symptoms

What Do You See When You See Me?

If I were using a wheelchair, would you question why I use a handicapped placard? Perhaps some (or all) of the condemnation I now receive would diminish. Maybe the notes left on my windshield would not be written. Perchance, it might temper some of the ugly comments spoken to my…

Seeking Permission to Escape

I have been living in the land of Netflix. It went from a place I would visit from time to time to a home away from home. In between life’s moments, I find myself teleported to the land of escape. I become lost amid the complexity of characters and the…

Moving Madness Means MS Stress

We’re moving and I’m stressed. That’s redundant, I know, as moving is simply stress on wheels ā€” which isn’t good for someone with MS. Studies have shown a link between stressful life events and MS exacerbations, known as flares. Researchers, if you’re reading this, please keep a watch on…

Need to Know: What Does MS Progression Mean?

Editor’s note: “Need to Knowā€ is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post “Number, Location, Size of Lesions on MRI Can Predict Progression to MS,”…

Putting Down the Ritz

My stomach is grumbling. Iā€™ve just had the worst weekend ever. And that includes when I had my first sclerosis and smashed my shoulder to pieces on a tennis court. I mentioned last week that I didnā€™t want to write about C. diff., but this appalling infectious bacteria…

An April Fools’ Joke that Wasn’t Very Funny

“I canā€™t move my head,” I thought.Ā  It was 5 a.m. on April 1, and the realization of my full bladder prompted my wakening. But I soon realized I had a more significant issue that only became apparent when I tried to get up and couldn’t. What on…

That Time When MS Left Me at a Loss for Words

Editor’s note: This week’s column is inspired by the forum topic “7 Strange and Unusual Symptoms of Multiple Sclerosis” from Nov. 8, 2019. Post your concerns, questions, or experiences in the comments below or at the original forum entry. People with MS often share the symptoms that prompted…

From New Hope Emerged an Old Nightmare

I was bruised, broken, and in pain. I had been struggling with Rebif (interferon beta-1a) side effects for over a year, ever since my diagnosis. It was the first multiple sclerosis medication doctors put me on, and it did not work…

This Could Be the Last Time

Fear grips me. Marijuana relaxes, eases pain, and helps my body work better. It also stirs paranoia, but only when you let it. In bed, a fretful waking dream. This is a problem when you actually have something to be paranoid about! I don’t remember all my last times…

MS Really Enjoys Hitting Below the Belt

I didn’t file a column last week due to medical reasons. It’s a perfect excuse for a patient columnist ā€” we don’t need a dog to blame for eating our homework. The multiple sclerosis dog is more than happy to put us on the floor; in my case, even three…

This Week, I Feel Like I’m Growing Up Again

As I sit down (nothing unusual there ā€” all I do these days is sit down!) and write this, I’m 62 years and one day old. On Saturday morning, it felt like I still had a few days to go before I reached the heady height of a 2-year-old. I’m…

It’s Not All in Your Head

Several days ago, the headline “It’s All in Your Head” jumped out at me. The author of the Journal of the American Medical Association article, Matthew Burke, is a neurologist at Harvard Medical School who specializes in neuropsychiatry. According to Burke, the problem of physicians telling patients that unexplainable…

Under Pressure

There’s always something. The trouble with a mĆ©lange of complex medical issues is that one good action often can lead to a bad secondary one. It’s like a game of consequences that unfortunately not only injures your psyche, but also leaves a mark on the body. In my case, it…

Need to Know: What Is the ‘Barber Chair Phenomenon’?

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum topicĀ “Lhermitte’s Sign…” from May 4, 2018. What is the barber chair phenomenon? This…

Betwixt and Between

Usually, I have an idea of what I’m going to write. Today, all I feel is a bit meeeeughĀ … Which is more a sound of ennui than a recognizable word. In these days of multimedia, I suppose I should record it and insert the clip into the text, but…

Pregnancy Worsens Symptoms in MS Patients, Study Finds

Pregnancy, including successful delivery or miscarriage, worsensĀ symptoms of multiple sclerosis (MS), as well as onset of the disease, a retrospective study shows. Researchers found the same effect of pregnancy on neuromyelitis optica spectrum disorders (NMOSD), an inflammatory disorder of the central nervous system characterized by demyelination and damage of…

‘Always Look on the Bright Side of Life’

I started out in my professional life as a journalist. This only lasted about eight years and feels like a lifetime ago ā€” which it was. Though I was not a news hound, I learned to smell a story. Last week’s column,Ā “A Tale of Two Halves,”Ā juxtaposed bad MS…

Dear Diary

I never kept a diary.Ā I did sometimes muse about itĀ but reckoned I’d never become famous enough for one to be useful. Well, at least in that I was right. Until the rise of the smartphone, anniversaries and birthdays were flagged by my oldest son, who has the gift…

Is MS Keeping Me from Smelling the Roses?

For years, my wife and I have disagreed about smells. She smells something and I don’t. I tell her that her nose is too sensitive. She tells me to get out the air freshener. Over the 37 years since my MS diagnosis,Ā this conversation has happened thousands of times.

Modafinil or Amantadine: Who Decides?

Fatigue. That No. 1 symptom that a large majority of people with multiple sclerosis are affected by. MS fatigue. It can be crushing, numbing, and stop the hardiest person in their tracks. I know MS fatigue all too well because it affects me all the time. Combating MS…