Living with MS

Higher Risk of Vascular Disease Among MS Patients in the UK, Population-based Study Reveals You’d think that people with multiple sclerosis (MS) would be likely to have vascular disease due to the sedentary lifestyles many of us lead. But this large, lengthy study that looks at the records of…

The Multiple Sclerosis Association of America (MSAA) is opening its resources to people with multiple sclerosis (MS) during COVID-19, including a webinar series on the pandemic and easier access to its support programs, the association…

The last few months have been interesting for obvious reasons. All of our routines have been toppled over like a stack of blocks, things that were once mundane now feel alien, and getting back to “normal” (whatever that looks like) still feels as far away as the horizon. But I…

This column will be short as I am quite ill. That’s nothing too unusual for those of us with MS. Oh, the joys of a relapse. A while back, it stopped me from walking. Now it’s stopped me from standing! Transferring anywhere is now a nightmare. I have to use…

For a comprehensive support app developed for multiple sclerosis (MS) patients, RxMx and Roche have won the Patient Engagement Innovation Award from Medtech Breakthrough. The fourth annual awards program recognized top health and medical technology products and companies. Healthcare company RxMx and pharmaceutical company Roche collaborated to produce…

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post “Need advice about CBD oil,” published on Nov. 1, 2018. Share your…

People in the United Kingdom (U.K.) with multiple sclerosis (MS) have an increased risk of vascular disease affecting the heart and brain that is not accounted for by traditional disease risk factors, a large, population-based study reports.  The study, “Evaluating the Risk of Macrovascular…

“You can’t say that!” Screams erupted over our Zoom chat resulting in infectious laughter. Admittedly, it was rude, too rude to mention, especially considering the unexpectedness of who said it.  Fun and laughter are what’s keeping us all going right now.

People with multiple sclerosis (MS) and other neurological diseases have a significantly higher aluminum content in their brains than those with no known neurological impairment and no identifiable neurodegenerative disease, a recent study found. The research further supports a role of aluminum in the development of these brain conditions,…

Healthcare providers should encourage everyone with multiple sclerosis (MS) to engage in regular exercise and keep physically active, new guidelines based on an expert panel convened by the National Multiple Sclerosis Society recommend. They also suggest different types of exercise applicable to people at varying levels of disability.

Hi there. It’s me, typing again on my very ownsome! For the last two weeks, I’ve been too ill to manage, so my wife kindly acted as a secretary — another of her many talents! I apologize for last week’s rather gruesome outing, but trying to stick to…

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post “Is your MS Invisible or is it obvious?” published on Feb. 15,…

Music is a spiritual experience. I love music in all of its forms. I grew up being serenaded by parents harmonizing everything from the Phi Gam fight song to Peter, Paul and Mary. After crucifying the clarinet, I played the piano until my late teens. I have fond memories of…

People with progressive forms of multiple sclerosis (MS) have faster and disease-modifying therapy (DMT)-resistant retinal atrophy (thinning), compared to those with relapsing-remitting MS (RRMS), a study shows. Data also highlighted that the thickness of deeper layers of the retina could be used as potential biomarkers of neurodegeneration in…

A patient registry of multiple sclerosis (MS) among veterans of the U.S. military has been created to allow for better clinical management of these people and to inform future research. The registry is described in the study “…

I hate needles. Being told I’d need to do injections was the worst news ever, second only to my diagnosis of multiple sclerosis.  Sitting in the neurologist’s office with my husband, Paul, was terrifying. I was 22 and newly diagnosed with…

Sativex (nabiximols) eases spasticity-associated symptoms in multiple sclerosis (MS) patients, including those with no significant improvements in a validated spasticity scale, according to a large study from Italy. The findings support previous studies suggesting that spasticity scales may not be enough to evaluate patients’ responses to Sativex and to…

I just turned 42, and though I am wiser and stronger and more independent than I was a few decades ago, not everything is coming up roses. Some days, I feel weak and helpless. Other days, I’m overwhelmed. And that’s just part and parcel of life for every human being…

I love it when a multiple sclerosis treatment works well for someone. It doesn’t matter if that treatment is a medication, a form of physical therapy, or a diet. Good news is good news. So, when I saw this post on the Lemtrada for MS Treatment Facebook group, I…

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post, “Life Is Better with a Local MS Nurse?” published on August 24, 2019.

I lie on my stomach in a Downward Dog fail. I am doing yoga, or something like it. I open my eyes. I spy a golden retriever tumbleweed float across the travertine floor. I feel my body flinch. It knows how much I want to get up and clean. It…

People with relapsing multiple sclerosis (MS) being treated with Gilenya (fingolimod) for eight or more years show smaller increases in disability over 10 years than those using this treatment for a shorter time, a long-term follow-up study reports. Longer use of Gilenya also resulted in lesser disability progression,…

Belong.Life has launched a free and anonymous social network app to offer support for people with multiple sclerosis (MS), their caregivers, and healthcare professionals. The app is called BelongMS and is now available…

I canceled my April blood draw. The protocol for Lemtrada (alemtuzumab) requires lab work each month because the treatment can have serious side effects. But I spoke with my neurologist and we decided that I could skip it. Blame it on COVID-19. My legs are stiffer than they…

The Multiple Sclerosis Society of Canada is launching a virtual effort that seeks to connect multiple sclerosis (MS) communities across the country and raise funds for research in observance of Multiple Sclerosis Awareness Month in Canada. As part of the initiative, called…

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post, “Are you using vitamin supplements?” published on October 17, 2019. Share your concerns,…

Staying active can help you to manage multiple sclerosis (MS) by helping to reduce the severity and frequency of many symptoms. For example, fatigue is my worst symptom and my narcolepsy doesn’t make it any better, but a regular workout routine has reduced my exhaustion. I love the gym,…

Multiple sclerosis (MS) patients who are obese experience a faster degeneration in their optic nerve tissue than those of normal weight, a study found. Since optic neuropathy correlates with greater nerve cell loss in the brain, tracking changes to the retina may be a feasible way to determine…

Starting treatment with Ocrevus early can lower almost by half the need for a walking aid in people with relapsing forms of multiple sclerosis (MS) over six years, new analyses of Phase 3 trial data that compared immediate initiation with a two-year delay show. A separate analysis also found…

Shorter Ocrevus Infusion Time Up for Approval in US and Europe One of the drawbacks to infusion therapies is the time a patient spends in a recliner receiving the medication. For Ocrevus (ocrelizumab), nearly half a day is required for the infusion itself. Add on pre-infusion care and post-infusion…