Upon Reflection, I’m Determined to Seize the Day
Do you think about death? I do ā a lot. I mean, like almost every day. Don’t get…
Do you think about death? I do ā a lot. I mean, like almost every day. Don’t get…
Symptoms of Sjƶgrenās syndrome, including dry eyes and mouth, were observed among 16 people with multiple sclerosis (MS), three of whom met the diagnostic criteria for Sjƶgrenās in a recent study. Given this low number, however, it’s unclear if there is a true association between the two diseases,…
āMost of the time, the greatest rewards come from doing the things that scare you the most. Maybe you’ll get everything you wish for. Maybe you’ll get more than you ever could have imagined. Who knows where life will take you? The road is long, and in the end, the…
Spring is rapidly approaching. Itās warming up outside. The trees are starting to bloom. And inside our home, I am once again plotting to refresh the place. Out with old decorations, and in with the new! Declutter that closet! Donate the table and chairs that still look great because you…
Paramagnetic rim lesions, a specific form of inflammatory damage to the brain, are rarely found in people with disorders other than multiple sclerosis (MS), according to a study in adults with suspected MS. Its findings suggest that looking at PRLs could be useful for diagnosing the disease. Brain Renner,…
A new imaging technique called magnetic resonance spectroscopic imaging, or MRSI, could be useful for diagnosing and monitoring multiple sclerosis (MS), according to a small study. “If confirmed in longitudinal clinical studies, this new neuroimaging technique could become a standard imaging tool for initial diagnosis, for disease progression and…
A new machine learning algorithm ā designed to analyze healthcare records ā could help in diagnosing multiple sclerosis (MS) sooner by identifying patients’ symptoms earlier. The algorithm, devised by scientists at the University of California San Francisco (UCSF), was described in a study titled “Embedding electronic health records…
āRock bottom is the end of what wasnāt true enough. Begin again and build something Truer.” ā Glennon Doyle The first of our four pregnancy losses were our twin daughters in 2013, which happened nearly halfway through my pregnancy. Three years later, the first symptoms appeared that would eventually would…
The butterfly effect is an idea coined by mathematician and meteorologist Edward Lorenz that is based on chaos theory. Lorenz pondered whether the flapping of a butterfly’s wings in one part of the world could cause a hurricane on the other side of the world. I believe this…
The Multiple Sclerosis Association of America (MSAA) is calling for submissions for its 2022 MSAA Art Showcase, an initiative that celebrates the work of artists who haveĀ multiple sclerosis (MS). The showcase, which began in 2009, gives MS patients in the U.S. the opportunity to share their…
Innodem Neurosciences is teaming up with Novartis Canada on a breakthrough clinical trial to evaluate if Innodemās digital biomarker eye-tracking technology can monitor disease progression in people with multiple sclerosis (MS). The trial will test Innodem’s “easy-to-use, affordable technology,” which works using visible light, with no special infrared…
Winston Churchill once wrote, āI pass with relief from the tossing sea of Cause and Theory to the firm ground of Result and Fact.ā This very much sums me up as a person. It was also how I felt when I was diagnosed with relapsing-remitting MS 10 months…
People newly diagnosed with clinically isolated syndrome (CIS) or multiple sclerosis (MS) frequently experience pain, fatigue, depression, and anxiety in the first year after diagnosis, a new study finds. Fatigue was reported by almost two-thirds of new patients, and half experienced pain. Many individuals experienced multiple symptoms simultaneously,…
Meeting people and dating is challenging for people with multiple sclerosis (MS), but the experience of dating is highly personal and influenced by past experiences and beliefs, a small study reveals. The study, āDating with a Diagnosis: The Lived Experience of People with Multiple Sclerosis,ā was published in…
Many people with multiple sclerosis (MS) start experiencingĀ symptoms of the disease several years before being diagnosed, a new study suggests. While it has long been known that people with MS tend to seek medical attention more frequently in the years before diagnosis than those without the disease, there…
The Multiple Sclerosis Society of Canada‘s (MSSC) MS Walk fundraiser is still on for this month ā May is MS Awareness Month in Canada ā although in an altered form due to the pandemic. The annual nationwide community-driven event raises funds and MSĀ awareness to help battle the neurodegenerative…
The levels of a protein called Neuregulin-1 beta 1 (Nrg-1beta1) decline with the onset and progression of multiple sclerosis (MS), a new study suggests. The findings support the potential of Nrg-1beta1 as a predictor of MS risk and progression and suggest that restoring its levels may help halt disease…
A multiple sclerosis diagnosis is hard to process. Our body that we once knew so well suddenly feels untrustworthy. The truth is that the malfunctioning of our body is a traumatic event. We never expected it to do these things.Ā We are…
The development of a diagnostic test using neurofilament light chain (NfL) ā a biomarker for nerve cell damage ā for people with multiple sclerosis (MS) will be part of a collaboration program between Siemens HealthineersĀ and Novartis. The goal of this new collaboration is to design, develop,…
TheĀ National Institutes of HealthĀ (NIH) awarded a $2.3 million grant to a bioengineer at Indiana Universityās Luddy SchoolĀ of Informatics, Computing and Engineering to improve diagnosis and treatment of autoimmune diseases, such as multiple sclerosisĀ (MS). The project aims to find ways to detectĀ disease-associated cells based on their ability…
Inflammatory lesions within the brain, called paramagnetic rim lesions, visible on imaging scans may improve the accuracy of aĀ multiple sclerosis (MS) diagnosis, especially when used in combination with other imaging-based biomarkers, a Ā study reported. If corroborated in larger future studies, these white matter lesions may serve as an early…
I have long preached the merits of acceptance. In embracing my MS, I have mitigated much of the accompanying fear. This modus operandi has enabled me to live alongside my disease as opposed to clashing with it. While ideal, it is becoming increasingly difficult to follow my advice. Two…
I saw this question asked in a group somewhere not long ago and it got me thinking.Ā Would I go back to the way I was before my multiple sclerosis diagnosis? No, I wouldnāt.Ā That may sound strange, I…
Last updated April 25, 2023 In June, the U.K. marks Carers Week, which got me thinking about how a chronic illness diagnosis often affects a patient’s entire family.Ā Most often, patients are the focus of a diagnosis, and the people around them are almost forgotten. The…
Diagnostic guidelines for multiple sclerosis (MS) should be amended to first rule out the presence of neuromyelitis optica spectrum disorder (NMOSD), a neurological inflammatory disease that also affects the brain and spinal cord, a study recommends. The study, āCan a Diagnosis of Multiple Sclerosis Be…
I hate needles. Being told Iād need to do injections was the worst news ever, second only to my diagnosis of multiple sclerosis.Ā Sitting in the neurologistās office with my husband, Paul, was terrifying. I was 22 and newly diagnosed with…
A new tiny sensor is able to detect antibodies against myelin,Ā the protective coating of nerve cell axons whose destruction is a hallmark ofĀ multiple sclerosisĀ (MS), potentially allowing for a diagnosis in early disease stages, researchers report. It also offers the possibility of distinguishing multiple sclerosis from neuromyelitis optica, a…
Editor’s note: “Need to Knowā is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post “An Open Letter to a Newly Diagnosed Patient” and this column byĀ John…
Editor’s note: This week’s column is inspired by the forum topic “7 Strange and Unusual Symptoms of Multiple Sclerosis” from Nov. 8, 2019. Post your concerns, questions, or experiences in the comments below or at the original forum entry. People with MS often share the symptoms that prompted…
Using a mix ofĀ broad diagnostic terms and more disease-specific ones may help physicians and patients to better communicate symptoms of autoimmune disordersĀ like multiple sclerosis (MS) that are not always obvious or easy to explain, a study reported. The study, “Using autoimmune strategically: Diagnostic lumping, splitting,…
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