Columns

My Lemtrada Journey, 2 Years After My Second Round

Happy Lemtrada anniversary to me! It’s been two years since I completed my second round of Lemtrada (alemtuzumab) infusions, and I’m happy to say that the results have been good. Not everyone’s experience with Lemtrada will mirror mine, but I don’t think I’m much different than most. My brain MRI…

Need to Know: What Is Acthar Gel?

Editor’s note: “Need to Knowā€ is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post “MS Treatment Eases Flare-up Symptoms After 2 Months” from Oct.

Zeposia Is Now Approved, But Expect Delays

Zeposia’s recent approval in the U.S. is exciting news for all in the MS community. Unfortunately, we will need to table that excitement a bit longer. Despite its approval, the treatment’s commercial distribution will be delayed by the COVID-19 pandemic. I am confident, however, that it will be…

How to Make Working from Home Work for You

I just finished my third week of working from home due to the coronavirus, and Iā€™ve learned a few things about what it takes to be successful outside of the office. Here are a few helpful tips for MS patients who currently spend more than a few hours behind a…

In Training for Solitary Confinement

I’ve just been sentenced to at least 18 months in solitary without time off even for good behavior! Pretty harsh. Luckily, I’m match fit. I’ve already previously done nearly a year trapped in my bedroom with only a commode and basin for most of the day. That was tough.

That Time When MS Left Me at a Loss for Words

Editor’s note: This week’s column is inspired by the forum topic “7 Strange and Unusual Symptoms of Multiple Sclerosis” from Nov. 8, 2019. Post your concerns, questions, or experiences in the comments below or at the original forum entry. People with MS often share the symptoms that prompted…

How to Cope and Thrive During a Challenging Time

Living through this unique time is nothing like Iā€™ve ever experienced before.Ā  Thereā€™s so much doom and gloom around lately. I donā€™t know about you, but the constant government alerts and updates donā€™t feel like theyā€™re helping me. Itā€™s enough to drive me insane if I…

Do They Know It’s Not Christmas?

Quarantine sure feels like Christmas. The shops are stripped bare. The streets are empty. Family homes are stuffed with everyone returning home. In our case, my wife rescued my youngest son from his cool digs near Hammersmith in West London on Monday, just in time. The prime minister announced a…

Online Coronavirus Screening May Not Be Ready for Prime Time

A number of websites are currently offering online coronavirus screening. These aren’t a full-scale test. The online sites read symptoms that you enter and then use artificial intelligence to determine how likely it is that you’re positive for the virus. But there’s a bit of a problem. An investigation by…

Need to Know: MS and the Battlefield of the Immune System

Editor’s note: “Need to Knowā€ is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum.Ā Leave a comment here or at the original forum category. Iā€™m moved (and, truth be told, empowered) by the #HighRiskCOVID19 hashtag trending…

Divide and Conquer: Bravery in the Face of the Coronavirus

I donā€™t know if youā€™ve heard or not, but thereā€™s this coronavirus thing going around. And it is disrupting everything from concerts and conferences to schools and my kids’ recreation sports leagues. Donā€™t get me wrong, as a person who lives with multiple sclerosis (MS) and is therefore immunocompromised,…

Let’s All Take a Deep Breath

Take a deep breath, and I don’t mean the kind promoted by fake memes infecting the web to “prove” that you don’t have COVID-19! My deep-breath moment was in a small elevator at my doctor’s office. An able-bodied woman in her 50s bounded into the elevator behind my wheelchair…

Have You Tested Positive for Coronavirus with MS?

What happens if you have MS and you’ve tested positive for COVID-19? How will the disease affect your disease-modifying therapies and your MS? Dr. Barry Singer, (@drbarrysinger), a neurologist who directs The MS Center for Innovations in Care in St. Louis,Ā has posed…

An Outlier with MS, Coronavirus Nears as I Self-isolate

ā€œItā€™s the end of the world as we know it.ā€ ā€” R.E.M. Welcome to the world of COVID-19. Coronaviruses arenā€™t new: severe acute respiratory syndrome (SARS) and Middle East respiratory syndrome (MERS) are both coronaviruses. But this uninvited guest, COVID-19, the illness caused by the novel coronavirus, has…

MS, Coronavirus, and My Crazy Immune System

When I received my multiple sclerosis diagnosis, I was told that my immune system is a little weaker than most people’s and I am more susceptible to getting sick. But I didn’t realize how easy it would be to catch a cold until I did. No matter what…

What New Hell Is This?

There’s nothing like a good, old-fashioned bacteriological pincer attack to take your mind off impending death. I’m not exaggerating about the impending bit. A friend/colleague was supposed to fly to Rome today for a holiday but Italy has just closed. As I write this, it was only yesterday that the…

MS News that Caught My Eye Last Week: Coronavirus Updates, MD1003 Trial Fails to Meet Goals, Sativex and Spasticity Relief, NurOwn Trial Site Announced

Second Phase 3 Trial of MedDayā€™s MD1003 for Progressive MS Fails to Meet Goals This is disappointing news about what scientists had hoped would be another oral disease-modifying therapy for multiple sclerosis. It’s doubly disappointing because MD1003 is aimed at progressive forms of MS and demyelination, and we need…

Guidelines for DMT Use as COVID-19 Spreads

People with multiple sclerosis have unique concerns about the new coronavirus and the COVID-19 disease that it causes. Many of us use disease-modifying therapies (DMTs) that suppress our immune systems and give us an extra element to worry about when we plan our defense against this virus. To help us…