Last week, something unexpected happened during one of my shared medical visits with patients. I wasn’t expecting shame to show up. We were deep in conversation about how a diagnosis can unravel a person’s identity and how grief often follows when our sense of self begins to slip away.
diagnosis
Octave Bioscience’s Multiple Sclerosis Disease Activity (MSDA) test, which uses data from blood biomarkers to assess multiple sclerosis (MS) disease activity, is now available across all 50 U.S. states to help guide clinicians’ decisions about care. Octave said the test received certification from the New York State Clinical…
New diagnostic criteria and biomarkers, how to manage MS in older patients and children, and vaccine recommendations are among topics covered in a new set of guidelines for best practices in multiple sclerosis (MS) care. The Consortium of Multiple Sclerosis Centers, a network of more than 15,000 clinicians…
Assessing multiple sclerosis (MS) disease activity using Octave Bioscience’s MS Disease Activity (MSDA) blood biomarker test can help guide clinicians’ decisions about care, a study showed. “Our goal is to empower both providers and patients with precision tools that transform MS care,” Doug Biehn, CEO of Octave, said…
Aranzazu Calzado, known to friends as Zazu, has lived in Houston, Texas, since 1996 after moving from Spain. She was diagnosed with primary progressive multiple sclerosis in 2021 and faces the challenge with resilience, relying on God, family, and friends as her support network. She finds joy in helping…
I remember the day of my relapsing-remitting multiple sclerosis diagnosis, when I didn’t understand the weight of what I’d been told. I was only 17 years old and didn’t know what questions to ask, what the future held, or what I should’ve felt after hearing those words. Aside from feeling…
People of Asian descent tend to be younger than white people when they first exhibit symptoms of multiple sclerosis (MS), a U.S. study reports. Asians also tended to be younger at the time of their diagnosis. No differences were found in demographics or disease characteristics between Asian patients…
From left, Adela Puente and her niece, Desiree Lama, spend time together in downtown San Antonio. (Photos courtesy of Desiree Lama) Day 31 of 31 This is Adela Puente’s story: Lama and Puente share a hug at Desiree’s college graduation. Being the youngest of six, I always wished…
Dimika V. Cavalier is shown in a photo she uses for advocacy work. (Photos courtesy of Dimika V. Cavalier) Day 26 of 31 This is Dimika V. Cavalier’s story: My journey with multiple sclerosis (MS) began in my early 30s. I was having episodes of vertigo that would…
Evidence of neurological damage over time — known as dissemination in time, or DIT — may not be necessary to reach a diagnosis of multiple sclerosis (MS) for all patients, according to a report by U.K. researchers. Traditionally, an MS diagnosis would typically require both DIT and DIS,…
Artificial intelligence (AI) platforms did better than most neurologists at answering a 20-question assessment about multiple sclerosis (MS) in a recent study, suggesting that AI may be a helpful tool for MS care. Neurologists with an MS specialty scored as well, on average, as the AI platforms, while neurology…
Ronald Harris shows off his new power wheelchair. (Photos courtesy of Ronald Harris) Day 17 of 31 This is Ronald Harris’ story: Harris is seen working from home, using a desk that accommodates his power chair. My journey with multiple sclerosis (MS) began with an unexpected diagnosis…
Yara Essam takes a selfie in a mirror during one of her many gym sessions. (Photos courtesy of Yara Essam) Day 14 of 31 This is Yara Essam’s story: I’d always been fairly healthy as a child — barely getting sick, eating well, and constantly moving my body. That’s…
Izzy Abbas loves to go camping, but he also enjoys traveling internationally, Here, he is shown visiting Turkey. (Photos courtesy of Izzy Abbas) Day 11 of 31 This is Izzy Abbas’ story: Camping — being out in the woods and mountains — is something I’ve always loved. Despite all…
Sarah Zichterman poses for a photo one year after her MS diagnosis. (Photos courtesy of Sarah Zichterman) Day 10 of 31 This is Sarah Zichterman’s story: Getting diagnosed with MS was not something I thought would happen to me at age 24. One day in January 2024, I woke…
Naty Caez shares about her life with MS on Instagram. (Photos courtesy of Naty Caez) Day 9 of 31 This is Naty Caez’s story: In September 2024, I was diagnosed with multiple sclerosis (MS). Everyone’s diagnosis story is going to look a little different, but for me, it took…
Amy Behimer sits in a rocking chair in her home. (Photos courtesy of Amy Behimer) Day 7 of 31 This is Amy Behimer’s story: When I was first diagnosed with multiple sclerosis (MS), I thought my chance at a healthy, happy life was gone. As a pharmacist,…
A new model that combines genetic and symptom-based risk scores to predict the development of multiple sclerosis (MS) could help to accelerate the disease’s diagnosis, and allow patients to receive earlier treatment, a team of U.S. researchers noted in a study. In a presentation detailing this work at this…
Proposed revisions to the McDonald criteria, a set of diagnostic guidelines for multiple sclerosis (MS), may help diagnose people who could have been missed under earlier versions, according to a recent analysis. That includes people with radiological-only onset, when there are signs of disease on MRI scans but…
Sanam Saeedi resolved not to allow a diagnosis of MS to determine the course her life could take. (Photos courtesy of Sanam Saeedi) Day 1 of 31 This is Sanam Saeedi’s story: For years, I lived with numbness and tingling in my toes, but dismissed it as a result…
Over the past decade, diagnoses of multiple sclerosis (MS) in Finland have become faster and treatments now follow the latest evidence, with about five times as many patients receiving high-efficacy disease-modifying therapies (DMTs) as first-line options, a study finds. Drawing on registry data, researchers found that diagnoses are…
In the five years leading up to a multiple sclerosis (MS) diagnosis, children and adolescents often experience obesity and symptoms such as sensory disturbances and vision problems — potential early signs of MS that could help in diagnosing the condition, according to a new study. Indeed, the study reports…
A revised version of the McDonald criteria, a set of guidelines used to diagnose multiple sclerosis (MS), is expected to include additional features that will help doctors make an accurate diagnosis at an earlier stage of the disease, even if patients have yet to manifest clinical symptoms. The…
Identity development is a deeply unique process in which people establish a clear sense of self. Different stages occur during childhood, adolescence, and adulthood. The process of developing an identity has always fascinated me because there are many different factors that influence us and shape who we become.
A patient advocate shares how sudden vision loss in high school led to an unexpected MS diagnosis, profoundly shaping their resilience and deepening their commitment to supporting and guiding others through similar challenges.
Before I was diagnosed with relapsing-remitting multiple sclerosis at age 17, I was just a young adolescent eager to attend college but uncertain about my path. However, after my diagnosis, which happened during my senior year of high school, just a couple months before college applications were due,…
Using machine learning to analyze eye scans can help detect slight changes that may be early signs of multiple sclerosis (MS), potentially aiding in early diagnosis of the disease, a study found. The study, “SLO-Net: Enhancing Multiple Sclerosis Diagnosis Beyond Optical Coherence Tomography Using Infrared Reflectance…
Levels of the immune cell protein CHIT1 at diagnosis, taken from the spinal fluid via a spinal tap, may strongly predict how fast disability progression will occur in people with multiple sclerosis (MS), a new study suggests. Compared with standard clinical measures used to predict disease progression — such…
Can Do Multiple Sclerosis is putting together a two-day program to help newly or recently diagnosed patients and their caregivers learn more about multiple sclerosis (MS), meet others with the disease, and find strategies to adapt to a new lifestyle. Called Take Charge, the free program will…
A panel of 20 proteins in blood may be used to quantify disease activity, namely relapses and lesions, in people with multiple sclerosis (MS), a new paper proposes. “A multi-protein panel like the one developed in this study has the capability to capture the state of a patient’s MS…
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