Coping methods

An MS patient who reads my column sent a personal message last week. It began: “Sorry about the secrecy. I’m in the closet! Seriously, I haven’t told many people about my RRMS diagnosis, for many reasons. I really don’t want my kids knowing. … I want to spare them that…

Now that 2016 is thankfully behind us, it’s time to start a new year — fresh, rested, and ready to kick butt and chew bubble gum. That being said, rest in peace David Bowie, Alan Rickman, Glen Frey, Prince, Nancy Reagan, George Kennedy, Gary Shandling, Anton Yelchin, Gene…

I’m already tired of hearing about New Year’s resolutions. If you’re like me, you find that for those who spend their social media time listing goals in earnest, there’s a smidgen of luxury to their actions. After all, most of these goal-making champions are not chronically ill. They don’t have to think…

Cookies and veggie tray in tow, and trepidation in check, I ventured to a New Year’s Eve party at a friend’s house. Since my diagnosis of MS, New Year’s Eve has been celebrated at home with Dick Clark, and then Ryan Seacrest, to keep me company. In Winter…

I was thinking of writing about another subject a few days ago and then, as usual, life happened. I learned of the passing of a former colleague recently. I did not know her well, but her spirit was infectious. She had been fighting colorectal cancer for 12 years. As…

Our daylight hours continue to get shorter, as we get closer and closer to the winter solstice. At 4:15 p.m. I close the curtains and blinds, uncomfortable sitting on display in my living room as I continue to work until 5:30 most evenings. It’s difficult to motivate myself to leave…

Keeping motivated is a daily struggle, and honestly, most days I just don’t feel like moving. I feel better once I do, of course, but the motivation to move and be productive is lacking. Here are a few tips that I find helpful to help keep me motivated and…

In Cold Sassy Tree, the classic novel by Olive Ann Burns, Grandpa Blakeslee tells his grandson Will Tweedy that, “Livin’ is like pourin’ water out of a tumbler into a dang Coca-Cola bottle. If’n you skeered you cain’t do it.” If you don’t speak fluent hick, as I do,…

Several weeks ago I wrote about the benefits of time outdoors and my desire to learn to kayak properly, so  it can be an option when my legs won’t carry me into nature. I recently completed the final of three indoor kayak lessons. The course was actually called “Kayak Roll.”…

Last week I wrote about surviving the holiday blues. This week I am going to focus solely on giving thanks. November 20 marked the 16-year anniversary of my second open-heart surgery. November also marks the second year of my multiple sclerosis diagnosis. As I reflect on my life, all…

We are officially entering into the holiday season. Thanksgiving is almost here and Christmas will follow. The stores are filled with decorations. Holiday sales are advertised and children are excitedly preparing their Christmas lists. In addition, we will receive, and may even send the proverbial “Happy Holidays” greeting cards.

When you have a chronic illness, learning everything you can about it is both a blessing and curse. The part of me that’s a researcher and a digger at heart, the one who simply can’t get enough information, gathers it nonstop from a variety of sources; after all,  knowledge is…

This photo was taken more than a year ago and I remember it as if it were yesterday. There was so much going on behind the smile captured in this picture. Smoky Robinson serenaded about “the tears of a clown.” I definitely played the role of the clown that…

One presenting symptom of my multiple sclerosis (MS) was severely slowed and slurred speech. There were several other disturbing outcomes of my back-to-back, initial exacerbations, but it was the speech that was my greatest fear. After my second MRI, the neurologist explained that the dysarthria, or trouble speaking, was…

The black hole — that is the name I have given to my MS depression (yep, I name my depression. Doesn’t everyone?). It’s so easy to become depressed when you have MS. The disease is always on our minds. We are always thinking about how to maneuver our daily life…

One of my favorite gospel songs is “Stand” by Donnie McClurkin. There’s a verse that says, “after you’ve done all you can, you just stand.” My spirit reacts to this song each time I hear it. It satiates my soul. I love music and believe it is a gift.

I have written nine articles so far with shared ideas of what has helped me in this overwhelming battle with multiple sclerosis. My experiences and successes are shared in the hope that others will be helped as well. This 10th article is about what comforts and sustains me the most…

I have to be honest. This is a complex subject for me. As a child I was taught to pray and to believe in what I prayed for. I truly believed that there was nothing that God and I couldn’t get through together. This conviction accompanied me into adulthood.

It’s definitely autumn here in the Pacific Northwest. Misty, gray mornings give way to breezy sunshine in the afternoon … for a couple of hours anyway, until the evening rain arrives. This is the time of year that the weather forecasters compete to see who can come up with…

A researcher at De Montfort University Leicester (DMU)’s School of Nursing and Midwifery found that the practice of mindfulness helps people with long-term medical conditions, such as multiple sclerosis, to manage their diagnosis. The study, “Starting where I am: a grounded theory exploration of mindfulness as a facilitator…

Chronic stress weakens the immune system and increases the risk for a number of illnesses, including heart disease, diabetes, and depression. Most research studies about the effects of stress on MS have been inconclusive, but one recent study by Dr. David Mohr at the University of California, San Francisco,…

A very full day of activities is planned for today at MS Life, inside London’s ExCel exhibition and convention center. Altogether, there are 15 presentations on the agenda. Three are in the MS Life theatre, and three more are in each of the following four zones: Managing my MS Symptoms;…

Thinking has become my second job. Never have I had to put so much effort into gathering my thoughts or comprehending the world around me as I do with MS. To say MS has changed my life in so many ways is an understatement! Of all of my MS…

Many people voiced their concerns to me about anyone with MS moving to live in a sunny climate. That worry is understandable. With a disease that includes heat sensitivity, where even a hot shower can make you worse, how can any MS patient move to live in an area where…

I often watched “The Brady Bunch” as a kid.  In one episode, Peter’s voice changes right before the talent show and he isn’t able to sing his chosen song. His replacement song has been playing on repeat in my head for two months! “When it’s time to change, you’ve got…

It is often said that real life mimics television, and one hit TV series certainly reflects the theme: “my life is my own, MS cannot have it.” During the 1960s, 1967–68 to be exact, an iconic television show ran on Sunday nights called “The Prisoner.” It starred Patrick McGoohan as…

Even before my 2010 Primary Progressive MS diagnosis, I was influenced by my inner voice. Way too many times I’ve given into my insecurities and visions of all the terrible scenarios that could occur. Everyone has that little voice. The one that will whisper, “you can’t do that,” or, “why bother?…

Editor’s Note: MS Patient Specialist and Columnist Judy Lynn writes from her unique and engaging perspective as an MS patient reflecting on the challenges that the disease presents and how to cope with them in her daily life. In her debut article for her new Column “You’ve Got Some Nerves,”…