Daily living

I thought I finally had this bladder thing licked. After years of urinary urgency and frequency, I’d been doing much better. I was sleeping at least seven hours a night without having to go to the bathroom, and bathroom trips were less frequent in the daytime, too. When traveling…

I don’t know about you, but last week passed in a blur. I typically enjoy Thanksgiving, but this year, things were a little wonky. My husband’s grandfather passed away a month or so ago, so we weren’t about to ask his grandmother to prepare anything. My mother-in-law and I decided…

“Shoes are the quickest way for women to achieve instant metamorphosis.” — Manolo Blahnik As the holidays approach, I’m reminded to be thankful for what I have. I was diagnosed with relapsing-remitting multiple sclerosis (RRMS) at 26 years old, and when I became paralyzed, I thought I’d never…

A few weekends ago, I had what I’ve described as a mini midlife crisis. Things with the kids were a mess, my husband was out of town again (to help with a building project on the family farm), and surrounded by the mess and bother of everyday life, I couldn’t…

I had a great night’s sleep the other night. I fell asleep quickly and slept straight through the night for nearly seven hours. When I got up in the morning, I felt refreshed, which is exceedingly rare these days. Plus, it even happened a few more times in the past…

It was my birthday last Friday. No cards, please; it’s far too late. Anyway, considering the world’s supply chain disruption, I’d be well on the way to my next by the time it arrived! Just a small social gathering of immediate family. Six of us demolished 150 quids’ —…

As the music started, the crowd stood and cheered. I followed suit. Well, almost. I stood with more intention than balance. And as I did, I veered toward the person seated in the next row. Hello, secondary progressive MS. Two years ago, I went to see Paul McCartney at Dodger…

My wife, Jane, woke me up at 9 a.m., announcing, “Welcome to Groundhog Day!” Every day starts the same. Yes, I know the day always started at 6 a.m. in the film, but even 9 a.m. is a terrific shock to my system. Never in my life have I…

“You’re my summer that fades/ To these cold autumn days/ You’re my keepsake, my friend, and my fears/ You’re the strength that’s inside and I swear on my life/ I will always be there by your side.” — Amber Pacific Autumn has always been my favorite time of year. I…

Whether we are aware of it or not, music infiltrates every part of our daily lives. It may be as subtle and inadvertent as music playing in the background at the grocery store or as obvious and intentional as jamming to tunes on our own playlists. But music also can…

“Rage, rage against the dying of the light,” Dylan Thomas wrote in his famous poem about us humans fighting, against all odds, the inevitable moment of death. Oh, yes, I went there. I’m starting with the dark and seeing if I can pull it back with a swath of…

I was tryin’ to find lots of things to do while being trapped at my desk because of a wheelchair mishap. Apologies for my adaption of Bing Crosby’s rendition of that happy-go-lucky song “Busy Doing Nothing.” I was trapped because at 8 p.m. last Friday night, the wire that…

This week, I had a conversation with my eldest son about the importance of saying “I’m sorry,” and making amends when you harm someone or have done something you shouldn’t have. He had made a mistake, spoke words in anger, and felt terrible about it later. I explained to him…

“Sweep around your own front door before you try to sweep around mine.” These lyrics are from a spiritual song on my playlist. They’ve challenged me to assess myself while simultaneously liberating me from the judgment of others. Life happens on its own terms, and the only…

The Accessible Product Design Alliance has released a statement calling for changes in products and packaging design to assure equal accessibility among consumers, including those with disabling disorders such as multiple sclerosis (MS). Composed of 11 nonprofit health consumer organizations in Australia and New Zealand — including MS…

I walked outside a couple days ago and something amazing happened. The heat didn’t slap me in the face. The humidity didn’t sit on my chest like some sort of weird, invisible lead weight. (And let me tell you, in Georgia, the heat and humidity are beyond oppressive. The second…

Temedica, a Munich-based digital health company, has joined efforts with Roche to launch a free mobile app that aims to improve care for people with multiple sclerosis (MS) living in Germany. Available in German only, the Brisa app will make a record of individual disease progression in…

In the first installment of our new series, “Expert Voices,” Multiple Sclerosis News Today asked Martin Shenkman, a certified public accountant and lawyer, to answer some of your questions related to financial planning for people with multiple sclerosis (MS).  Shenkman is an attorney in private practice in Fort Lee, New…

Bladder and bowel problems, which affect more than half of multiple sclerosis (MS) patients, should be assessed and monitored regularly to better adapt treatment plans and ultimately improve patients’ quality of life. That is among recommendations of Jane Young and Joan Bradley, two nurses with experience in MS care and…

I watch my multiple sclerosis progress. I see it progress in moments of defeat. I think of it when I fall. I curse it when I break or can’t open things. I grieve over it when my body fails me. I watch as my independence slips away like…

I wish I could walk a mile in my shoes, but even with a new pair, that’s not going to happen. My MS limits me to about 100 steps while using two canes and a functional electrical stimulation device strapped under my left knee. Because walking is so difficult,…

I’ve had pee problems for as long as I’ve had multiple sclerosis. Many folks with MS have issues, including urinary urgency, frequency, or both, bladders that don’t empty completely, or streams that don’t start when you need to go. There are medications to treat these problems. The best known…

To the person who left the note on my windshield: I wish you would have asked. I would have told you that I have secondary progressive multiple sclerosis, a neurological disease that impairs my ability to walk. My MS has worsened over time and will continue to progress. I can’t…

Meeting people and dating is challenging for people with multiple sclerosis (MS), but the experience of dating is highly personal and influenced by past experiences and beliefs, a small study reveals. The study, “Dating with a Diagnosis: The Lived Experience of People with Multiple Sclerosis,” was published in…

This week, my sons returned to school. Both are now in middle school, and let me tell you, this freaks me out deeply as a mother. When we adopted them, the younger boy was only beginning kindergarten, and today, I sent him into the unknown hallways of sixth grade. (Granted,…

It’s all happening at once. Yesterday, a box turned up with my new lymphedema wraps, which use compression to help reverse my lymphedema symptoms. I’ve been waiting for the wraps for nearly a month. It turns out I’m such an unusual size that they had to be imported from…

It’s with a heavy heart that I write this. I don’t want to, but I have to do what’s right. This will be my last column. Lately, things have been crazy busy for me, with a mix of expected events, such as moving to a new home, and a few unexpected…

This year, I’ve been acutely aware that my body isn’t perfect. Sometimes it doesn’t move well. Sometimes it cuts off sensation in my limbs without notice. Sometimes it gets wiped out from fatigue. Sometimes it’s like MS shakes up my head so hard, like a can of soda, that I…

On July 10, I did something I never thought I’d do: I got a tattoo! I’ve always been fascinated by body art, and any time I see someone with ink I admire, I always ask a ton of questions about it. Sure, I ask how much time it took and…

Any British comedy aficionados among you will know “He’s fallen in the water” is the most famous of all the innumerable catchphrases of “The Goon Show.” That show was the root of Monty Python and every bit of the new wave of comedy that swept through our country.