self-care

While few of us choose to become caregivers, many of us are faced with the task if a loved one is diagnosed with a chronic disease. The transition is a strange time for everyone involved, as the nature of the relationship changes for both the caregiver and patient. However, it is…

Relaxation and serenity are both attainable with the correct calming techniques. When overwhelmed by stress, the skills that have been gained and practiced become second nature to be summoned as needed. The combination of stress and multiple sclerosis can wreak havoc in the body. It can lead to a…

I believe myself to be a person with great self confidence. It was a long journey to arrive at this destination, but once I arrived I knew I was here. I realize that chronic illness doesn’t only affect us physically, it manifests in other ways, too. There are psychological,…

Time. We all know it is important. Time is defined by the Oxford English Dictionary as “the indefinite continued progress of existence and events in the past, present and future regarded as a whole.” In simple terms, time is life in a series of moments. Regardless of what is…

Does your MS fatigue and energy need a boost? I know mine does; having multiple sclerosis drains my battery very quickly. Add to that a terrible cold I had recently, and my fatigue has doubled, and my energy has left the building! While looking for a magic…

Americans are feeling more anxious than ever. It’s not politics as usual, but politics as unusual. People who never were politically active find themselves raising their voices to make a difference. In the MS community, raising our voices is not something new.

Grief can weaken our immune system, elevate our blood pressure, and affect our overall health. During a loss, especially one of the magnitude of a loved one, self-preservation is not always a top priority. For those of us with multiple sclerosis, the mental anguish that is grief can exacerbate our already…

I’m already tired of hearing about New Year’s resolutions. If you’re like me, you find that for those who spend their social media time listing goals in earnest, there’s a smidgen of luxury to their actions. After all, most of these goal-making champions are not chronically ill. They don’t have to think…

The glory days of multitasking may be fading. More and more research points to the fact that our brains actually cannot multitask. Rather, the brain shifts rapidly (it’s all relative) back and forth between tasks as we attempt to do multiple activities at once. Like many people with MS,…

Our daylight hours continue to get shorter, as we get closer and closer to the winter solstice. At 4:15 p.m. I close the curtains and blinds, uncomfortable sitting on display in my living room as I continue to work until 5:30 most evenings. It’s difficult to motivate myself to leave…

Keeping motivated is a daily struggle, and honestly, most days I just don’t feel like moving. I feel better once I do, of course, but the motivation to move and be productive is lacking. Here are a few tips that I find helpful to help keep me motivated and…

The “Comprehensive Care in MS and Symptom Management” session at the Consortium of Multiple Sclerosis Centers (CMSC) 2016 Annual Meeting, included a different kind of contribution –  the presentation of a short film exposing the health challenges specific to Hispanic patients with multiple sclerosis (MS). Intended to promote…

Multiple sclerosis (MS) patients using an interactive, self-guided fatigue management resource, developed by researchers from the University of Alberta in Canada, reported lower fatigue and improved cognition after three months, showing that fatigue self-management tools can contribute to the treatment of this common MS symptom. The pilot study, “…

At various times during my life with MS, I’ve reached out for support from people with experience and knowledge about multiple sclerosis. Although sometimes I wanted to learn more about this unwanted illness that had burst into my life, I was also looking for people with MS to tell me…

Although it was over a decade ago, I still vividly remember the first questions I asked my neurologist after learning I had Multiple Sclerosis, “What can I do? Should I change my diet? Exercise more? Or less?” My first instinct was to look for a holistic way to minimize my…

A team of researchers from the Netherlands have developed an interactive web-based program called MSmonitor that offers multiple sclerosis patients a way to manage and better integrate the multidisciplinary care they require. Pilot data from a study of its use is detailed in the article, “The interactive web-based program MSmonitor for…

Keeping a journal may help patients suffering from severe and chronic diseases deal with their conditions, as well as with the stress and emotions that accompany symptoms. In a real-life testament to this, Mari L. McCarthy, who suffers from multiple sclerosis and started using journaling to cope with it, is launching…

Multiple sclerosis (MS) is a chronic, autoimmune neurodegenerative disease that the biomedical research and pharmaceutical industry has yet to find a cure for. It is a progressively debilitating condition that manifests with a number of unpredictable symptoms that can greatly reduce one’s quality of life. In order…

The first step to effective caregiving for those with Multiple Sclerosis is caring for oneself, according to researchers Marie Namey, a clinical nurse specialist in Multiple Sclerosis at the Cleveland Clinic Main Campus, and Ellen Reardon, a dietitian at Walden Behavioral Care. The presentation “Compassion Fatigue: Caring for the…