August 10, 2023 News by Andrea Lobo, PhD Neuro Night event to raise funds for neurological care, research Neuro Night, a philanthropic event set for October in Scottsdale, Arizona, is raising funds for the Barrow Neurological Institute and its mission of supporting the lifesaving care, medical education, and research for neurological diseases. The star-studded night of music, dancing, and fundraising, hosted by the Barrow Neurological Foundation,…
May 24, 2023 News by Mary Chapman Alliance launches research grant program to mark World MS Day To mark World MS Day, which takes place annually on May 30, the International Progressive MS Alliance is introducing a research program to help drive early innovations in care programs for those with progressive forms of multiple sclerosis (MS). Specifically, the program seeks to identify solutions to…
May 18, 2023 Columns by Benjamin Hofmeister Multiple sclerosis is unique and requires personalized care I’ve always liked the phrase “go with what you know.” I suppose I understood it to mean “stick to what you’re good at” or simply, “stay in your lane.” Recently, though, I stumbled on a slightly different meaning that I like even better. āUse knowledge you already have as a…
January 5, 2023 News by Marisa Wexler, MS How ‘Medical Gaslighting’ Affects Women With Chronic Illness: Study Women with chronic health conditions like multiple sclerosis (MS) often experience disbelief and disenfranchisement from healthcare providers when they seek care, a new study highlights. The study, “Womenās Experiences of Health-Related Communicative Disenfranchisement,” was published inĀ Health Communication. There is a long history of discrimination and…
August 27, 2021 News by Mary Chapman Canadians Urged to āTake Action for MSā As the federal election looms in Canada, a nation that has one of the worldās highest rates of multiple sclerosis (MS), the MS Society of Canada is urging patients and advocates to inform candidates about issues of importance to the MS community. The letter-writing and social media campaign,…
March 1, 2021 News by Forest Ray PhD #ACTRIMS2021 – Realities and Challenges of MS in Latin America Editorās note: TheĀ Multiple Sclerosis News Today news team is providing in-depth and unparalleled coverage of the virtual ACTRIMS Forum 2021, Feb. 25ā27. GoĀ hereĀ to see all the latest stories from the conference. Despite the overall low frequency of cases, multiple sclerosis (MS) in Latin America poses substantial socioeconomic challenges…
February 2, 2021 News by Teresa Carvalho, MS European Project Uses Artificial Intelligence to Help Improve Patient Care The recently launched BRAINTEASER project focuses on the use of artificial intelligence (AI) technology to improve the care of patients with multiple sclerosis (MS) and amyotrophic lateral sclerosis (ALS). An initiative of a European consortium, BRAINTEASER could benefit patients, caregivers, and clinicians by enhancing the ability to predict,…
October 9, 2020 News by Steve Bryson, PhD Almost Half of US MS Patients Surveyed Report Using Cannabis for Nerve Pain, Sleep In a nationwide survey of cannabis-based therapy use among Americans with multiple sclerosis (MS), almost half of respondents endorsed such products, primarily for nerve-based pain and sleep disturbances, and the perceived benefits for sleep and pain were highly correlated.Ā The reported…
September 28, 2020 News by David Melamed, PhD MS Patients Report Moderate Health-related Quality of Life, Literature Review Finds Patients with multiple sclerosis (MS) report moderate scores in mental and physical health, as measured by three, well-established quality-of-life scales, according to an analysis of published literature. The study, “Global, regional and national quality of life in patients with multiple sclerosis: a global systematic review and…
November 1, 2019 News by Iqra Mumal, MSc Study: 40% of SPMS Patients in Italy and Germany Unaware of Diagnosis A new study shows that 40% of patients in Italy and Germany who have Ā secondary progressive multiple sclerosis (SPMS) are not aware of their diagnosis, indicating a need for significant improvement in patient-physician communication.
June 6, 2019 News by Marisa Wexler, MS Roche, Sutter Health Testing Floodlight Mobile App That Monitors Patients’ MS Sutter Health, a California-based healthcare group, has partnered with the biotechnology company Roche to test a new mobile app that aims to improve monitoring of symptoms in people who have multiple sclerosis (MS). The app, called Floodlight, “may give neurologists access to meaningful, actionable patient data to…
May 28, 2019 News by Patricia Inacio, PhD Experts Gather for Consortium of Multiple Sclerosis Centers Annual Meeting The latest research in multiple sclerosis (MS), along with the most recent advancements in treatment strategies and comprehensive care, will be presented at the Consortium of Multiple Sclerosis Centers (CMSC) Annual Meeting, which beings today. Running through June 1 at the Washington State Convention Center in Seattle, the…
May 21, 2019 News by Santiago Gisler EMD Serono Launches MS-LINK Research Network to Improve Patient Care EMD Serono, the biopharmaceutical division of Merck KGaA in the U.S. and Canada, announced the launch of the company’s Multiple Sclerosis Leadership and Innovation Network (MS-LINK), an interdisciplinary research community aimed at improving the care of individuals with multiple sclerosis (MS). The program will combine clinical outcomes…
March 6, 2019 News by Mary Chapman Multiple Sclerosis Association of America Putting Focus on Family for MS Awareness Month In recognition of March as Multiple Sclerosis (MS) Awareness Month, the Multiple Sclerosis Association of America (MSAA) is calling attention to the diseaseās impact on families. More specifically, the nonprofit organization is focusing its awareness campaign on the topics “Relationships and MS” and “Spotlighting Care Partner Needs,” according…
February 14, 2019 Columns by Jennifer (Jenn) Powell There Are Angels Among Us: I’m Grateful for the Helpers I like to keep my life as normal as possible. This can be difficult given the physical challenges multiple sclerosis and chronic pain pose. Nevertheless, I try. Saturday was one of those days. I mistakenly assumed I could tackle Costco ā the Goliath to my David. Hence, I must…
February 4, 2019 News by Iqra Mumal, MSc MS Trust Opens ‘Advanced MS Champions’ Program to Bring Better Care to UK Patients Healthcare specialists forĀ multiple sclerosis patients in the U.K. with advanced disease and challenging needs are getting support and recognition through a new program from the MS Trust. Called theĀ Advanced MS Champions Programme, it will recognize six MS specialist “champions” working with people with advanced MS, and their families…
October 30, 2018 News by Mary Chapman First Descents Expands Adventure Program to Include Young Adults With MS Following its well-received pilot program,Ā First Descents has broadened its adventure-based program for cancer patients to include young adults with multiple sclerosis (MS). For 17 years, the non-profit has specialized in free outdoor activities, community building, and skills development for young adults with cancer. In September,Ā First Descents conducted a successful…
July 11, 2018 News by Vijaya Iyer, PhD Touchscreen-based Cognitive Testing is Effective in MS Care, Study Finds Cognitive impairment is common among patients with multiple sclerosis (MS) and can be assessedĀ through touchscreen cognitive tests in clinical care, a British study reports. The study āInvestigating Domain-Specific Cognitive Impairment Among Patients With Multiple Sclerosis Using Touchscreen Cognitive Testing in Routine Clinical Careā was published in the…
June 5, 2018 News by Alice MelĆ£o, MSc #CMSC2018 ā Advances Made in Care of Children with MS, but Challenges Remain, Expert Says While the treatment and care of children and teenagers with multiple sclerosis (MS) has seen many developments in recent years, there are still many challenges to overcome, according to a presentation given by Brenda Banwell, MD. Banwell, who is the chief of child neurology at the Childrenās Hospital…
May 30, 2018 News by Patricia Silva, PhD With Support of AARDA, Autoimmunity Institute Aims to Better Understand and Treat Diseases Like MS The American Autoimmune Related Diseases Association (AARDA) is partnering with Allegheny Health Network (AHN) and its newly openedĀ Autoimmunity InstituteĀ ā based in Pittsburgh, Pennsylvania ā to study the costs of autoimmune disease to patients in the U.S., including that of just getting a correct diagnosis. AARDA, a non-profit that…
April 10, 2018 News by Patricia Silva, PhD Dartmouth-Hitchcock Starts Three-year Study of Ways to Improve Quality of MS Care TheĀ Dartmouth-HitchcockĀ health system is starting a three-year nationwide study of the quality of care that multiple sclerosis patients receive. It will focus on geographic differences in care and quality improvement. The project’s name is theĀ Multiple Sclerosis Continuous Quality Improvement Collaborative study. Its goal is to improve care by sharing…
April 9, 2018 News by Patricia Silva, PhD MSunderstood CafĆ© in Dublin Gives Customers Glimpse into Life of MS Patients A recent pop-up cafe in Dublin allowed customers to experience what it’s like to live with multiple sclerosis (MS)Ā to highlight the urgent need for improved access to care and treatment for MS patients in Ireland. MSunderstood CafĆ© gave customers a small taste of the challenges and symptoms MS…
March 23, 2018 News by Patricia Silva, PhD Consortium of Multiple Sclerosis Centers Puts Together a Special MS Month Agenda The Consortium of Multiple Sclerosis Centers (CMSC) is partnering with a number of organizations duringĀ Multiple Sclerosis Awareness Month in March toĀ provide education, research and services to the MS community. CMSC is a non-profit organization that provides educational programs and resources to MS professionals, healthcare providers, researchers and the…
February 28, 2018 News by Jose Marques Lopes, PhD MS Expert at University of Buffalo Receives Impact Award from National MS Society The National Multiple Sclerosis Society gave its Impact Award to Bianca Weinstock-Guttman, MD, for her research and patient care in multiple sclerosis (MS). According to the society, the award is intended for “a business or individual whose leadership helps ensure those with MS live their best lives.” Weinstock-Guttman…
January 29, 2018 News by Alice MelĆ£o, MSc Registrations Open for Upcoming Nashville CMSC 2018 Meeting Registrations are now open for the 32nd Annual Meeting of the Consortium of Multiple Sclerosis Centers (CMSC), set for May 30-June 2 at the Music City Center in Nashville, Tennessee. The CMSC Annual Meeting is the nation’s largest educational conference and professional development event for healthcare practitioners, researchers and…
December 5, 2017 Columns by Teresa Wright-Johnson Treat Others as You Wish to Be Treated: An Open Letter to Our Spouses and Partners My journey in life has allowed me to connect with and meet people from all over the world. For this, I am blessed. Iāve met many diagnosed with MS and other chronic illnesses. All of our experiences are different and we have varying levels of support. A little while…
November 9, 2017 News by Marta Figueiredo, PhD Survey Helps Improve Communication Between Women with MS and Healthcare Providers A national survey in the U.S. revealed that 98% of women newly diagnosed with multiple sclerosis struggle to discuss important personal concerns with their healthcare team.
September 18, 2017 Columns by Debi Wilson MS Patients Deserve the Best Care As patients, weĀ deserve the best care for our MSĀ and we should accept nothing less. I have had many years of difficulty trying to find adequate MSĀ care since my diagnosis in 2010. I have gone from neurologist to neurologist, even before I knew my symptoms pointed to MS. My…
June 28, 2017 Columns by Cathy Chester 4 Ways to Care for Yourself While Caring for Others How can you care for your MS when a loved one is ill? You want to be able to care for others despite your own daily struggles. As unpredictable as MS is, what is predictable is that your life will be touched by the…
June 23, 2017 News by Patricia Silva, PhD Nurse Advocates for Shared Decision-Making to Treat MS Shared decision-making between patients and their doctors and healthcare providers was considered a critical step in the process of treatingĀ multiple sclerosis (MS), according toĀ an article published in the journal Practical Neurology. The article āShared Decision-making in Multiple Sclerosis Managementā was written by Amy Perrin Ross, a board-certified…