis center at Hackensack Meridian Jersey Shore University Medical Center as a Center for Comprehensive MS Care. With the designation, New Jersey now has two Comprehensive MS Care centers serving multiple sclerosis…
January 17, 2022 News by Mary Chapman ‘No Surprises Act’ Aims to Rein In Out-of-network Billing in US Under rules in the No Surprises Act, insured patients people in the U.S., including those with multiple sclerosis, should no longer receive unexpected medical bills for emergency care or for treatment from out-of-network providers at facilities in their network. The act, which became effective on Jan. 1, prohibits…
June 1, 2021 News by Marta Figueiredo, PhD Walk MS Fundraising Events To Be ‘Virtual Experience’ in 2021 Due to the ongoing COVID-19-associated restrictions, the National Multiple Sclerosis Society is inviting supporters of its Walk MS events to connect, celebrate, and fundraise for the fight against multiple sclerosisĀ (MS)Ā through a virtual platform. āThe National MS Society creates Walk MS celebrations in every state so participants can…
May 19, 2021 News by Mary Chapman ‘4 Hours at Charlotte’ iRacing Event to Benefit NMSS Set for July 31 The National Multiple Sclerosis Society (NMSS) and iRacing are revving up for a special, July 31Ā motoring event to raise funds for the advocacy group. Called the iRacing 4 Hours at Charlotte Benefiting the National MS Society, the event will stream live at twitch.tv/iracing and marks iRacingās…
March 5, 2021 News by Mary Chapman It’s March – Make Time for MS Awareness Note: This story was updated March 8, 2021, to note that tickets for MSAA’s Virtual Art Tour are still available for purchase.Ā Activities are underway to mark Multiple Sclerosis Awareness Month, set aside each year to call attention to the neurodegenerative disorder estimated to affect almostĀ 1 million U.S.
October 30, 2020 Columns by Ed Tobias aHSCT Gets a Boost in US With NMSS Recommendations Is the United States a step closer to approving a form of stem cell transplantation as a treatment for multiple sclerosis? I believe it may be. That’s because the National Multiple Sclerosis Society (NMSS) has slightly changed its view of autologous hematopoietic stem cell transplantation, or aHSCT. aHSCT involves…
March 5, 2020 News by Mary Chapman MS Society Spotlights Patient Stories for MS Awareness Week, March 8-14 The National Multiple Sclerosis SocietyĀ (NMSS) is markingĀ Multiple Sclerosis Awareness Week, March 8-14, by sharing patientsā stories and encouraging participation in fundraising and advocacy efforts. Each year, a week is set aside to heightenĀ awareness of multiple sclerosis (MS), a neurodegenerative disorder that affects nearly 1 million peopleĀ in…
February 19, 2020 News by Mary Chapman Bike MS Fundraiser Will See Tri Global Energy Back on Saddle for 5th Year Tri Global Energy is again joining with fellow Texans forĀ Bike MS, the nationwide fundraising cycling series of the National Multiple Sclerosis Society (NMSS). Team Wind ForceĀ will saddle up May 16-17 for Bike MS Round-Up Ride 2020. Now in its fifth year, theĀ Dallas area team has…
January 15, 2020 News by Marta Figueiredo, PhD Almost Half of MS Patients Change or Stop DMT Due to High Financial Burden, Survey Shows The high cost of disease-modifying therapies (DMTs) for multiple sclerosis (MS), and the challenging process of insurance approval, lead to treatment gaps or alterations, increased symptoms, and sacrifices in lifestyle, a survey from theĀ National Multiple Sclerosis Society (NMSS) shows. āPeople with MS are paying the price, not…
December 4, 2019 News by Mary Chapman National MS Society Establishes Partnership with Jon Strum’s ‘RealTalk MS’ Podcast When Jon Strum began his āRealTalk MSā podcast two years ago, he did not imagine he soon would have thousands of regular listeners in more than 60 countries. Now, Strum’s popular online audio series has a new partner: the National Multiple Sclerosis Society (NMSS). Strum uses his weekly…
November 14, 2019 News by Grace Frank Vumerity’s $88,000 List Price Not What ‘We Had Hoped,’ National MS Society Says The National Multiple Sclerosis Society has criticized BiogenĀ for the $88,000 yearly list price it placed onĀ VumerityĀ (diroximel fumarate), the newly approved oral disease-modifying treatment (DMT) for relapsing multiple sclerosis. That criticism extends to repeated price increases withĀ TecfideraĀ (dimethyl fumarate), Biogen’s similar oral DMT for…
May 29, 2019 News by Mary Chapman Corrona Expands MS Patient Registry to Include Genentech CorronaĀ has expanded its collaborative multiple sclerosis (MS) U.S. patient registry to include Genentech, the first pharmaceutical company to participate. Established in 2017, the CorronaĀ MS Registry is a real-world U.S.-based registry, developed in collaboration with theĀ National MS Society.Ā Its goal is to help guide treatment decisions based on…
April 17, 2019 News by Joana Carvalho, PhD National MS Society Grants $24.4M to Fund 64 MS Research Projects The NationalĀ Multiple Sclerosis Society has granted $24.4 million to fund 64 multiple sclerosis (MS) research projects and training fellowships worldwide. This is the latest funding initiative by the Society, which is planning to invest a total of $35 million in 2019 to support 340 MS studies ongoing across…
April 3, 2019 News by Mary Chapman Veterans Affairs and National MS Society Team Up to Better Care for Vets with This Disease Complementing itsĀ nationwide network of multiple sclerosis (MS) research and clinical services centers, the U.S. Department of Veterans Affairs (VA) has teamed up with the National Multiple Sclerosis Society (NMSS) to improve care for the veterans it serves and their families. The VA and the NMSS partnershipĀ was formalized…
February 15, 2019 News by Larry Luxner Newly Published NMSS Study Confirms Nearly 1 Million Americans Have MS Itās finally official: Around 900,000 Americans and quite possibly more than that have multiple sclerosis (MS) ā easily double the long-accepted figure of 400,000. Since MS News Today first reportedĀ on this finding in November 2017, the National Multiple Sclerosis SocietyĀ (NMSS) study, which reached that conclusion, has…
November 29, 2018 Columns by Laura Kolaczkowski iConquerMS, National MS Society Collaborate to Amplify Patient Voices I am excited andĀ thankful to share with you a new collaboration between iConquerMS and the National Multiple Sclerosis Society (NMSS). For several years, I have worked with the people at the Accelerated Cure Project (ACP), a nonprofit organization that is the overseeing body for iConquerMS, to…
October 19, 2018 News by Mary Chapman ‘Bike MS’ in New Jersey Raises $4.4M to Support Patient Care, Advance Research To support multiple sclerosis (MS) patients and caregivers ā and cutting-edge research ā the 2018 National Multiple Sclerosis Society for Bike MS: City to Shore Ride 2018 in New Jersey raised more than $4.4 million. The eventās local presenting sponsor, supply chain solutions provider NFI, raised more than…
October 3, 2018 News by Mary Chapman NMSS Praises Federal Funding of Data Collection for MS, Other Diseases A new U.S. law designed to update and expand data on Americans with multiple sclerosis (MS) and similar illnesses will significantly advance disease research, said the National Multiple Sclerosis Society (NMSS). The spending bill, signed into law Sept. 28 by President Trump,Ā provides $5 million to the Centers for…
February 21, 2018 News by Jose Marques Lopes, PhD University at Buffalo to Do Cognitive Training and Myelin Repair Studies University at BuffaloĀ researchers are working on ways to improve multiple sclerosis patients’ cognitive function and to repair damage to the mylein coating that protects nerve cells. TheĀ National Multiple Sclerosis SocietyĀ awarded the researchers more than $1.1 million to conduct the studies. One, āThe Effects of Working Memory…
November 20, 2017 News by Larry Luxner Nearly 1 Million Americans Have Multiple Sclerosis, NMSS Prevalence Study Finds An estimated 947,000 people in the U.S. have multiple sclerosis (MS) ā more than double the long-accepted figure of 400,000 ā according to a newly completed study organized and funded by the National Multiple Sclerosis Society (NMSS). āThis is definitely not what we expected,ā Ā Nicholas G. LaRocca, vice…
September 14, 2017 Columns by Laura Kolaczkowski Thereās an App (Maybe Too Many) for That! How many hours do the pharmaceutical companies think we have in our day? I ask because almost all of them have come up with very slick tools to use, particularly mobile apps, to help us improve our daily lives with MS. Not coincidentally, these apps also provide their…
August 28, 2017 News by Larry Luxner Minnesota Mom with Multiple Sclerosis Plunges into Twin Cities MuckFest Beth Kantor, 42, now knows what it really means to get down in the dirt. For the past four years, sheās volunteered as a first-aid assistant at the annual Twin Cities MuckFest, a fundraising event that theĀ National Multiple Sclerosis SocietyĀ organized in suburban Minneapolis. But this year, Kantor decided it…
August 24, 2017 Columns by Laura Kolaczkowski MS Advocacy Resources are Many Advocacy comes in many forms, and recently I wrote about what advocacy by individuals might look like. The other type of advocacy we have going for those of us with multiple sclerosis is the work done on our behalf by a large number of nonprofit organizations. Let…
April 17, 2017 News by Joana Fernandes, PhD Genentech, Novartis, Sanofi Genzyme Support Nationwide 2017 ‘Walk MS’ Events Genentech, NovartisĀ and Sanofi Genzyme are sponsoring this yearās Walk MS, an annualĀ event to raise funds for multiple sclerosis (MS) and the National Multiple Sclerosis Society (NMSS). Genentech, a division of Roche, returns as an MS Walk sponsor for the second year and will promote the āMS Voiceā…
March 24, 2017 News by Larry Luxner National MS Society Urges Lawmakers to Oppose American Health Care Act, Details Why in Interview Carol Hardaway was diagnosed with multiple sclerosis (MS) in 1990. After years of enduring relapses that brought episodes of complete blindness, numbness, tingling, debilitating fatigue, and short-term memory loss, the longtime resident of Texas ā a state which offers Medicaid only to specific categories like low-income families, pregnant women, and…
January 26, 2017 Columns by Laura Kolaczkowski Join Me and Advocate for MS One of my sisters called to let me know that CNN was doing live coverage of the Womenās March that was taking place in all 50 U.S. states, as well as many other countries. While we talked, one of the speakers came on and observed that the issues facing…
August 26, 2016 Columns by admin Help for Anyone Newly Diagnosed with MS Being diagnosed with MS can be more than a bit of a shock at first. Yes, you finally know what youāve got, what all those symptoms you’ve having mean, and you have heard what your neurologist told you. Well, you may have heard, but you didnāt take it in…
July 21, 2016 Columns by admin ‘My Super Diet Cured My MS! Buy My Book!’ There seems to be general agreement that achieving and keeping an overallĀ level of good health is very important for people living with multiple sclerosis, or with any chronic illness for that matter. And one way to reach that goal, many will say, is to eatĀ a healthy, well-balanced diet. Itās at…