multiple sclerosis

For many years I have been fighting the battle of the bulge while trying to decipher and combat many food intolerances. Every year I seem to come up short in the battle with losing weight, but I continue to try to shed the pounds. There are many challenges…

Lately, I have been reading more and more about the potential connection between the blood brain barrier and multiple sclerosis. I have been researching the blood brain barrier (BBB) to better understand it and share my findings with readers. The BBB is a network of endothelial cells…

Interferons (Beta and Alpha) are the oldest of the disease-modifying treatments, or DMTs, for people with MS. Interferons include Avonex, Betaseron, Rebif, and Plegridy. This column won’t get into the pros and cons of each of these treatments. Instead, I’d like to focus on one of the more…

Back in September I told you about Cheryl Hile. Cheryl is a young woman with MS whose goal is to become the first person with MS to run in seven marathons on seven continents. In September she had just completed her first marathon, in Cape Town,…

You may not have heard this song, but I bet its lyrics will strike a chord. I cannot feel my body. I cannot feel my face. My legs are pins and needles and my mind is a disgrace. I see in double…

Uh oh! My cat, T.J., is under my feet trying to nibble my ankles as I stumble toward the bathroom in the middle of the night. I know what’s about to happen. As I try not to step on T.J.’S tail, it’s already started. I’m going down. It…

The common cold is upon me as I sit here laboring to breathe, with water-soaked eyes and a rumbling cough. I am under attack, an enemy has infiltrated my multiple sclerosis-weakened immune system. The antagonists have found a warm home and they are fighting to stay. It is…

“Laughter is the best medicine.” We may never know where this quote originated, but it’s a good one. The benefits of a loud, robust belly laugh are many! According to many internet sites laughter has great short-term effects. When you laugh, it doesn’t just lift you mentally, it…

This is second in a 2-part series. You can find Part 1 here.  Being proactive about your MS means staying up-to-date on current theories, treatments, products, and strategies. It’s safe to say that most people will turn to the internet at least a few times to look up…

Have you ever had someone tell you “it could be worse?” They are making a valiant effort to comfort and console you. However, there is not much consolation in the words. They almost sound a bit insensitive. I have been told this several times. I think many people…

Want to know what living with MS feels like? Take a ride on this bike. Those of us who have MS know that our disease has lots of symptoms. There are the legs that feel like they have 20-pound weights on them … balance that can have you…

Serving as co-administrator for a large MS forum has shown me that, while we live in a world of easy access to information, we may not always be prepared to understand and interpret it. While I’m not a medical doctor, I do work in the healthcare field and have…

Grief can weaken our immune system, elevate our blood pressure, and affect our overall health. During a loss, especially one of the magnitude of a loved one, self-preservation is not always a top priority. For those of us with multiple sclerosis, the mental anguish that is grief can exacerbate our already…

When the Americans with Disabilities Act was signed into law in 1990, there seemingly were as many opponents as there were proponents. All these years later, the standards and expectations of that landmark legislation have become second-nature in mainstream America. Concerns about costs and consequences were…

I don’t think this will surprise you. Multiple sclerosis drugs, some of the most expensive drugs there are, are getting even more expensive. Drug industry analyst Eric Schmidt, quoted in the Boston Business Journal, reported that Biogen began the new year by upping the price of Tecfidera,…

It’s been a month since I completed my first round of Lemtrada infusions, so it’s time to bring everyone up to date on how things are going. I was told to expect a roller coaster of side effects. I’m pleased to say that, at least so far, it’s…

Now that 2016 is thankfully behind us, it’s time to start a new year — fresh, rested, and ready to kick butt and chew bubble gum. That being said, rest in peace David Bowie, Alan Rickman, Glen Frey, Prince, Nancy Reagan, George Kennedy, Gary Shandling, Anton Yelchin, Gene…

I’m already tired of hearing about New Year’s resolutions. If you’re like me, you find that for those who spend their social media time listing goals in earnest, there’s a smidgen of luxury to their actions. After all, most of these goal-making champions are not chronically ill. They don’t have to think…

“This first candle in the advent wreath,” I told my kids as I clicked the lighter and set its flame atop the wick, “represents hope. What does that word mean to you guys?” In the warm glow of the purple taper, we talked about everything from wishes and…

Scientists at the University of Buffalo have identified a critical step in the process of nerve myelination after birth, a discovery that holds promise for the development of more effective therapies for neurodegenerative diseases like multiple sclerosis (MS). The research involved the study of voltage-operated calcium channels, which initiate many physiological…

“Round, round, get around. I get around.” I was humming that classic 1960s Beach Boys tune this morning (yes, I’m that old) as I thought about a feature story that I saw on one of the TV networks recently. The story profiled Cory Lee. Cory has spinal muscular…

Disability from multiple sclerosis develops, on average, within 10 years of diagnosis. Financial catastrophe was often the consequence, until Congress passed the Achieving a Better Life Experience Act (ABLE Act) — signed into law on Dec. 19, 2014, by President Obama. This act allows you or anyone to…

I hate to admit it, but I’m getting kind of old. That’s not to say that 68 is really old, but I’m probably older than a lot of you who are reading this. I’m also 36 years old in “MS years.” I was diagnosed the month that Ronald Reagan…

The other day I received a very troubling direct message from someone on another Multiple Sclerosis website: “I was diagnosed with MS in 2004 but, foolishly, dismissed it. Other than bad spacisity [spasticity] and a few little episodes, I was relatively symptom free. That is until…

A long-term study underscores the potential benefits, especially in terms of relapses, of multiple sclerosis (MS) patients beginning treatment as soon as possible after symptoms appear — even before the disease is definitely diagnosed. “The 11-year long-term follow-up study from the randomized BENEFIT CIS trial” was published in the journal Neurology. Researchers in…

The Multiple Sclerosis (MS) Foundation wants to mark its 30th anniversary by granting 30 more wishes to MS patients in need this year through its Brighter Tomorrow Grant program. To do this, the organization is asking the public to help it raise $30,000 before Dec. 1, so it can increase by 30…

Transcutaneous electrical nerve stimulation (TENS) might be an option to treat spasticity, one of the more common symptoms of multiple sclerosis (MS), according to a literature review conducted by researchers from Universidad de Castilla la Mancha, Toledo and Hospital Nacional de Parapléjicos de Toledo, in Spain.

Welcome to this, the very first installment of my new regular column for Multiple Sclerosis News Today. Here, you can join the race to beat this disease. Run to win. First, let me introduce myself. I am, shall we say, mature — aged 63; having spent my working life doing what…

Research on a specific type of stem cell found in the placenta, known as decidua-derived mesenchymal stem cells (DMSC), suggests these cells might be the source of future treatments for multiple sclerosis. The report, “Restrained Th17 response and myeloid cell infiltration into the central nervous system by human decidua-derived mesenchymal stem…

As of October 15, 2015, Croatia has been added to the list of European Union (EU) countries that now allow marijuana for medical purposes. Other countries within the EU that permit some degree of marijuana use include Spain, Portugal, the Czech Republic, and the Netherlands. The legalization of the sale…