Columns

I Am Grateful for Everything ā€” Even MS

Last week, CNN’s Anderson Cooper broadcast an interview with “The Late Show” host Stephen Colbert. They had a lively discussion about comedy, politics, careers, and the like, but perhaps the most stunning eight minutes of the interview were focused on grief. Colbert, a devout Catholic, said, ā€œIt’s…

Life Is Better with a Local MS Nurse

I was struck down by sclerosis in 2006 ā€” literally. I was playing tennis and ran to return a drop shot. I never made it, but I did drop myself and rupture my right shoulder. It was so severe that it took two operations to rectify. The first few years…

Need to Know: The Hug You Never Want to Receive

Editor’s note: “Need to Knowā€ is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum topic ā€œHave you ever had an MS hug? What does it feel like?ā€…

I Will Not Be Sidelined in the Game of Life

It is the most wonderful time of the year. Sounds of commentator calls, audibles, and cheering crowds fill the house. A familiar sense of calm envelops my being. It is football season. I sometimes wonder how I survive the offseason. I was raised in the San Francisco Bay Area…

Up Peristeen, or How to Beat the Blockade

The joys of MS are never-ending. One area that gets disrupted by this disease of the central nervous system is our pelvic regions. That affects bladder, bowel, and sexual function. I’ve written about all of this in previous columns. My bladder failed less than two years after I…

Need to Know: How a Spinal Tap Can Help to Diagnose MS

Editor’s note: “Need to Knowā€ is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum.Ā This week’s question is inspired by the forum topicĀ “Have you had a lumbar puncture to help diagnose your MS?” from Jan. 29.

MS News that Caught My Eye Last Week: Solution for Lemtrada Complications, CBD Infusions, Vaccines and MS, Music and Exercise

Autoimmune Complications Associated with Lemtrada Solved Using Anti-CD20 Therapies, Case Studies Suggest One of the concerns about the disease-modifying therapy (DMT) Lemtrada (alemtuzumab) is that it may raise the patient’s risk of developing a secondary autoimmune disease within seven years post-treatment. This small study suggests that the abnormal proliferation…

Looking Forward, Looking Back

I am now 41, at the beginning of ā€œmiddle age,ā€ and Iā€™m tempted to give it the middle finger. Itā€™s a halfway point, a layover, a way station ā€” a time to contemplate the journey so far and take steps for the bit that is to come. Because I have…

An Open Letter to a Newly Diagnosed Patient

I’ve been a co-moderator on the MS News Today Forums for a couple of months now and recently wrote a reply to a newly diagnosed patient, Jono. He’s only had MS for a month. I found myself writing what I wished I’d known when I was diagnosed. Now,…

Using Marijuana and Having Surgery? Tell Your Anesthesiologist

If you’re using marijuana and have surgery scheduled, take heed. In Colorado, where medical marijuana was legalized in 2000 and recreational use in 2012, medical personnel are discovering that weed may complicate the surgical process. The concern, according to an article in Kaiser Health News, is that marijuana…

Need to Know: What Is Foot Drop and What Can I Do About It?

Editor’s note: “Need to Knowā€ is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum topicĀ “Do you suffer from the MS symptom of ā€˜drop foot?ā€™” from Sept. 20,…

Using the Floodlight App to Track My MS

Over the past several weeks, I’ve been using an app called Floodlight to track my ability to live with my multiple sclerosis (MS). It measures things such as my balance, finger dexterity, walking speed, and cognitive ability. It even knows if I’m keeping myself shuttered in my apartment or…

Need to Know: Is My Vertigo Caused by MS?

Editor’s note: “Need to Knowā€ is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum topicĀ “Multiple Sclerosis-related Vertigo: What Can You Do?” from Nov. 23,…

Getting Back in the Water with My MS

After a week of temperatures at 95 degrees or more making it too hot to swim, today was comfortable enough for me to get back into our condo’s pool. The water temperature was perfect and cool enough to keep me refreshed. I had the best workout I’ve had this season:…

Letting Go of Appearances in Life with MS

Living with MS can sometimes feel like youā€™re performing a one-woman (or man) show. Think about it. How many times have you pretended to be OK when you didn’t feel so hot? Have you ever shown your loved ones a brave face instead of upsetting them? Ever caught yourself acting…

Beaten by the Heat: Oh, What a Night!

It’s 1 p.m. in the U.K., and it’s 90 degrees Fahrenheit.Ā I can hardly move due to the heat. My left hand is typing this. The rest of my body has shut down. Tomorrow is forecast to be the hottest July day in recorded history in the U.K. I had set…

Why Am I Not Bitter About My MS?

Living with multiple sclerosis (MS) is a process of loss ā€” of mobility, brain function, and independence. We can lose relationships and jobs. For most of us, these losses are forever. A woman who commented today on a column I wrote a few weeks ago said that she is…