Columns

This column will be short as I am quite ill. That’s nothing too unusual for those of us with MS. Oh, the joys of a relapse. A while back, it stopped me from walking. Now it’s stopped me from standing! Transferring anywhere is now a nightmare. I have to use…

My favorite line in the “Downton Abbey” TV series, uttered by the dowager played by Maggie Smith, is “What’s a weekend?” When you’re retired, if you’re working as a freelancer, or if like me you’re doing both, it’s easy to forget what day of the week it is. There are…

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post “Need advice about CBD oil,” published on Nov. 1, 2018. Share your…

“You can’t say that!” Screams erupted over our Zoom chat resulting in infectious laughter. Admittedly, it was rude, too rude to mention, especially considering the unexpectedness of who said it.  Fun and laughter are what’s keeping us all going right now.

COVID-19 May Not Be Severe in MS Patients, Early Data from Italy Suggest Keep in mind that COVID-19 information is dynamic. New data about this illness appear every day. But all information I’ve seen so far agrees with this report, which indicates there’s no reason to think that living…

Hi there. It’s me, typing again on my very ownsome! For the last two weeks, I’ve been too ill to manage, so my wife kindly acted as a secretary — another of her many talents! I apologize for last week’s rather gruesome outing, but trying to stick to…

More support has been added to the belief that a link exists between the Epstein-Barr virus (EBV) and multiple sclerosis (MS). Epstein-Barr is one of the most common viruses, and most people become infected with it at some point in their lives. Frequently, it appears in childhood as…

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post “Is your MS Invisible or is it obvious?” published on Feb. 15,…

Music is a spiritual experience. I love music in all of its forms. I grew up being serenaded by parents harmonizing everything from the Phi Gam fight song to Peter, Paul and Mary. After crucifying the clarinet, I played the piano until my late teens. I have fond memories of…

I hate needles. Being told I’d need to do injections was the worst news ever, second only to my diagnosis of multiple sclerosis.  Sitting in the neurologist’s office with my husband, Paul, was terrifying. I was 22 and newly diagnosed with…

FDA Approves Bafiertam, Tecfidera Bioequivalent, for Relapsing MS This is the second disease-modifying therapy (DMT) OK’d by the FDA in the past few months. Bafiertam is a delayed-release pill that’s similar to Tecfidera, but it’s said that it has fewer side effects. Unfortunately, its manufacturer hasn’t yet made it…

I just turned 42, and though I am wiser and stronger and more independent than I was a few decades ago, not everything is coming up roses. Some days, I feel weak and helpless. Other days, I’m overwhelmed. And that’s just part and parcel of life for every human being…

My stomach is grumbling. I’ve just had the worst weekend ever. And that includes when I had my first sclerosis and smashed my shoulder to pieces on a tennis court. I mentioned last week that I didn’t want to write about C. diff., but this appalling infectious bacteria…

I love it when a multiple sclerosis treatment works well for someone. It doesn’t matter if that treatment is a medication, a form of physical therapy, or a diet. Good news is good news. So, when I saw this post on the Lemtrada for MS Treatment Facebook group, I…

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post, “Life Is Better with a Local MS Nurse?” published on August 24, 2019.

I lie on my stomach in a Downward Dog fail. I am doing yoga, or something like it. I open my eyes. I spy a golden retriever tumbleweed float across the travertine floor. I feel my body flinch. It knows how much I want to get up and clean. It…

Bookmark this page! Why? Because in this column, I’ll give you three techniques to help manage your anxiety. Anxiety and stress are unhelpful for anyone’s mind or body, particularly with a chronic illness like multiple sclerosis. Feeling anxious or stressed is our brain’s mechanism to prepare the body…

New Nanosensor May Help to Diagnose MS at Early Stages My neurologist likes to say that “brain is time.” The sooner MS is treated the more time you can buy before the brain begins to deteriorate and MS symptoms appear. Being able to diagnose MS sooner means earlier treatment.

I’ve never done this before, but I’m dictating this column to my wife. She has many attributes, among them being trained as a secretary many years ago. We went to the same further-education college when we were both in our late teens, but never met while there. I think she…

I canceled my April blood draw. The protocol for Lemtrada (alemtuzumab) requires lab work each month because the treatment can have serious side effects. But I spoke with my neurologist and we decided that I could skip it. Blame it on COVID-19. My legs are stiffer than they were two…

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post, “Are you using vitamin supplements?” published on October 17, 2019. Share your concerns,…

Staying active can help you to manage multiple sclerosis (MS) by helping to reduce the severity and frequency of many symptoms. For example, fatigue is my worst symptom and my narcolepsy doesn’t make it any better, but a regular workout routine has reduced my exhaustion. I love the gym,…

What will the future look like after this coronavirus craziness is over?  One thing is certain: The world can’t go back to being “normal.” This time in isolation has raised many issues and broken down so many barriers. Only now do…

Shorter Ocrevus Infusion Time Up for Approval in US and Europe One of the drawbacks to infusion therapies is the time a patient spends in a recliner receiving the medication. For Ocrevus (ocrelizumab), nearly half a day is required for the infusion itself. Add on pre-infusion care and post-infusion…

So far, this week has been horrible, but I’ll give that a brief mention later. The truth ain’t pretty, nor do I think it always makes good copy. Unless I go for the trite “However bad it is out there, it’s even worse in my bedroom!” I’m in the perfect…

It’s comforting to have this guy, with his floppy ears, stretched out next to me as I sit here writing. I don’t know why, but the fact that Joey, who is really my wife Laura’s cocker spaniel, has chosen to nap next to me is special. I’m not usually a…

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post “An Open Letter to a Newly Diagnosed Patient” and this column by John…

I give freely of my heart and wear it proudly on my sleeve. Those who know me would say it waves. I care deeply for my family, friends, and colleagues. I derive immense joy in my volunteer work with rescue animals. Be it Walk MS, animal welfare, or a…

Well, this is super weird. Being told to stay home and leave our houses only for food, medication, or exercise is bizarre for those of us in England. It’s starting to take a toll on my mental health.  The other day, I stood in line at…

Fampyra, Aid for Walking, Favored for Inclusion in NHS Scotland I used Ampyra, as Fampyra is known in the U.S., for about a year. It improved my walking a little, but I had to give it up due to cost. It’s been available in the States for a decade,…