Columns

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. Leave a comment here or at the original forum category. I’m moved (and, truth be told, empowered) by the #HighRiskCOVID19 hashtag trending…

Life is unscripted. It is messy and uncertain, with change being the only constant. Much like living with multiple sclerosis, adapting to change is directly correlated to our ability to thrive. We are reminded of this as we adjust to our new reality in the throes of COVID-19. Seemingly…

Following my previous column titled, “5 Free Activities You Can Do at Home During COVID-19 Hibernation,” I thought it would be fun to share some more free things you can do from home. The more I look into this topic, the more material…

I’m starting this week by linking to our Coronavirus COVID-19 Information section on the Multiple Sclerosis News Today Forums. My fellow moderator, John Connor, and I have been posting information there from our news writers and columnists about the evolving situation. Have You Tested Positive for Coronavirus…

I don’t know if you’ve heard or not, but there’s this coronavirus thing going around. And it is disrupting everything from concerts and conferences to schools and my kids’ recreation sports leagues. Don’t get me wrong, as a person who lives with multiple sclerosis (MS) and is therefore immunocompromised,…

Take a deep breath, and I don’t mean the kind promoted by fake memes infecting the web to “prove” that you don’t have COVID-19! My deep-breath moment was in a small elevator at my doctor’s office. An able-bodied woman in her 50s bounded into the elevator behind my wheelchair…

What happens if you have MS and you’ve tested positive for COVID-19? How will the disease affect your disease-modifying therapies and your MS? Dr. Barry Singer, (@drbarrysinger), a neurologist who directs The MS Center for Innovations in Care in St. Louis, has posed…

With March being Multiple Sclerosis Awareness Month, I got to thinking: What have I done — or what do I do — to raise MS awareness? I’ll count some ways to fly the orange flag. Maybe you’ll find inspiration. Communications I’m a writer, so obviously I use my skill…

“It’s the end of the world as we know it.” — R.E.M. Welcome to the world of COVID-19. Coronaviruses aren’t new: severe acute respiratory syndrome (SARS) and Middle East respiratory syndrome (MERS) are both coronaviruses. But this uninvited guest, COVID-19, the illness caused by the novel coronavirus, has…

When I received my multiple sclerosis diagnosis, I was told that my immune system is a little weaker than most people’s and I am more susceptible to getting sick. But I didn’t realize how easy it would be to catch a cold until I did. No matter what…

I don’t watch or listen to the news, but luckily, fellow Multiple Sclerosis News Today columnist Ed Tobias does. I’ve found that avoiding the news has helped to improve my mental health, because I realized that all the doom and gloom happening…

There’s nothing like a good, old-fashioned bacteriological pincer attack to take your mind off impending death. I’m not exaggerating about the impending bit. A friend/colleague was supposed to fly to Rome today for a holiday but Italy has just closed. As I write this, it was only yesterday that the…

Second Phase 3 Trial of MedDay’s MD1003 for Progressive MS Fails to Meet Goals This is disappointing news about what scientists had hoped would be another oral disease-modifying therapy for multiple sclerosis. It’s doubly disappointing because MD1003 is aimed at progressive forms of MS and demyelination, and we need…

People with multiple sclerosis have unique concerns about the new coronavirus and the COVID-19 disease that it causes. Many of us use disease-modifying therapies (DMTs) that suppress our immune systems and give us an extra element to worry about when we plan our defense against this virus. To help us…

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the post, “…

Like many people with multiple sclerosis, my symptoms are mostly invisible. Many days, fatigue overwhelms me and I have pain somewhere. I tingle all over. I have weird sensory symptoms such as the feeling of water…

FAQs About Coronavirus and MS As the coronavirus that causes the COVID-19 disease spreads around the world, people with multiple sclerosis are asking questions specifically related to our illness and our medications. These FAQs answer many of those questions. The recent outbreak of a novel…

As someone with 16 years of MS experience, I’ve grown to hate needles. I only have to give myself three shots a week now instead of seven, but I dread shot days as if they were the proverbial plague. Needles are awkward and uncomfortable. They make travel more difficult. Sometimes…

I know the new strain of coronavirus is bad, but in the face of impending doom, I’m likely to find humor. Anyone who has had more aggressive disease-modifying therapies (DMTs) like Lemtrada (alemtuzumab) and Ocrevus (ocrelizumab) likely has a compromised immune system. After all, this is exactly what…

By the end of this month, another disease-modifying therapy (DMT) for multiple sclerosis may be available in the U.S. Ozanimod is an investigational daily pill for the treatment of relapsing MS. The Food and Drug Administration is expected to decide…

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum topic “Searching for a diagnosis” from May 14, 2018. Did you undergo evoked potential…

I recently interviewed filmmaker Celestine Fraser on my podcast. Fraser produced a documentary about chronic illness called “ill, actually.” We touched on some interesting topics, including how people with chronic illnesses use social media. The documentary interviews three people with…

In this column, I’ll be highlighting some of the research presented at this year’s Americas Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS) Forum, held last week in West Palm Beach, Florida. #ACTRIMS2020 — Remyelination in Adult Animal Brains Possible via Cell Transplant, Study Says You’ll need…

Being disabled constricts what my body does — but I’m still me. For a long time, I was trapped as I could no longer self-propel my self-propelled wheelchair. Then last summer, my powered one turned up! Wham-bam-crash-slam! Never delicate, I instantly got to slam around in my very own…

Feb. 29 is Rare Disease Day. It’s a day on which those in the rare disease community attempt to raise awareness about their diseases. I don’t think MS should be included. With about 2.5 million people worldwide in the MS community, I don’t consider it to be rare.

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forums. This week’s question is inspired by the forum topic “Do you have mood swings? What helps?” from Nov. 27, 2018. Do you…

I have secondary progressive multiple sclerosis and I am rare. In honor of Rare Disease Day on Feb. 29, I honor myself. I honor you and anyone else with a rare disease. I have been asked if multiple sclerosis qualifies as a rare disease. It does if…

Being diagnosed with a chronic illness isn’t easy by any stretch of the imagination. It comes with a new medical language to learn, a plethora of lengthy appointments, an impressive amount of blood tests, and a lot of frustration. But does it lead…

Flowonix’s Prometra II Pump System Receives FDA Approval for Use with Intrathecal Baclofen This new pump could be a major step forward for people with multiple sclerosis who use a pump to deliver baclofen directly into their spinal column. It uses a pressure-driven system rather than a motor-driven one,…

There’s a story I love to tell about my dad, a retail warrior with more than 30 years of experience under his belt. And it’s one that I think is apropos for those of us dealing with multiple sclerosis. Back in the 1980s when he was a department manager…