perspective

Focusing on What I Can Do Rather Than What I Can’t

This year, Iā€™ve been acutely aware that my body isn’t perfect. Sometimes it doesnā€™t move well. Sometimes it cuts off sensation in my limbs without notice. Sometimes it gets wiped out from fatigue. Sometimes itā€™s like MS shakes up my head so hard, like a can of soda, that I…

Let Go and Live

Six weeks ago, Abby, my golden retriever, had a seizure. I was sitting behind her when she began to rock; I have never moved so fast. I could only see the bloodshot whites of her eyes as she whimpered lightly and I began to wail. I intuitively hugged her,…

You Only Think You Know

When I tell people I have multiple sclerosis, I usually get one of three responses: ā€¢ “Oh, no! I feel so bad for you!” (Pity) ā€¢ “Is that the one with the telethon?” (Confusion) ā€¢ “I know all about that disease! My sister-in-lawā€™s cousinā€™s college roommate has…

Keep Taking the Steroids!

Six months ago, I was a reasonably svelte 14 and a half stone. I’m not sure how I managed it, but it was certainly before pitting edemaĀ wrapped itself around my shins and calves like bulbous sacks of wineskins. I managed to get on the scales a while…

The Heart of It All and Healing from Within

ā€œThe very beating of your heart has meaning and purpose.ā€ This is a quote from Andy Andrews in “The Butterfly Effect.” I have referenced this quote on several occasions. It speaks volumes because it affirms that we are here on purpose, not by chance. I did an…

One Man’s Playground is Another Man’s Horror

Multiple sclerosis has a way of messing with oneā€™s head. Whether itā€™s emotional or psychiatric disorders, fatigue, brain fog, or physical problems, thereā€™s a lot to wrestle with. And to effectively battle this disease requires you to be in a certain state of mind. Let me give…