March 25, 2024 News by Lindsey Shapiro, PhD Unmet MS care needs prevalent among patients in Italy: Survey Almost all of the nearly 700 people with multiple sclerosis (MS) in Italy who responded to a patient survey reported at least one unmet MS care need ā ranging from insufficient access to primary care, social interactions, assistance, doctor-patient relationships, and information about the neurodegenerative disease. More than half…
April 4, 2023 News by Margarida Maia, PhD Sensoready Pen easier to use for MS therapy than other devices: Survey Both people with multiple sclerosis (MS) and their nurses prefer the Sensoready Pen for administering Kesimpta (ofatumumab) ā an approved MS treatment that’s injected subcutaneously, or under the skin ā mostly because it’s easier to use than other available devices, a survey study found. With this pen āpatients…
May 3, 2022 News by Marta Figueiredo, PhD Uncertainties of MS Challenging in Scary Ways: UK Patient Survey The uncertainties that accompanyĀ multiple sclerosis (MS) are among the biggest challenges faced by people with the disease, with two-thirds of patients in a recent survey saying “they’re scared for the future” because of such unknowns, theĀ MS Society, which conducted the U.K. survey, reports. āWe may all think the…
March 21, 2022 News by Lindsey Shapiro, PhD MS Patients Voice Satisfaction With Telehealth Use During COVID-19 Telehealth services for physical and mental healthcare were used often by people with multiple sclerosis (MS) during the COVID-19 pandemic and most were satisfied or highly satisfied with such care, according to a study based on survey results. “The findings suggest that telehealth services were well liked during the…
November 23, 2021 News by Yedida Y Bogachkov PhD Autoimmune Patients Want Clearer COVID-19 Vaccine Info Patients with autoimmune diseases, including multiple sclerosis (MS), are uncertain about how to protect themselves against COVID-19, especially with regards to booster shots of the vaccine. According to a national survey by the nonprofit Alliance for Patient Access, these patients are confused due to conflicting information from the…
November 1, 2021 News by Marta Figueiredo, PhD MS Society Report: Neurology Services in UK Struggling to Help Patients The COVID-19 pandemic brought extra strain to already-stretched neurology services across the U.K., markedly affecting multiple sclerosisĀ (MS) care and patientsā health, according to a report from the MS Society. These findings were consistent with those of a 2020 report from U.K.ās Neurological AllianceĀ showing that the pandemic…
August 9, 2021 News by Marisa Wexler, MS US Survey Finds High Rates of Dissatisfaction With Quality of Life, But Satisfaction With Healthcare More than one-third of people with multiple sclerosis (MS) who responded to an online U.S.-based survey are dissatisfied with their quality of life, and more than one in four MS patients are pessimistic about their future, according to the results of the survey, conducted by Multiple Sclerosis News…
May 11, 2021 News by Vanda Pinto, PhD Fatigue Prevalence Remains High in MS Patients The prevalence of fatigue continues to be high among people with multiple sclerosis (MS) despite significant progress over the years in therapies that change the course of the disease, a large survey study in Norway found. The findings also show that the frequency of fatigue is higher in…
April 21, 2021 News by Mary Chapman One-third of Patients in the UK Hid MS Status, Poll Finds An MS Society survey found that about one-third of people with multiple sclerosis (MS) in the U.K. have kept their condition hidden from their partner, family members, employer, or work colleagues. To help mark MS Awareness Week, observed in the U.K. April 19ā25, the nonprofit organization released…
March 16, 2021 News by Joana Carvalho, PhD Minorities With MS Voice Interest in Clinical Trials, But Concerns Evident Regardless of race or ethnicity, people with multiple sclerosis (MS) agree that clinical studies are important and show a willingness and interest in being participants, a primarily U.S. survey found. Those belonging to minority groups, however, are often deterred from taking part in MS studies for reasons that range…
March 12, 2021 News by Forest Ray PhD UK Study to Compare Struggles of Patients With ‘Long-COVID-19’ and MS Researchers in the U.K. are seeking patients who found it difficult to return to work or school after a diagnosis of multiple sclerosis (MS) or COVID-19 to participate in a survey that aims to gather more data on the physical and mental health of individuals with these conditions.
February 17, 2021 News by Marisa Wexler, MS Survey: Patients, Nurses Prefer Sensoready Autoinjector Pen People with multiple sclerosis (MS) and their nurses prefer the Sensoready autoinjector pen for subcutaneous self-administration of Kesimpta (ofatumumab) over other methods for injecting treatments, according to a survey. The survey was conducted by Novartis, which markets Kesimpta. Full findings from the survey will be presented at…
December 22, 2020 News by Mary Chapman MSAA Asks Patients to Take Survey Into Opinions on Clinical Trials People with multiple sclerosis (MS) are encouraged to complete a survey aimed at understanding the experiences and expectations of those with a chronic illness who have either participated in a clinical trial or may in the future. The questionnaire was created by Kayentis, an electronic solutions company, in…
September 22, 2020 News by Marta Figueiredo, PhD Gilenya Remains Favorite S1P Receptor Modulator in US, But Zeposia May Catch Up, Survey Finds Among oral sphingosine-1-phosphate (S1P) receptor modulators for multiple sclerosis (MS), Novartisās GilenyaĀ (fingolimod) remains physiciansā favorite in the U.S., but prescriptions of recently-launched Bristol Myers Squibbās Zeposia (ozanimod) are beginning to rise,Ā according to a survey conducted by Spherix Global Insights. Also, COVID-19Ā not…
September 18, 2020 News by Joana Carvalho, PhD National MS Society Launches Survey to Assess Economic Impact of MS The National Multiple Sclerosis Society, together with the Lewin Group, has launched a survey to assess the economic impact multiple sclerosis (MS) has on patients and their families. In the survey, which can be found here, MS patients and/or their family members are asked to answer…
September 18, 2020 News by Marta Figueiredo, PhD #MSVirtual2020 – Fatigue Tops Survey About Relapsing MS Symptoms FatigueĀ is the most impactful symptom on daily functioning in people with relapsing forms of multiple sclerosisĀ (MS) and is more severe in patients with relapse, pain, depression, and sleep disorders, according to a U.S.-based survey. The results were based mostly on a new MS-specific toolĀ called the Fatigue Symptoms…
September 9, 2020 News by Marta Figueiredo, PhD COVID-19 Pandemic Had Minimal Emotional Impact in Progressive MS Patients, Survey Finds While theĀ COVID-19 pandemic had an impact on the psychological well-being of people with progressive forms of multiple sclerosisĀ (MS), it led to minimal changes in depression, anxiety, and quality of life, according to data from an international survey. This was true even for the 4% of patients who reported…
July 23, 2020 News by Joana Carvalho, PhD UK Health Services Failing MS Patient Needs Under Pandemic, Survey Finds A vast majority ā 7 out of every 10 ā healthcare professionals working with multiple sclerosis (MS) patients across the U.K. believe health services are failing to meet their needs throughout the COVID-19 pandemic, according to an online survey conducted by theĀ MS SocietyĀ and the MS…
July 15, 2020 News by Forest Ray PhD Vital Neurological Care Missing During Pandemic, UK Survey Finds The ongoing COVID-19 pandemic is disrupting vital care and support for those with neurological disorders like multiple sclerosis (MS), according to a recent report from the Neurological AllianceĀ in the U.K. The report is based upon survey responses from over 1,600 people with neurological conditions in that…
June 24, 2020 News by Marisa Wexler, MS University Study of Falls During COVID-19 Enrolling Patients for Online Survey A studyĀ aiming to better understand falls and fall-related injuries in people with multiple sclerosis (MS) and other neurological disorders while self-isolating during the COVID-19 pandemic is recruiting participants. The online study, largely in the form of a questionnaire, is being carried out by the Motor Control Research…
April 24, 2020 News by David Melamed, PhD MS Patients Invited to Join Dutch Survey Study of Working Life Researchers atĀ Vrije University AmsterdamĀ in the Netherlands are invitingĀ employed people with multiple sclerosis (MS) to take part in an online survey, in the form of three questionnaires spaced over two months, on their working life. This study will investigating potential connections between the perceived severity of MS symptoms, and…
March 18, 2020 News by David Melamed, PhD MS Patients Find Cannabis Helpful for Easing Pain, Spasticity, Study Reports About 85% of people with multiple sclerosis (MS) usingĀ cannabis find it to be helpful for pain, and 79% find it eases spasticity, a new study reports. The study, “Cannabis use in people with multiple sclerosis and spasticity: A cross-sectional analysis,” was published in…
January 30, 2020 News by Mary Chapman Nonprofits RARE Courage, All Wheels Up Partner on Survey Seeking to Improve Air Travel for Wheelchair Users Kevin Schaefer hadnāt been in an airport since he was 4 years old, so he had been looking forward to flying from his home in Cary, North Carolina, to Anaheim, California, in June for the 2019 Cure SMA Conference. As it turned out, his experience didnāt go as expected.
January 15, 2020 News by Marta Figueiredo, PhD Almost Half of MS Patients Change or Stop DMT Due to High Financial Burden, Survey Shows The high cost of disease-modifying therapies (DMTs) for multiple sclerosis (MS), and the challenging process of insurance approval, lead to treatment gaps or alterations, increased symptoms, and sacrifices in lifestyle, a survey from theĀ National Multiple Sclerosis Society (NMSS) shows. āPeople with MS are paying the price, not…
December 19, 2019 News by Patricia Inacio, PhD MS Patients Largely Favor Blood Stem Cell Transplants But Lack Understanding, Survey Finds ManyĀ multiple sclerosis (MS) patients consider autologous hematopoietic stem cell transplant (aHSCT) potentially effective in treating their disease, but most report needing more ā and more reliable ā information to make a reasoned decision regarding its benefits and risks, a survey found. Those who are dissatisfied with their current…
October 7, 2019 News by Marisa Wexler, MS RRMS Patients Not Using DMTs More Likely to Have Been Misdiagnosed, Cite Poorer Relationships with Doctors, Survey Says People with relapsing-remitting multiple sclerosis (RRMS) who don’t use disease-modifying therapies (DMTs) are more likely to have been misdiagnosed previously, and to have poorer relationships with their healthcare providers, the results of a new survey suggest. The survey, titled “Multiple Sclerosis In America 2019,” was conducted byĀ …
August 21, 2019 News by Ana Pena PhD Gilenya, Aubagio, Tysabri, Tecfidera Dominate MS Therapy Switches in Europe, Spherix Survey Finds Novartis‘ Gilenya (fingolimod), Sanofi Genzyme‘sĀ Aubagio (teriflunomide), andĀ BiogenāsĀ TysabriĀ (natalizumab) and Tecfidera (dimethyl fumarate) are the top disease-modifying therapies to which patients with multiple sclerosis (MS) have most frequently switched in…
March 19, 2019 Columns by Ed Tobias DMT Choice for Your MS Is Your Decision About 15 disease-modifying therapies (DMTs) are available to treat MS these days. So, choosing which to use can be daunting. I’ve been treated with four DMTs since I was first prescribed Avonex (interferon beta-1a) back in 1996. Each time I’ve switched treatments, my neurologist has suggested a number of…
March 6, 2019 News by Patricia Inacio, PhD #ACTRIMS2019 – Women Lack Guidance About Pregnancy After MS Diagnosis, Survey Says Women diagnosed with multiple sclerosis (MS) say they lack guidance regarding family planning, pregnancy, and breastfeeding, according to a survey. Sixteen percent of those women also reported they didnāt become pregnant due to MS-related concerns. Casey E. Engel, Ā clinical researcher at Weill Cornell Medical CollegeĀ in New York, Ā presented the…
March 5, 2019 News by Jonathan Grinstein #ACTRIMS2019 – Stem Cell Tourism Poses Threat of Complications for Patients, First US Neurologist Survey Says Academic neurologists are seeing many patients with neurological diseases interested in or receiving unapproved stem cell-based treatments, sometimes with negative health and/or financial consequences, according to a U.S. survey of neurologists. The data were reported byĀ Wijdan Rai, MD, from Ohio State University in aĀ poster titled āComplications of Stem Cell…