living with MS

It’s the time of year for travel here in the U.S. Graduations, weddings and vacations are on all of our calendars. Air travel, in particular, can be a real pain for someone with a handicap such as multiple sclerosis. Security, aircraft seats and legroom are all becoming increasingly…

Two studies that recently appeared in the Multiple Sclerosis Journal shed light on how contraceptive use may affect women with MS, as well as how the disease might affect the safety and effectiveness of birth-control medications. Relapsing MS patients treated with older drugs such as interferons and Copaxone (glatiramer acetate) have a…

Fear of the future will likely rear its ugly head more often than you’d like when you have multiple sclerosis or any serious chronic disease. It can be difficult to keep your mind from wandering to a very dark place. Worries about how fast your disease is progressing,…

Pull up a chair, kiddos, and I’ll tell you a sad story. Because we’re both musicians, my husband and I love going to concerts together. We’re on a budget, so we have to be choosy about who we see and where we sit. However, there is a short…

Former Massachusetts First Lady Ann Romney, global ambassador for Boston’s Ann Romney Center for Neurologic Diseases at Brigham and Women’s Hospital, will deliver a keynote address at the Biotechnology Innovation Organization’s (BIO) International Convention in San Diego. Romney, who is scheduled to speak June 21, will talk about how her multiple sclerosis (MS)…

If I was writing fiction about two disabled people going on a road trip, I’d be pleased to create a character like Nigel. He’s stroppy, Northern (from the perspective of the U.K. there isn’t a direct U.S. analogy – think deep south– but really cold and more booze!)…

I’ve been taking a statin drug for years to keep my cholesterol low, and it’s doing a really good job. Now, there’s hope that this class of drug also might be useful for MS patients. A major trial in the U.K. is testing the drug simvastatin (used to control…

Recently approved, Ocrevus (ocrelizumab) should now be available nationwide for patients prescribed the therapy. But as with any new treatment, concerns about safety and practical issues are on many patients’ minds. Multiple Sclerosis News Today asked Dr. Jack Burks — a neurologist and researcher who serves as chief…

Tremors are a common symptom of multiple sclerosis, experienced by around three-quarters of people with the condition, and one that often makes sufferers feel quite self-conscious. For most, the tremors will be mild and occur infrequently, but for some, the tremors may be more severe. There are four different types of tremors…

(Editor’s note: Tamara Sellman continues her occasional series on the MS alphabet with this first of two parts on terms starting with the letter “D.”) When it comes to multiple sclerosis, mastering an understanding of the disease means you need to mind your Ps and…

MS is sneaky. It is expert at evading detection and diagnosis, and often brings a host of invisible symptoms that may come and go at random. MS also brings invisible costs — expenses beyond the obvious medications, supplements, assistive devices, and healthcare. I am not talking about externalities,…

I am well aware of the importance of a mother, or a mother figure, and the significant role she has in the lives of her children and community. I am blessed to have an awesome mother who has profoundly shaped my life. It is her love, guidance, patience…

Like one third of America, I’m a cat lover. I’ve had kitties in my house since I was a child, often in sets. Currently, I’m the proud parent of two fur babies—Ivan (the tabby) and Baker (the Wegie)—and they’re a great source of joy, entertainment and…

Losing our independence due to multiple sclerosis is a profound loss. With that loss comes the grieving process and inevitable change. On Grief.com in “A Message from David Kessler,” he discusses the five stages of grief: denial, anger, bargaining, depression and acceptance. I have experienced all of these…

I now introduce myself as a disability rights activist. I began to pay attention to local politics and related activities last fall. Our city redevelopment plans are charging along, without any city staffer to pay attention to the needs of the disabled. As such, I’ve been making the…

Have you ever been on a New York City subway? I grew up in the Big Apple, and I used to love riding the subway as a kid. I’d travel all over the city without a problem. Not so today. Not so since MS changed my track.

The burden of moderate-to-severe relapses in multiple sclerosis (MS) patients is underappreciated, according to a study sponsored by the pharmaceutical company Mallinckrodt. Researchers discussed the findings at the American Academy of Neurology’s 69th annual meeting in Boston, April 22-28. The title of the presentation was “The Economic Burden Of…

A few years ago, after a fairly stable decade, my MS decided to shake things up. What began as occasional tripping over my own feet soon turned into chronic shin splints, and the inability to walk or drive far, all of which was caused by MS foot drop.

Editor’s note: This is the first of a three-part series about Pilates and MS. When I was diagnosed with MS in December 2013, my most visible symptom was a waltzing shuffle that was slowly changing my once-purposeful gait into a wobble (leading some co-workers to believe…

“Do you think you’re walking better?” The question came from my wife, Laura. It’s now about 4 1/2 months since my first round of Lemtrada infusions and I’ve had ups and downs physically. The day she asked, I was feeling pretty good. I also think I’ve been…

Members of Parliament are helping the Multiple Sclerosis Society of Canada commemorate May as MS Awareness Month. The lawmakers will be meeting with society representatives and other members of the MS community in the capital of Ottawa, May 1-3. MS Awareness Month is a run-up to World MS Day on May…

The inflammation in our bodies can be very sneaky. I am not talking about the good inflammation, also known as the group of hormones called eicosanoids (eye-KAH-sa-noids). This group of hormones provoke our immune system to fight diseases, viruses and other invaders and help in repairing tissues…

A significant percentage of multiple sclerosis (MS) patients struggle with improper diagnoses and ineffective treatments, a national survey of more than 5,300 patients found. The fifth annual survey, “MS in America 2017,” was conducted by Health Union between Jan. 25 and March 1, 2017. It was released through the…

Pamela Arterbridge noticed something was wrong back in 2013 when she woke up one morning, and her legs and feet were tingling. Two years later, Lorraine Lee knew she had a problem when her right leg became extremely fatigued after every workout. Neither realized their eventual diagnosis would be multiple…

I knew it was only a matter of time before my MS neurologist would have MS PATHS available to collect clinical data from people who have agreed to participate. MS PATHS is an information- and biological sample-gathering clinical study from Biogen, the leading manufacturer of multiple sclerosis disease-modifying…

Last week, I celebrated by 39th birthday. Yes, 39. That’s one year shy of the big 4-0. The last year of my 30s. If life was a rollercoaster ride, I’m about six clicks from the apex; the big plunge awaits me just on the other side. I looked…

Everything around us, and within us, begins with science. Science is important to the future of humanity’s well-being. Science is what makes the world go around. We all think it’s love, but actually, at its core, love begins with chemistry. Biological…

When I began writing about multiple sclerosis, I never imagined that, one day, I’d be writing a column about guns. But here I am, staring right into that barrel. The other day as I cruised around MS websites, I ran across a post from a woman who was…

In 2004, I was diagnosed with hypothyroidism, a condition in which the thyroid is underactive and doesn’t product enough important hormones. Six years later, I was diagnosed with multiple sclerosis (MS). Naturally, I became curious as to whether a link might exist between between hypothyroidism and MS. I am…

Multiple sclerosis causes debilitating fatigue. The following photographs show, without censorship, what my fatigue leaves undone. The homes of everyone I know have living rooms without sweaters tossed over the back of chairs. Their floors are not an obstacle course. They do not have piles of mail, notes, drills,…