I used to think I was immune to illness. Getting sick was what my patients did. My multiple sclerosis (MS) diagnosis turned this belief, and many others, upside down. When the chaos of the diagnosis settled, I realized that becoming a patient was the most profound lesson I could…
Daily living
Measurements from smartphones and wearable devices like smartwatches can reliably provide clinically meaningful data to monitor multiple sclerosis (MS), a new study from Switzerland reports. While daily data from such devices did not prove sufficiently reliable in this small study, information generated weekly — across more than 45 different…
Kelly Earley teaches family and consumer sciences at a middle school. (Photos courtesy of Kelly Earley) Day 28 of 31 This is Kelly Earley’s story: I have been living with multiple sclerosis (MS) since I was 17 years old but was only officially diagnosed when I was 24…
Jen Willis treks to the Lobuche high camp in the Everest region in Nepal. (Photos courtesy of Jen Willis) Day 27 of 31 This is Jen Willis’ story: It was June 12, 2008. I was 37 years old and had given birth to my third child just six days…
Rochelle waits for a virtual appointment with her doctor in 2020. (Photos courtesy of Rochelle) Day 25 of 31 This is Rochelle’s story: I’m writing this on the anniversary of “that day.” I was diagnosed with relapsing-remitting multiple sclerosis, or RRMS, in March 2020. How fitting that I…
Kristin Hardy considers herself happy and healthy — absent 22 years with PPMS, of course. (Photos courtesy of Kristin Hardy) Day 22 of 31 This is Kristin Hardy’s story: In 2001, I started experiencing symptoms of what rapidly manifested as primary progressive multiple sclerosis (PPMS). Like a…
I have not been kind to my body over the years. I was very active in my old life, although I was a little clumsy even before multiple sclerosis (MS) started affecting my balance. Active and clumsy aren’t a great combination. I accumulated plenty of bumps and bruises along…
Damian Washington is pictured shooting a music video. (Photos courtesy of Damian Washington) Day 20 of 31 This is Damian Washington’s story: Having multiple sclerosis (MS) is a terrible way to meet wonderful people. The type of camaraderie that some MSers share leads to some of the most…
As an active 3-year-old, I spent every minute of recess on the monkey bars. I was hyperfocused on getting to the other side. I’d fall and try again until my hands blistered from the hot metal in the Florida sun, and then repeat this cycle the next day. Grit is…
Nora Cherubini poses with Stanley, her service dog, during a beach walk. (Photos courtesy of Nora Cherubini) Day 18 of 31 This is Nora Cherubini’s story: “Thank God it’s not MS … because you would wind up in a wheelchair.” This is what a neurologist told me after…
Ahna Crum wears glasses with orange lenses and prisms to correct for color discrepancy, contrast loss, and double vision. (Photos by Sarah Brewington) Day 16 of 31 This is Ahna Crum’s story: “A great deal of intelligence can be invested in ignorance when the need for illusion is deep.”…
Leigh Anne Nelson wears the jersey of her favorite team, the Kansas City Chiefs. (Photos by Brett Nelson) Day 15 of 31 This is Leigh Anne Nelson’s story: During my first experience with what I believe was an MS-related illness in 1996, I had numbness and loss…
Aside from a few unpleasant moments, I enjoyed my time as a medic in the U.S. military — so much so that when I began to slow down noticeably, I decided to continue in that field by applying to become a physician assistant (PA). I initially wanted to…
Surjeet Kaur’s MS journey involves sacrifice, but also awareness and positivity. (Photos courtesy of Surjeet Kaur) Day 14 of 31 This is Surjeet Kaur’s story: It was an ordinary day in November 2012 when I woke up with a stiff neck. I tried to brush this off thinking I…
At the age of 40, I’ve never passed my driving test. I know that’s shocking. Here in the United Kingdom, we must pass two sections to be licensed to drive: a theory test and the practical test. I’ve passed the theory part three times but was never able to pass…
Alex Ramirez stands outside of his home. (Photos courtesy of Alex Ramirez) Day 13 of 31 This is Alex Ramirez’s story: In January 2018, I started to feel terrible in a way I can’t put into words. I went to the hospital, and after multiple MRIs, I was prescribed…
The U.S. military loves abbreviations and acronyms. So many of these are learned during a soldier’s first year that, to civilians, a conversation between service members might sound like a foreign language. It can be amusing, but the intention of this method of condensing words is not to confuse. It’s…
Antonio Perez walks with his cane in the summer of 2022, saying his illness wasn’t that bad during that time. (Photos courtesy of Antonio Perez) Day 7 of 31 This is Antonio Perez’s story: Perez enjoys a glass of red wine. Hello, my name is Antonio Perez and…
Julie Stamm was diagnosed with multiple sclerosis in 2007. (Courtesy of Colorado Parent magazine) Day 5 of 31 This is Julie Stamm’s (@iamstamm) story: I was officially diagnosed with multiple sclerosis (MS) on Jan. 8, 2007. While I can date my symptoms back to six years before that,…
Multiple sclerosis (MS), a neurodegenerative disease thought to affect more than 1.8 million people globally, can impact many aspects of daily life. So for Multiple Sclerosis Awareness Month, observed each March, this year’s focus is on the MS experience and the importance of social connections. Multiple Sclerosis…
Getrude Kamuyu, in her cap and gown, stands with her mother, Grace Kamuyu. (Photos courtesy of Getrude Kamuyu) Day 1 of 31 This is Getrude Kamuyu’s story: At Easter in 2022, I developed sudden pain in my left eye. Then blindness started to creep in, moving in quickly. Three…
Just three years before I was diagnosed with multiple sclerosis (MS), I was on what was to be my last overseas tour with the U.S. Army. One day while dozing during a lull in a mission, I was awakened by the sensation of someone standing over me.
Last month, I told you that while I’m not a psychologist, I’m fascinated by the subject. I should probably make a list of things I don’t do but still find interesting. One of those professions we can add to the list is historian. I enjoy reading and learning about…
Under a new agreement, Biogen is transferring ownership of certain digital health solutions — including two existing mobile applications, or apps, offering lifestyle support to people with multiple sclerosis (MS) — to Aptar Digital Health. The collaboration calls for Aptar, part of AptarGroup, to handle product design…
Valentine’s Day is less than a week away. If you haven’t gotten anything for your significant other yet, let me add to the holiday’s commercialization by reminding you that time is running out. It really wasn’t my foremost intention to spur anyone into panicked action. This column isn’t even about…
Summer planning has started for my family, which means trying to arrange trips and time together. Before I was diagnosed with multiple sclerosis (MS), we could simply book an excursion that looked enjoyable. But now, thanks to my mobility issues, planning is slightly tricker. In the…
A smartphone application called Floodlight Open may help in tracking areas of function in people with multiple sclerosis (MS), but more work is needed to improve patient adherence to using the app in a real-world setting, according to a new study. Researchers tested Floodlight Open’s use among more than…
When I was in the military, I wore several different hats. A U.S. Special Forces team has only 12 soldiers, so we couldn’t afford for anyone to know just one trick, no matter how good that trick might be. In addition to each person’s primary job, everyone had to know…
For someone with multiple sclerosis (MS), going to a venue to see a concert or sporting event can be an experience filled with uncertainty — especially if, like me, they’re using a mobility aid. For me to do it, I have to ask myself several questions: How will I…
It wasn’t a good morning. I was dragging my cement-pillar legs around the kitchen and grew frustrated as I lurched from the refrigerator to the counter to feed the cat and the dog. I’d propped my two canes against the counter, but they’d slid to the floor — not once,…