I have had the privilege of watching several children grow into adulthood, and witnessing their transformation has been priceless. I have experienced extreme joy, sorrow, pride, and disappointment; all of the many emotions associated with life itself. However, what I find truly amazing is the innocence and determination of…
Patiently Awakened
— Teresa Wright-Johnson
Teresa Wright-Johnson is a congenital heart disease survivor and an MS warrior. Diagnosed in November 2014 with MS, Teresa relies on her faith, family, and friends. As a person with chronic illnesses, Teresa has learned the importance of being both patient in nature and present in each moment. It has also led her to boldly live her truth and walk in her purpose. Teresa’s column will focus on her personal lessons and experiences with MS. Teresa hopes her column will inspire and encourage others to stand in the midst of adversity. She believes that even in the course of illness, we can find greater meaning to our existence and use our light to shine through our darkest hour.
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“Sweep around your own front door before you try to sweep around mine.” These lyrics are from a spiritual song on my playlist. They’ve challenged me to assess myself while simultaneously liberating me from the judgment of others. Life happens on its own terms, and the only…
Support is a crucial component in fighting chronic illness and adversity. Our humanity connects us and we thrive on relationships. Support may come in the form of family, friends, social services, groups and countless other methods. I have been fortunate to have an abundance of support for which…
Someone asked me to fully explain the title of my column, “Patiently Awakened.” My column title provides a brief description of what it means to me and my intentions for readers. I thought it would be best to elaborate in the column itself. Patient as a noun refers…
Grief is something that we have all experienced. The process is a natural human response to tragedy and loss. It is often cyclical and traumatic. I have read and written various articles referencing the grief process. Discussions with my niece and my dear friend led me to write…
A couple of weeks ago I wrote a column regarding end-of-life decisions. The reality is that the time will come for every human being. This journey of life and chronic illness continues to teach me salient lessons. I have been asked numerous times if I am afraid…
I am well aware of the importance of a mother, or a mother figure, and the significant role she has in the lives of her children and community. I am blessed to have an awesome mother who has profoundly shaped my life. It is her love, guidance, patience…
For those who read my column, I am certain you can see I am an emotional writer. This is a difficult column to write. I have been thinking about end-of-life decisions for months. I am reminded of my mortality each time I visit the hospital and I’m asked…
This past week has been uplifting. The sun was out and the weather was enjoyable. Spring has officially arrived, and I was able to get out and really appreciate the nice days. I did not do much of anything, however, I was out and about. Easter Sunday was…
The dating process is the prerequisite to most serious relationships. We invest a significant amount of time to assess whether we are compatible with the person of interest. Dating should be fun and we should look forward to future possibilities. For the past few days I’ve been thinking about dating…
The past few days have been remarkable in the multiple sclerosis (MS) community, with the U.S. Food and Drug Administration (FDA) approving Ocrevus to treat relapsing MS (RRMS) and primary progressive MS (PPMS) in the United States. Ocrevus — adminstered intravenously every six months — is the first drug…
I am sure many of us have had instances where someone “offered” their advice on what is the best way to manage our illnesses. They are not medical professionals and many of them don’t suffer from the disease themselves. They present their beliefs as scientific dogma, often referring to…
Most of us have heard Rachel Platten’s Fight Song. It became an anthem for many people who struggle with illness and adversity. Fight Song has become one of my favorite odes. As a writer, I love to listen to the words of song lyrics. The music is…
This was an eventful week. I was not feeling well and ultimately ended up in the hospital for a couple of days. I had severe neck pain that radiated to my shoulder and arm. In addition, I woke up one morning with severe chest pains. I couldn’t determine whether…
I believe myself to be a person with great self confidence. It was a long journey to arrive at this destination, but once I arrived I knew I was here. I realize that chronic illness doesn’t only affect us physically, it manifests in other ways, too. There are psychological,…
March is recognized by the Multiple Sclerosis Association of America as MS Awareness Month. Awareness is a vital component of any illness. We must actively engage to collectively congregate and support the cause by way of our time, resources and voices. We are seeking to make communities aware of…
Time. We all know it is important. Time is defined by the Oxford English Dictionary as “the indefinite continued progress of existence and events in the past, present and future regarded as a whole.” In simple terms, time is life in a series of moments. Regardless of what is…
Valentine’s Day is celebrated by many. We wait for this one day of the year to tell the ones we love how special they are. The proverbial Happy Valentine’s Day cards, flowers and candy will be given as tokens of love and affection. Although my husband and I are…
The three words are powerful. My mother speaks them into my spirit frequently. She tells me to “Just hold on.” My mother is a woman who has withstood many tragedies. Both my parents have. They’ve lost their children, cared for me as an ill child and they continue to…
MS is an onerous disease. There are times when I feel as if I am in the midst of a tsunami. Everything comes crashing in and all I want is a safe haven, a level of calm. The tsunami consists of depression, physical symptoms and the destruction of peace.
Have you ever had someone tell you “it could be worse?” They are making a valiant effort to comfort and console you. However, there is not much consolation in the words. They almost sound a bit insensitive. I have been told this several times. I think many people…
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