Silver Linings - a Column by Jennifer Powell

suffering

Jennifer is the Director of Community Engagement for BioNews (Multiple Sclerosis News Today is a subsidiary of BioNews). Jenn is also theĀ  host of the Multiple Sclerosis podcast, as well as a featured columnist. An active advocate in the MS community, Jenn imparts her hopeful optimism into real-life challenges facing the MS community. Now with secondary-progressive MS, Jenn continues to elevate the patient voice to better the lives of those living with MS. When not writing, Jenn enjoys volunteering with golden retriever rescue, traveling, and spending time with family and friends. Jenn resides in Orange County, California, with her husband and golden retriever.

Filtering Ads and Choosing What’s Best

I remember a time without televised ads promoting medication. We had access to information through our physician or a card catalog. Pharmaceuticals are now a mainstay on our airwaves. And although prevalent, these ads previously had been inapplicable to me. Until now. An ad for Ocrevus (ocrelizumab) aired a…

The Journey to Self-love Is Long and Painful

At 17, I began a 20-year odyssey with endometriosis. The doctor’s platitudes and disbelief were astonishing and leveled my sense of self. The findings of severe endometriosis served as a painful “I told you so.” My life became a whirlwind of physical and emotional upheaval. For a young woman,…

Leaving Fear Behind and Learning to Trust

My eyes are closed. Both arms are in a loose ā€œXā€ across my chest. I feel my heartbeat quicken as I lean back. I fall. For a moment in time, I am afraid. But before fear takes over, a dozen hands cradle me instead. A trust fall. This team-building exercise,…

We All Have Bad Days

Mama said there would be days like this. I just never thought there would be so many. After three days of insomnia, I am heavily fatigued and weary. I wait, bleary-eyed, for signs of pain to appear, watching the sunrise and praying for renewal. As if on cue, the birds…

I Will Not Be Sidelined in the Game of Life

It is the most wonderful time of the year. Sounds of commentator calls, audibles, and cheering crowds fill the house. A familiar sense of calm envelops my being. It is football season. I sometimes wonder how I survive the offseason. I was raised in the San Francisco Bay Area…

Judging a Book by Its Cover

I find airport newsstands alluring. I am drawn toward the litany of books. Shelves of colorful covers beckon to me, bestsellers emblazoned with enticing accolades. I need those books, I tell myself, so I buy two. Fortunately, my shallow criteria are confined to airport literature. Life most certainly imitates art.

Loving Yourself in Sickness and Health

I am frequently commended for my demeanor. For my strength amid pain and adversity. For my optimism and happy disposition. For making the most of my circumstances. I love my steadfast faith. I love my fierce determination. I love my decision to combat pain and adversity with hope. I love…

Consortium for a Cure: Witnessing Hope

Our emotional selves are unique to each of us. The catalysts that elicit tears and fears vary. We feel emotions rise and await their eruption. Contrarily, they can catch us off guard. Sometimes a seemingly benign stimulus can invoke strong feelings. I should know better than to assume that anything…

The Unlikely Warrior: Finding Purpose with SPMS

I am balancing my laptop on one pillow and a leg brace. I have myriad MS-related health issues; alas, this is not among them. AfterĀ meniscus surgery, aggressive arthritis, and a loss of cartilage, I’m facingĀ knee replacement. Due to a busy schedule and the sustaining effects ofĀ RituxanĀ (rituximab),…

Losing Fear of Change with SPMS

I am a strategist. I think things through. This attribute is borne of necessity. A birthday dinner is not complete without my exit plan. As I wait to be served, I realize the booth is a bit low. I smile, blow out my candle, then scope out things…

Intimacy and MS: A Lesson in Discovery

Living with secondary progressive multiple sclerosisĀ is a lesson in discovery. I strive to manage life with MS one day at a time. My disease touches all aspects of my life. One of the elements it affects is intimacy: closeness, affinity, warmth, trust, and mutual affection. Intimacy is friendliness,…