Daily living

Photo courtesy of Ken Bach Day 21 of 31 This is Ken Bach’s (@kens.ms.fitmess) story: Ten years ago, on the day my youngest son was born, I woke up unable to move my right arm. A month later, results from an MRI confirmed my suspicions and showed nine…

Photo courtesy of Holly Stevens Day 20 of 31 This is Holly Stevens’ (@buckie_mom) story: My MS was diagnosed in November 2006, back in my native California, after I experienced numbness and tingling on the left side of my body following a 5K run that April. I…

Photo courtesy of Lissette Mares Day 19 of 31 This is Lissette Mares’ (@ms.ironman) story: There is so much in life we get to choose but there’s more that is out of our control. I find myself telling people we are all dealt with many cards in life,…

We are a three-cat household because, well, felines are awesome. They’re entertaining and sweet. They love to give cuddles. And they’re fairly self-sufficient — no baths or walks necessary. Just keep food and water in ample supply, and they’re good to go. The only problem? Litter boxes. We have this…

My week is never exactly easy, but it’s much harder for my family. Not only do they have to deal physically with my ever-enlarging lump of flesh, there’s also my verbal diarrhea to contend with. Then last Tuesday, it wasn’t just the verbal kind. Turns out my bowels began to…

Photo courtesy of Tiffany Wilcher Day 18 of 31 This is Tiffany Wilcher’s (@tmwilcher) story: My name is Dr. Tiffany Wilcher, and I was diagnosed with multiple sclerosis at the age of 22 while serving my country in the U.S. Army as a combat medic. I had no…

Photo courtesy of Marek Klimkowski Day 17 of 31 This is Marek Klimkowski’s (@runningwithms_pl) story: My MS story began probably when I was 14 years old, but the disease wasn’t confirmed at that time. I had been bitten by a tick and diagnosed with Lyme disease. I…

“Mirrors don’t lie. They only show a part of truth.” — Lara Biyuts I’ve written about how my reality feels jagged compared with actual reality. I wrote, “The woman looking back at me isn’t whom I perceive myself to be.” I’ve been pondering this recently. The realism of reality With…

Photo courtesy of Pamela Neckameyer Day 16 of 31 This is Pamela Neckameyer’s story: My symptoms started in 2004. I would trip and fall for no reason. My mind would say “walk” but my legs wouldn’t move for a few seconds. I went to a neurologist who tested…

Photo courtesy by Michael Drohan Day 13 of 31 This is Michael Drohan’s (@mdrohan) story: I was diagnosed with multiple sclerosis at 18, right before high school graduation. I describe the 18 years since as a slow decline in my abilities. My relapsing-remitting MS has shifted to…

Photo courtesy of Tyler Campbell Day 11 of 31 This is Tyler Campbell’s (@tcspeaks32 ) story: At 22, I was suffering from paralysis and even erectile dysfunction. I felt so lost and yearned to be found. I needed a friend, someone to lean on who wouldn’t judge…

Photo courtesy of Carolyn Hinds Day 10 of 31 This is Carolyn Hinds’ (@carriecnh12) story: Mild cognitive impairment, or CI for short, probably doesn’t sound as debilitating or challenging when compared to other symptoms of multiple sclerosis, but it is. The word “mild” can be very misleading because…

Photo courtesy of Cassidy Krygger Day 9 of 31 This is Cassidy Krygger’s (@cassidykrygger) story: I remember the day of my first MS symptom, more than three years ago, as clearly as if it were happening now. It was October 2018, and I realized that every time I…

Photo courtesy of Kaci Bell Day 8 of 31 This is Kaci Bell’s (@myelinmoxi) story: Something I feel a handful of people in the disabled community have experienced but are too shy to open up about is “imposter syndrome.” Imposter syndrome and chronic illness rarely fall in the…

Photo courtesy of Alexios Touloupis Day 7 of 31 This is Alexios Touloupis’ (@alexios4real) story: I was diagnosed with multiple sclerosis in March 2016, my junior year of high school, when I was only 16. For months I struggled with one health problem after another. It was…

Spring is rapidly approaching. It’s warming up outside. The trees are starting to bloom. And inside our home, I am once again plotting to refresh the place. Out with old decorations, and in with the new! Declutter that closet! Donate the table and chairs that still look great because you…

There I was, swinging away in my hoist at 9 p.m., though my swinging London of the 2020s wasn’t only 60 years later, it was also a lot, lot grimmer. My carer and maybe still wife, Jane, stood below in a controlled fury. If nothing else, she might…

Photo courtesy of Zaki Farzand Day 2 of 31 This is Zaki Farzand’s (@zakifarzand) story: Hi, I’m Zaki Farzand, and I’m 33 years old. Here is my MS story, so pull up a seat, grab a coffee, and sit back. I still remember the day I got my…

Am I about to share my first conspiracy theory, even if it’s just about me? Why not? It’s all the rage, though this one may have a loose connection to a possible truth. Stick with the story, please. It requires some scene-setting. It was years ago, at the end of…

“In order to rise from its own ashes, a phoenix must first burn.” — Octavia E. Butler You know that feeling of waking up in a strange place, and it takes a second to remember where you are? Imagine that coupled with not being able to move from the neck…

Multiple sclerosis (MS) patients who experience reductions in spasticity after a four-week course of inpatient rehabilitation can sustain those improvements in the long term using an app-based self-training program, according to data from a clinical trial. The app also led to better adherence to the self-training program than…

If you’re like me, you’re always wondering what obstacles you’ll need to overcome if you eat at a new restaurant or visit another venue you’ve never been to before. Will you physically be able to enter? If so, can you navigate once inside? Are the bathrooms accessible? You could…

In truth, my long, bad Friday started on Thursday afternoon at 5 p.m., although it seems wrong in the middle of a black, midwinter night to still call it afternoon. Still, if you live in Alaska, summer nights never even start! (OK, I’ll stop musing about the vagaries of Earth’s…

Reservations at a base lodge have been made, and a starting date is circled on her calendar. MS hiker April Hester is ready to start up the Appalachian Trail in the eastern U.S. It’s always an uphill hike for April, even when the trail is flat. She was diagnosed with…

The vagaries of multiple sclerosis are always present, but this week, my waking hours have been consumed by something far more important. I say waking hours, but we have to discount much of that time, because I’m put to bed at the early hour of 10 p.m. and spend several…

I don’t know why, but for some reason, two people in my family decided to get me puzzles for Christmas this year. Granted, one is a rad picture of 30 or so classic book covers, and the other is covered in cats. But still, it’s weird. When I returned home…

XRHealth, a virtual reality clinic that provides treatments in patients’ homes, has integrated Tobii‘s eye-tracking technology into its platform, which will let clinicians treat patients with multiple sclerosis (MS) and other neurological conditions. “We are excited to partner with Tobii — the leader in eye tracking —…

I’m back in Florida for the next several months, having left cloudy, windy, chilly Maryland for the Gulf Coast. It’s been sunny and in the low 80s for the past few days, and my multiple sclerosis (MS) is feeling just fine. A lot of people with MS avoid the heat,…

As I glance over at the lonesome wheelchair skulking in the shadows of my living room, I recall its arrival like it was yesterday, though it’s been more than four years. My husband, and then carer, had paraded it through the house as if it were a savior, there to…

Owning a dog, cat or other household pet during the ongoing COVID-19 pandemic has helped multiple sclerosis (MS) patients gain a better overall sense of their health and well-being, a single-site survey by mail of people in the U.K. reported. But pet-owning patients reported no significant improvements in their…