living with MS

The black hole — that is the name I have given to my MS depression (yep, I name my depression. Doesn’t everyone?). It’s so easy to become depressed when you have MS. The disease is always on our minds. We are always thinking about how to maneuver our daily life…

This is my Pick of the Week’s News, as published by Multiple Sclerosis News Today. Study of Myelin-producing Cells a Step Forward for MS, Other Neurological Disorders Isn’t it strange how often in the world of science, something of importance is found in an unconnected study? Here,…

It’s happened to us all.  You arrive at a business and discover there are steps at the entrance. A few years ago my wife and I arrived to check-in to a 4-star hotel near The Wheel in London, and discovered that there were a dozen steps at both of…

I live in a part of the country with beautiful green forests, mountains, abundant freshwater, and saltwater.  If you have seven hours to spare, you can drive across the state and experience desert, orchard, mountain, alpine meadow, rainforest, and the Pacific Ocean. This beautiful land also comes with some…

Posture control is a complex skill, requiring different areas of the nervous system to work well and to work together — but the damage caused by multiple sclerosis complicates such nervous system multi-tasking, leading to postural problems and the well-established tendency for MS patients to fall. Several neurological systems are known…

One of my favorite gospel songs is “Stand” by Donnie McClurkin. There’s a verse that says, “after you’ve done all you can, you just stand.” My spirit reacts to this song each time I hear it. It satiates my soul. I love music and believe it is a gift.

One of the MS blogs that I follow is written by Jen, who lives in England.  It’s called Tripping Through Treacle. Doesn’t that neatly sum up the lives of many of us in just three alliterative words?  From MS newbies to old-timers like me, we worry (or have worried)…

Fall is here and things are a little more slick. Walking for most of us with multiple sclerosis involves weakened legs and lack of balance. We have daily challenges getting around in good weather, let alone bad. Add a little rain, a few gusts of wind, and some bone-chilling cold and…

Here is my pick of the week’s news items, as published in Multiple Sclerosis News Today. Lemtrada Seen to Help Reverse MS Disability in People in Earlier Stages of Disease A medication that might not just stop but reverse disability of people with relapsing MS? Now, this is…

Most of us who live with multiple sclerosis also live with a disease modifying therapy (DMT) — a drug that, we hope, will positively modify the course of our disease. One of the earliest of these was Avonex, a weekly injection into the muscle. I was one of those…

As a mother of two boys, I’m blessed with an abundance of dirty socks, Nerf darts, and Legos — all of which end up in the laundry (more or less) each week. And of those three kinds of detritus, I must say that the Legos vex me the most. If…

A woman who says her life was made miserable by fatigue caused by multiple sclerosis (MS), claims she is on the road to recovery because she has taken control of her body and is using a combination of hormones and diet. Instead of relying on conventional treatment, she is…

Multiple sclerosis (MS) patients with more advanced disease, as evidenced by disability, and those more frequent relapses or aversion to needles are among the groups of people at higher risk of discontinuing Betaferon (interferon beta-1b) treatment, researchers report. These findings may help to alert clinicians to those least likely to adhere to…

Our days have gotten shorter since June 20, but somehow I managed not to notice until a few weeks ago. Perhaps it is because we had a late summer here in the Northwest, and could comfortably leave home without a coat until late September. That’s also the time that…

“In sickness and in health.” These words are said by everyone embarking upon the exciting journey of marriage. Most are in love, excited about the future and hopeful they have found their happily ever after. Many of us repeat the words “in sickness and in health” without much thought,…

I have written nine articles so far with shared ideas of what has helped me in this overwhelming battle with multiple sclerosis. My experiences and successes are shared in the hope that others will be helped as well. This 10th article is about what comforts and sustains me the most…

Here, I comment on my Pick of the Week’s News, as published in Multiple Sclerosis News Today. Myelin Regeneration Achieved in Mouse Model of MS Remyelination is one of the most exciting developments in the treatment of MS. Therapies aimed at regenerating the myelin sheath can work to…

The National Multiple Sclerosis Society announced that is investing more than $10.5 million to support an anticipated 42 new research projects into multiple sclerosis (MS), part of its commitment to scientific efforts aimed at stopping MS, restoring lost function to patients, and, ultimately, ending the disease forever. The dedicated funding is part of a projected society investment of…

Voluntary running triggers a molecule called VGF, a nerve growth factor, that was seen to induce a brain repair mechanism in animals, researchers at The Ottawa Hospital and the University of Ottawa in Canada report. The findings have important implications for multiple sclerosis (MS) and other conditions caused by damage to…

I work full time in public health, and some days are spent ‘out in the field’ visiting clients in their homes. It requires careful planning to ensure that I have adequate water, food, medications, and layers of clothing for homes that are too hot or too cold.  I research…

Disability from multiple sclerosis develops, on average, within 10 years of diagnosis. Financial catastrophe was often the consequence, until Congress passed the Achieving a Better Life Experience Act (ABLE Act) — signed into law on Dec. 19, 2014, by President Obama. This act allows you or anyone to…

Stress urinary incontinence affects predominantly young adult mothers with relapsing-remitting multiple sclerosis (RRMS), particularly those with pelvic organ prolapse, according to a recent study. Exercises that strengthen the pelvic floor muscles are suggested to reduce the risk of incontinence. The study, “Stress Urinary Incontinence in Women With Multiple Sclerosis,”…

I have to be honest. This is a complex subject for me. As a child I was taught to pray and to believe in what I prayed for. I truly believed that there was nothing that God and I couldn’t get through together. This conviction accompanied me into adulthood.

The jury is still out on the role, if any, that heavy metals play in multiple sclerosis. Many theories have been floating around for years regarding the possible connection between MS and dental amalgams, pesticides, additives to food, lead paint in older homes … and the list goes on. The National…

I’m filling in for Ian Franks this week on news item picks for Multiple Sclerosis News Today while Ian is in Moscow taking the first step in his HSCT (hematopoietic stem cell transplantation) quest. We wish him well. Virus Linked to Respiratory Infections May Also Trigger Brain Diseases…

GeneFo, an MS patient community that provides support, advice, and clinical trial matching, recently co-hosted an online conference with Trent Austin, MD, who reviewed the most updated research and clinical evidence of natural substances – including  medicinal mushrooms, vitamins, biotin and cannabinoids – to inform the public about the potential…

Osteoporosis (fragile bones) is only a women’s problem, right? Wrong, especially if you have multiple sclerosis — as I’ve discovered. Osteoporosis causes bones to become weak and brittle.  A fall that probably wouldn’t harm a healthy person can easily break the bone of someone with osteoporosis.  When the…

It’s definitely autumn here in the Pacific Northwest. Misty, gray mornings give way to breezy sunshine in the afternoon … for a couple of hours anyway, until the evening rain arrives. This is the time of year that the weather forecasters compete to see who can come up with…

A few weeks ago, I visited my general practitioner for a yearly physical. I was expecting him to harp on my weight, cholesterol, blood pressure — any of the other myriad issues that crop up as we age. But surprisingly, I left the office with my self-esteem firmly intact. (In…

Have you tried Pilates to improve your mobility?  When my wife and I tried it, a few years ago, I thought that it was sort of like doing yoga stretches using exercise equipment.  It felt good and, for the short time that I did keep it up, Pilates seemed…