In recent months, while seeking to balance work, home life, family, and well-being, I’ve sought strategies to help me tackle perfectionism. On the health front, I’ve faced major struggles with my relapsing-remitting multiple sclerosis, secondary adrenal insufficiency, and avascular necrosis. However, to this day, my perfectionism is the most…
self-care
Relapsing-remitting multiple sclerosis (RRMS) brings both highs and lows to my life. Sometimes these moments will fluctuate throughout the day, while other times, the highs and lows can last for days at a time. When I experience a sustained low, I’ll find myself stuck in bed with no energy…
Counting today, there are only 18 shopping days left until Christmas. Unless you’re one of those annoying people who did all their gift buying months ago and won’t stop talking about it, the clock is ticking. I guess that makes me one of those annoying people who reminds you of…
About three years before my multiple sclerosis (MS) diagnosis and subsequent retirement, I found myself in Iraq preparing for a mission. I was going out with a different team from another branch of the U.S. military, and the planning and briefing process wasn’t as detailed as I was…
Well, dear reader, my time in Florida is coming to an end. Mom is home from the hospital after her surgery and a stint in rehab. She has begun outpatient physical therapy, and slowly but surely, she’s getting back to a new kind of normal. My being here is…
I only had my glasses for two years, yet reading anything on my phone was now nigh impossible. Still, it did cure my Facebook and Twitter addiction. Yer, yer, I’m old. (I’m 64, you know.) Sure, I’ve written this before — surely that’s a free pass for us aged folk.
Men with multiple sclerosis (MS) show differences in health-related behaviors based on how much they value certain masculine ideals, according to a new study that suggests possible negative effects of masculinity in terms of seeking medical care. Results from the study — which specifically focused on white males in…
Back in November, I told you all about my decision to start taking vocal lessons with a coach. Well, I’ve been at it for about eight months or so, taking an hour-long lesson every other week, and while I can tell that I’ve made some progress, I’m still not…
As anyone with chronic illness knows, leaving the house requires planning. There’s much more to think about than what’s visible, especially if you’re relying on public transport. In the days preceding last week’s appointment with my multiple sclerosis (MS) nurse, I was contemplating just how long it’d been since…
Imagine this scene: There’s a rowdy crowd of nearly 40,000 people in a rugby stadium with music blaring over the Tannoy speakers. Newfound numbness spreads throughout the majority of your body, and on top of that, you can hardly see. That was the perfect myriad of factors to elicit my…
Compared with living with multiple sclerosis (MS), the anxiety of what on water (Earth has always struck me as a misnomer as water comprises 71% of our planet’s surface) I’m going to write about next week is but a slight fluttering. Yer, yer, I know; underneath it’s…
“The carousel never stops turning.” – the TV drama “Grey’s Anatomy” At the 2019 European Patients’ Forum Congress in Brussels, which focused on patient involvement in healthcare, attendees were invited to write down a list of goals they wished to achieve in the next 12 months. After rolling my…
For the few of you lot lucky enough not to know about intermittent catheterization, it’s shoving a thin bit of plastic up the old (in my case) urethra so that you can pee. I am well aware of how bad plastic is for the planet, but in my open-and-shut…
Before anyone in the U.S. asks who this Jeremy Clarkson fella is, know that petrol heads in your country know exactly who he is. Indeed, the Brit motoring show “Top Gear,” at its height a few years ago, made him and his fellow presenters stars the world over. It…
Do What You Can Do (And No More)
I don’t know about you, but last week passed in a blur. I typically enjoy Thanksgiving, but this year, things were a little wonky. My husband’s grandfather passed away a month or so ago, so we weren’t about to ask his grandmother to prepare anything. My mother-in-law and I decided…
Putting Myself First
“Take the time you need,” “This too shall pass,” and “You can’t pour from an empty cup” are just a few idioms I have used to encourage others. Strong shoulders carry heavy loads. My shoulders bear the weight of myself and countless others. The DNA of an empath is…
I give freely of my heart and wear it proudly on my sleeve. Those who know me would say it waves. I care deeply for my family, friends, and colleagues. I derive immense joy in my volunteer work with rescue animals. Be it Walk MS, animal welfare, or a…
We All Have Bad Days
Mama said there would be days like this. I just never thought there would be so many. After three days of insomnia, I am heavily fatigued and weary. I wait, bleary-eyed, for signs of pain to appear, watching the sunrise and praying for renewal. As if on cue, the birds…
Ho-Ho-No
Even when a major holiday isn’t scheduled in a calendar month, I’m a pretty busy lady. I work a full-time job that requires me to be present and “on” most of every day. I also have to deal with Atlanta traffic, which is physically and mentally exhausting. I’m a…
Making Myself a Priority
Last week, I wrote about climbing through grief. This week, I will focus on what I learned in the throes of the cycle of grief. Several people share the opinion that I do too much. My cousin often says that he wants me to say no to…
Shining Through Boundaries
I spent the majority of my life as a people pleaser. From the time I was young, I equivocated “yes” with likability; please and be pleased. As the years passed, compromising my own needs became second to meeting those of others. While I genuinely enjoy…
It has been a busy few weeks. Well, when I think about it, every week is busy. There is always something that must be done. Just when I think things will slow down, my schedule lengthens. Admittedly, I am not a technology expert, so I rely on the…
How can you care for your MS when a loved one is ill? You want to be able to care for others despite your own daily struggles. As unpredictable as MS is, what is predictable is that your life will be touched by the…
I am making the transition from multiple sclerosis patient to cancer caregiver. On May 11 my family’s world turned upside down when my husband of 41 years was diagnosed with advanced pancreatic cancer. My caring husband, who has always loved and protected me, is now the one in…
I’m already tired of hearing about New Year’s resolutions. If you’re like me, you find that for those who spend their social media time listing goals in earnest, there’s a smidgen of luxury to their actions. After all, most of these goal-making champions are not chronically ill. They don’t have to think…
The “Comprehensive Care in MS and Symptom Management” session at the Consortium of Multiple Sclerosis Centers (CMSC) 2016 Annual Meeting, included a different kind of contribution – the presentation of a short film exposing the health challenges specific to Hispanic patients with multiple sclerosis (MS). Intended to promote…