It was a trip, plain and simple, neither my leg giving way nor a fall. It was MS-related because it was directly caused by foot drop; the toe of my left shoe caught on the tiniest ridge at the bottom of…
symptoms
The Brazilian government has authorized HempMeds Brasil, a unit of California-based Medical Marijuana, to import the parent company’s hemp cannabidiol (CBD) oil flagship product — known as Real Scientific Hemp Oil (RSHO) — for the management of multiple sclerosis (MS) symptoms. This is the first time Brazil’s National Health Surveillance Agency…
In my younger years, I took great pride in my far-flung spontaneity, and unfairly judged those I perceived to be too thoughtful and prudent. Age, with its attendant wisdom and experience, moved me slightly inland. In 2003, MS arrived with a smart little bag full of practical necessities,…
Fatigue is the bane of my existence. Clutter qualifies as my lifestyle. If I can’t see something it may as well be lost. I spend about 50% of my day trying to find things I have put “someplace safe.” The other half I spend looking for something I just had…
Time. We all know it is important. Time is defined by the Oxford English Dictionary as “the indefinite continued progress of existence and events in the past, present and future regarded as a whole.” In simple terms, time is life in a series of moments. Regardless of what is…
I Have MS. Do I Tell the Kids?
It’s a question that nearly every MS patient faces. When do I tell my children about my multiple sclerosis, and what’s the best way to do it? In early January I wrote a column about sharing an MS diagnosis. It was prompted by a reader who had told…
What is Brain Fog?
Brain fog is one of the most common symptoms of many chronic illnesses, including lupus, multiple sclerosis and fibromyalgia. In this Mind Over Meniere’s video, Glenn describes how brain fog affects him on a daily basis. Discover some Pilates exercises suitable for multiple sclerosis patients. Brain fog is more…
What do pot brownies, shoe shopping and bladder control have in common? These are just a few of the varied MS self-help support group discussion topics in which I have enjoyed participating. I have been an attendee and group leader of two National MS Society self-help groups. I also…
Researchers have tested a new compound called ST266 in a mouse model of multiple sclerosis (MS) and found that its anti-inflammatory properties prevent the loss of cells related to optic neuritis — a condition that leads to vision loss. The study, “Intranasal Delivery of a Novel Amnion Cell Secretome Prevents…
Browsing through some multiple sclerosis Facebook groups the other day I was reminded of the line from the 1967 movie Cool Hand Luke: “What we have here is a failure to communicate.” These posts jumped out at me: So when my neuro says he wants me to…
Lately, I have been reading more and more about the potential connection between the blood brain barrier and multiple sclerosis. I have been researching the blood brain barrier (BBB) to better understand it and share my findings with readers. The BBB is a network of endothelial cells…
Paeoniflorin (PF), a herb component used in Chinese medicine, improved symptoms and reduced inflammation in a mouse model that recapitulates the human features of multiple sclerosis (MS). The study, “Paeoniflorin Ameliorates Experimental Autoimmune Encephalomyelitis via Inhibition of Dendritic Cell Function and Th17 Cell Differentiation”, appeared in the journal…
MS Alphabet When it comes to multiple sclerosis, mastering your own understanding of the disease means you need to mind your P’s and Q’s, dot your i’s, cross your t’s, and recite your ABCs. There is so much to know about this complex disease, but the more you know as…
Obesity in early adolescence poses a risk for multiple sclerosis (MS) regardless of sex, and an earlier age at puberty also contributes to MS onset at younger ages, especially in overweight teenagers, a study reports. These findings were in the study, “Distinct…
Scientists have discovered the first blood biomarker for multiple sclerosis (MS) – a chemical identifier in the blood. The discovery should lead to a simple blood test that makes it quicker and easier to follow the course of MS, a debilitating disease of the central nervous system affecting around 2.3 million people…
Small natural variations within the DNA sequence of the gene for interleukin-16 (IL-16) were linked to an increased susceptibility to multiple sclerosis (MS) in a small group of Iranian patients. The study, “The Association of Interleukin-16 Gene Polymorphisms with IL-16 Serum Levels and Risk of Multiple Sclerosis,” was published in…
A genome-wide study has identified DNA regions associated with higher levels of circulating cytokines, small proteins that pay a role in inflammatory diseases such as multiple sclerosis (MS). Alterations in the levels and interplay of cytokines and growth factors play a key role in several inflammatory diseases, including MS. Cytokines help regulate…
Switching from Gilenya (fingolimod) to Lemtrada (alemtuzumab) triggers significant and unexpected disease activity in some patients with multiple sclerosis (MS), according to a study published in the scientific journal Neurology Neuroimmunology and Neuroinflammation.
You may not have heard this song, but I bet its lyrics will strike a chord. I cannot feel my body. I cannot feel my face. My legs are pins and needles and my mind is a disgrace. I see in double…
Tecfidera (dimethyl fumarate or DMF) use by multiple sclerosis (MS) patients can result in liver injury and, in rare cases, even severe injury, a study found, leading its researchers to recommend that patients’ on this treatment be carefully monitored for signs of injury. The study, “…
MS is an onerous disease. There are times when I feel as if I am in the midst of a tsunami. Everything comes crashing in and all I want is a safe haven, a level of calm. The tsunami consists of depression, physical symptoms and the destruction of peace.
MS and Falling the ‘Right Way’
Uh oh! My cat, T.J., is under my feet trying to nibble my ankles as I stumble toward the bathroom in the middle of the night. I know what’s about to happen. As I try not to step on T.J.’S tail, it’s already started. I’m going down. It…
The common cold is upon me as I sit here laboring to breathe, with water-soaked eyes and a rumbling cough. I am under attack, an enemy has infiltrated my multiple sclerosis-weakened immune system. The antagonists have found a warm home and they are fighting to stay. It is…
Here is my Pick of the Week’s News, as published by Multiple Sclerosis News Today. Sense of Smell Impaired in Half of Multiple Sclerosis Patients in Study For very many years I have known that my sense of smell has not been as good as that considered normal…
Many multiple sclerosis (MS) patients have a reduced sense of smell, and the more relapses they have, the worse the problem, according to a study suggesting that smell may be a marker for the disease’s progression. Findings also suggested a connection between reduced sense of taste and MS progression. The…
MicroRNAs in the blood could serve as biomarkers to monitor the progression of multiple sclerosis (MS), as well as help identify which mechanisms are at play in each patient, such as inflammation and tissue damage, according to new research. The findings were reported in the study, “Association Between Serum…
Two multiple sclerosis (MS) patients developed severe brain inflammation after being treated with Lemtrada (alemtuzumab), researchers report, raising questions about the therapy. A definite link between the lesions and the treatment, however, was not established. The patients’ symptoms were successfully controlled with a blood transfusion and treatment with rituximab (brand name Rituxan,…
In what may be one of the most significant discoveries in neurodegenerative disease, researchers have found that brain cells, called astrocytes, contribute to killing neurons and myelin-forming oligodendrocyte cells, which may drive neurodegenerative diseases such as multiple sclerosis (MS). Experiments indicate an aggressive astrocyte type kills cells by secreting a yet-unidentified…
There’s one thing you need to know about my family — we’re weird. We laugh at inopportune times. We can go entire days just speaking to one another in movie quotes. Sarcasm is a love language to my clan. And we can make just about anything — and I…
Want to know what living with MS feels like? Take a ride on this bike. Those of us who have MS know that our disease has lots of symptoms. There are the legs that feel like they have 20-pound weights on them … balance that can have you…